“I wish I’d told them”: A qualitative study examining the unmet psychosexual needs of prostate cancer patients during follow-up after treatment

O’Brien, Rosaleen; Rose, Peter W.; Campbell, Christine; Weller, David; Neal, Richard D; Wilkinson, Clare; McIntosh, Heather; Watson, Eila

doi:10.1016/j.pec.2010.07.006

Cited by 99 publications

(104 citation statements)

References 61 publications

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“…The findings presented here complement the findings of a systematic review of existing guidelines on prostate follow-up 8 and a qualitative study exploring the follow-up experiences of men with prostate cancer. 9,10 Methods Participants and recruitment Thirty-eight semi-structured telephone interviews were conducted with a range of both secondary and primary care health professionals from across the UK. Secondary care professionals are specialists based in the hospital setting.…”

Section: Introductionmentioning

confidence: 99%

Views of health professionals on the role of primary care in the follow-up of men with prostate cancer

et al. 2011

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Background. Follow-up care for prostate cancer has traditionally been led by secondary care in hospital out-patient clinics. As the number of men with prostate cancer increases and secondary care resources face pressure, alternative follow-up models are being sought. Current National Institute for Health and Clinical Excellence guidance recommends follow-up outside the hospital setting for patients who are stable 2 years following radical treatment and for those undergoing 'watchful waiting'. Objective. To describe current practice in a sample of relevant health care professionals and to seek their views on the role of primary care in prostate cancer follow-up.Methods. Semi-structured telephone interviews with 38 UK health care professionals, from both secondary and primary care. Transcripts were analysed using the constant comparative method.Results. There are marked variations in current follow-up practice around the country, with hospital-based follow-up ranging from 6 months to lifetime. The predominant, although not universal, view expressed was that there is both scope and support for primary care to play a greater role, particularly for men with stable disease. This was qualified by the need for supporting education, including guidance on interpretation of prostate-specific antigen values, introduction of robust follow-up systems in primary care, easy access back into secondary (hospital) care, a mechanism for ensuring follow-up data can still be collected for audit purposes and appropriate resourcing. Conclusions. If primary care is to play a significant role in providing high-quality follow-up care for men with prostate cancer, then steps need to be taken to address the barriers to increased primary care involvement identified by this study.

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Section: Introductionmentioning

confidence: 99%

Views of health professionals on the role of primary care in the follow-up of men with prostate cancer

et al. 2011

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“…Directly, findings suggesting that men can be particularly resistant to discussing the emotional elements of their cancer experience (Moynihan, 1998;O'Brien et al, 2011;Ridge, Emslie, & White, 2011) align with research describing men's resistance to psychosocial programs as, in part, linked to concerns with appearing vulnerable and anticipated discomfort in discussing their illness experience within a group setting (Voerman et al, 2007;Weber, Roberts, & McDougall, 2000).…”

Section: Discussionmentioning

confidence: 75%

Psychosocial Oncology Supports for Men

2014

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Although men's cancer experiences have received limited attention within the field of psychosocial oncology, increasing attention is being devoted to the development and evaluation of men-centered programs. This scoping review describes this emergent body of literature, detailing the focus, participation, and impact of interventions designed to help men with cancer build illness-specific knowledge, adapt to illness, manage side effects, distress, and uncertainty, sustain relationships, and more. Striving to build on existing knowledge, research gaps and opportunities are discussed, including a need for stronger methodologies, more tailored and targeted supports, attention to the experiences of men with nonprostate cancers, and the explicit integration of gender analyses in the research process.

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“…Uit onderzoek blijkt dat er juist meer behoefte is aan intimiteit en bevestiging van aantrekkingskracht en (fysieke) aantrekkelijkheid 7 . Oudere mannen initiëren vaak niet zelf het gesprek over deze veranderingen en problemen op het gebied van intimiteit en seksualiteit vanwege gevoelens van schaamte 9 . Professionele ondersteuning om met deze veranderingen en problemen om te gaan ontbreekt vaak 7 .…”

Section: Vraagstellingunclassified

“…Daarnaast wordt geïnventariseerd welke knelpunten worden ervaren en wat de wensen zijn van de mannen met prostaatkanker en hun partners betreffende de communicatie met gezondheidszorgprofessionals. 9 …”

Section: Vraagstellingunclassified

“…Gezien de (vele) bijwerkingen van de behandeling en impact op vrijwel alle bevraagde domeinen vinden de donateurs en hun partners goede voorlichting essentieel, net als bij veel andere aspecten die aan bod komen in de spreekkamer. Uit eerder onderzoek blijkt dat mannen met prostaatkanker het lastig vinden om de informatie die de arts geeft bij de diagnose te begrijpen en te onthouden, waarbij het risico is dat mannen slecht voorbereid zijn op de mogelijke (negatieve) bijwerkingen van de behandeling 9,10,12 . Het huidige onderzoek laat zien dat een goede voorlichting door artsen en verpleegkundigen lijkt bij te dragen aan het verkleinen van de impact van prostaatkanker op intimiteit, seksualiteit, lichamelijke gesteldheid en kwaliteit van leven.…”

Section: Communicatie Binnen De Gezondheidszorgunclassified

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