<i>‘No one knows like we do’</i> — the narratives of mental health service users trained as researchers

Palmer, David; Williams, Lucy; White, Sue; Chenga, Charity; Calabria, Verusca; Branch, Dawn; Arundal, Sue; Storer, Linda; Ash, Chris; Cuthill, Claire; Bezuayehu, Haile; Hatzidimitriadou, Eleni

doi:10.1108/17465729200900024

Cited by 10 publications

(47 citation statements)

References 11 publications

(12 reference statements)

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“…, ; Palmer et al . ). Some studies reported that collaborative research required training and both individual support and group support had a valuable role (Callander et al .…”

Section: Resultsmentioning

confidence: 97%

“…; Hutchinson & Lovell ; Palmer et al . ). User‐researchers considered it important that training contained both formal and informal networking (Moltu et al .…”

Section: Resultsmentioning

confidence: 97%

“…Morrell‐Bellai and Boydell () and Palmer et al . () found a need for strategies to reduce or manage user‐researchers’ level of anxiety. They needed emotional support to be able to handle personal difficulties.…”

Section: Resultsmentioning

confidence: 99%

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Service user's actual involvement in mental health research practices: A scoping review

Sangill

Buus

Hybholt

et al. 2019

Int J Mental Health Nurs

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Service user involvement in mental health research is on the international political agenda, for example mirrored by an emphasis on user involvement in funding of research. The idea is that service users contribute with their lived experiences of mental distress to the research process and thereby heighten the quality and relevance of the research. The purpose of this scoping review was to identify and evaluate empirical research of how mental health service users actually partake in collaborative research processes and to summarize this research in dialogue with mental health user-researchers. The review included 32 studies. Main findings indicated that actual involvement of service user-researchers in research processes encompassed a complex set of precarious negotiation practices, where academics and service user-researchers were positioned and positioned themselves in alternative ways. The review accounts for how mental health service users were involved in collaborative research processes. The extracted themes concerned: (i) Expectations of research processes, (ii) Contribution to research processes, and (iii) Training and learning from research processes. The study reveals that collaborative research in mental health requires changes to traditional research practices to create and support genuine collaborative partnerships and thereby avoid tokenism and power inequalities.

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“…, ; Palmer et al . ). Some studies reported that collaborative research required training and both individual support and group support had a valuable role (Callander et al .…”

Section: Resultsmentioning

confidence: 97%

“…; Hutchinson & Lovell ; Palmer et al . ). User‐researchers considered it important that training contained both formal and informal networking (Moltu et al .…”

Section: Resultsmentioning

confidence: 97%

See 1 more Smart Citation

Service user's actual involvement in mental health research practices: A scoping review

Sangill

Buus

Hybholt

et al. 2019

Int J Mental Health Nurs

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“…En effet, les services communautaires jouent un rôle de soutien essentiel dans le rétablissement des personnes atteintes d'un trouble mental (59). Le médecin compétent dans son rôle de promoteur de santé doit donc être capable de « repérer les groupes marginalisés au sein des populations servies et y répondre de la façon appropriée » (60), notamment en pouvant les orienter vers des ressources dans la communauté qu'il peut ainsi mieux connaître grâce à l'éclairage particulier et unique du patient partenaire (61). Avec le temps, l'implication des personnes utilisatrices de services à titre de partenaire de recherche, de soin ou d'enseignement conditionne des relations plus égalitaires (62) et moins paternalistes (63) entre les professionnels et les usagers.…”

Section: Resultsunclassified

Sur la contribution des personnes utilisatrices de services de santé mentale en tant que partenaires d’enseignement en psychiatrie

et al. 2013

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Le Collège royal des médecins et chirurgiens du Canada prévoit qu'au terme de leur formation, les résidents en psychiatrie pourront agir efficacement en tant que promoteurs de la santé. Ce commentaire présente une analyse d'entrevues réalisées dans le cadre d'un perfectionnement professionnel auprès d'experts mondialement reconnus du rétablissement en santé mentale. À la lumière de la Charte d'Ottawa pour la promotion de la santé, il en ressort que des personnes utilisatrices de services de santé mentale peuvent être de précieux partenaires d'enseignement à la fois en matière de promotion de la santé et de rétablissement. Le recours à des patients partenaires d'enseignement en psychiatrie peut également représenter une stratégie de lutte à la stigmatisation et aux préjugés en favorisant davantage de réciprocité entre les professionnels et les personnes traitées. (Global Health Promotion, 2013; 20 (3): 66-75)

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“…Indeed the use of the university as a base for the work as found by others (Palmer et al, 2009) can be seen to have added to the co-researchers' confidence and sense of self worth as it became apparent that attending meetings at the university was itself experienced as a valuable part of the overall experience with an observable increase in skills and confidence.…”

Section: Place and Spacementioning

confidence: 97%

Who calls the tune Participation and partnership in research

Karban¹,

Paley²,

Willcock³

2011

Social Work and Social Sciences Review

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This paper explores issues of partnership and participation in research and evaluation, drawing on the experiences of evaluating a move from hostel accommodation to independent supported living for people with mental health difficulties or learning disabilities. The service change project involved a partnership between a local authority and a housing association with over 300 people moving into their own tenancies in newly-built flats and bungalows. The accompanying evaluation was designed on a model of service user participation and action research and was specifically concerned to explore the impact of the changes on people's actual or perceived social inclusion into local communities. Ten service user and carer researchers, some of whom were directly involved in the move from hostel to independent living, were recruited and worked with 'professional' researchers to examine both the process and the outcomes of the move.The work will be viewed through the insights offered by feminist, transformative and participatory approaches to research. The 'positioning' of the researcher in relation to boundaries and the construction of the 'other' will be considered, emphasising an approach grounded in reflexivity and an acknowledgement of the complex ethical issues involved.A key feature of this study has been the negotiation involved between a complex change project and a participatory evaluation design. Learning points from the work so far will also be considered in terms of their wider application in future evaluations of complex change projects that involve multiple stakeholders. IntroductionThis evaluation based on a model of user involvement and participatory research involved three organisations -a local authority adult social care department, a housing association and a university. An action research component ensured that learning from the evaluation was fed back into practice throughout the life of the study.The study arose from the closure of local authority hostels for people with mