I Want to Play: Children With Cerebral Palsy Talk About Their Experiences on Barriers and Facilitators to Participation in Leisure Activities

Longo, Elson; Regalado, Isabelly Cristina Rodrigues; Galvão, Elida Rayane Viana Pinheiro; Ferreira, Haryelle Nárima Confessor; Badía, Marta; Baz, Begoña Orgaz

doi:10.1097/pep.0000000000000719

Cited by 18 publications

(28 citation statements)

References 56 publications

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“…Both groups reported control of voluntary movements, involuntary reactions and muscle weakness as factors that affected participation in leisure activities. This was also observed in a recent study that interviewed children with CP ( 16 ), where motor function was related to the participation in leisure activities of children with CP in Spain.…”

Section: Discussionsupporting

confidence: 73%

“…The Body Function and Structure categories were cited less frequently by the parents and children and were related to the upper and lower structures and head region. Other studies that also used the ICF to assess participation also obtained similar findings based on the discourses of parents, that is, function and structure impacting the participation of children in leisure activities ( 16 , 23 ). Both groups reported control of voluntary movements, involuntary reactions and muscle weakness as factors that affected participation in leisure activities.…”

Section: Discussionmentioning

confidence: 55%

“…According to Heah et al ( 30 ), the family has a positive influence on children’s participation in leisure activities, and the involvement of parents in playing, physical support, supervision and protection offered by the family environment encourages children`s participation in leisure activities ( 13 ). Thus, when they are apart from their parents, their friends, colleagues and neighbours may have the same emotional importance for the involvement of children with disabilities in school and community activities, acting as support for socialization and social inclusion ( 16 , 31 ).…”

Section: Discussionmentioning

confidence: 99%

“…Most studies on the participation of children with disabilities are based on caregivers’ perceptions ( 14 , 15 ), but there is increasing interest in listening to the voices of children with disabilities themselves. Including these voices in research highlights the first-hand perspective of those who participate in leisure activities ( 16 ). The comparison between a child’s and caregiver’s perceptions may underscore different viewpoints ( 17 ) and better illustrate the situation.…”

mentioning

confidence: 99%

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Participation in leisure activities from the perception of children with disabilities and their families in Brazil

Marques¹,

Regalado²,

Galvão³

et al. 2021

J Rehabil Med

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The aim of this study was to understand the perception of children with disabilities and their families regarding factors that interfere with participation in leisure activities in a developing country. This qualitative study included 14 focus groups, involving a total of 80 participants (40 children with disabilities and 40 family members). Discussions were recorded and transcribed. Coding was based on the International Classification ofFunctioning Disability and Health (ICF), following linking rules. For children, the main barriers to participation in leisure activities were the attitudes of acquaintances, friends or strangers. Lack of access to products and technology for personal mobility were also important obstacles. For them, support from immediate family was the both a facilitator and barrier. Other barriers identified by family members were open-space planning services, and assets. As facilitators, the attitudes and support of immediate family also were reported by this group. In conclusion, for children, the attitude of peers was the main barrier to participation in leisure activities, while, for family members, the main barrier was the attitude of strangers. Objective: To understand the perception of children with disabilities and their families regarding factors that interfere with participation in leisure activities in Brazil. Methods: This qualitative study included 14 focus groups, involving a total of 80 participants (40 child ren with disabilities and 40 family members). Discus sions were recorded and transcribed. Coding was ba sed on the International Classification of Functioning Disability and Health, following linking rules. Results: A total of 80 individuals participated in the study. For parents and children the most-cited bar riers to participation in leisure activities were relat ed to environmental factors. For children, the main barriers were the attitudes of their nuclear family, acquaintances, and friends. Access to products and technology for personal mobility were also important obstacles. For them, support from immediate family was both a facilitator and barrier. Other barriers identified by family members were open-space plan ning services and assets. As facilitators, the atti tudes and support of people in positions of authority also were reported by this group. Conclusion:For parents and children, most disabling barriers were related to environmental factors, such as access to products and technology, support, and attitudes. Some differences in perception were obser ved between comments from children and parents; for example, regarding barriers due to immediate fa mily. Parents showed greater awareness of barriers and facilitators to participation in leisure activities.

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Section: Discussionsupporting

confidence: 73%

Section: Discussionmentioning

confidence: 55%

Section: Discussionmentioning

confidence: 99%

mentioning

confidence: 99%

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Participation in leisure activities from the perception of children with disabilities and their families in Brazil

Marques¹,

Regalado²,

Galvão³

et al. 2021

J Rehabil Med

View full text Add to dashboard Cite

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“…Cerebral palsy (CP) is caused by a non-progressive brain lesion that occurs before, during, or soon after birth, leading to abnormal posture and muscle tone, motor limitations, and intellectual disabilities (Case-Smith & O’Brien, 2014; Rassafiani & Sahaf, 2011). Children with CP experience a wide set of cognitive and motor dysfunctions, which can impact on their participation in important life activities, including school participation (Tavares Netto et al, 2020), leisure and play (Ghaffari et al, 2020; Longo et al, 2020), activities of daily living (Østensjø et al, 2004), social interaction (Tan et al, 2020), and self-care (Öhrvall et al, 2010). Based on child and parent reports, the main priorities for children and their families are to enhance children's functional performance and to get sufficient mobility and ambulation, dressing, feeding, and other self-care activities (Jalili et al, 2019).…”

Section: Introductionmentioning

confidence: 99%

Cognitive Orientation to Daily Occupational Performance (CO-OP) in Children with Cerebral Palsy: A Systematic Review with Meta-analysis

Roostaei¹,

Dalvand²,

Rassafiani³

et al. 2022

Can J Occup Ther

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Background: Cognitive orientation to daily occupational performance (CO-OP) is a client-centered treatment approach that was developed in the 1990s by occupational therapists. Purpose: Exploring current evidence about the effectiveness of CO-OP on children with cerebral palsy (CP). Method: Major electronic databases were searched. A narrative synthesis of current literature and meta-analyses on randomized control trials (RCTs) were conducted on changes in occupational performance. Findings: Seven studies with 103 participants were included. Four studies were RCTs with moderate levels of evidence, and three studies had single-subject designs. Although beneficial effects of CO-OP on goal achievement and transferring learned skills were reported, meta-analyses showed that CO-OP had no significant effect on the performance (WMD = 1.52, 95% CI = −1.58 to 4.63, P = .33) and satisfaction domains (WMD = 1.71, 95% CI = −1.14 to 4.57, P = .24) of Canadian Occupational Performance Measure scores compared to alternative interventions. Implications: CO-OP improves occupational performance but not more than alternative interventions. Results are inconclusive due to small sample sizes and heterogeneity of alternative interventions and participants. Therefore, research with a larger number of participants with sound RCT methods is needed.

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What are the barriers and facilitators to participation of people with Down syndrome? A scoping review

Souto,

de Sousa,

Ferreira

et al. 2024

Develop Med Child Neuro

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AimTo determine the barriers and facilitators of active community participation of children, adolescents, and adults with Down syndrome.MethodSearches were completed in five electronic databases to identify original studies about participation of children, adolescents (ages < 18 years), and adults (ages 18–59 years) with Down syndrome. Barriers and facilitators to participation were categorized into four factors: personal, social, environmental, and policy and programme. Findings were analysed and validated by a young adult with Down syndrome and a family member, using the public and patient involvement strategy.ResultsFourteen studies were included: eight with children and adolescents and six with adults. Of the 14 studies, 10 were qualitative and four quantitative. Most studies (n = 9) investigated participation in physical activities, while only a few examined participation in community/social activities (n = 3), daily activities (n = 2), and leisure activities (n = 1). The most commonly cited barriers and facilitators were the availability of programmes and specialized professionals, transportation, as well as attitudes and behaviours. Physical and psychological characteristics of people with Down syndrome and facilities were also frequently mentioned as barriers. On the other hand, the desire to stay active and personal interest in the activity were among the most frequently reported facilitators.InterpretationThe participation of people with Down syndrome is mainly influenced by physical or psychological factors, the support and attitudes of parents/caregivers, and the availability of specialized programmes. Given the scarcity of research investigating the participation of people with Down syndrome in community activities, daily activities, and leisure, especially in adults, more studies are still needed.

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I Want to Play: Children With Cerebral Palsy Talk About Their Experiences on Barriers and Facilitators to Participation in Leisure Activities

Cited by 18 publications

References 56 publications

Participation in leisure activities from the perception of children with disabilities and their families in Brazil

Participation in leisure activities from the perception of children with disabilities and their families in Brazil

Cognitive Orientation to Daily Occupational Performance (CO-OP) in Children with Cerebral Palsy: A Systematic Review with Meta-analysis

What are the barriers and facilitators to participation of people with Down syndrome? A scoping review

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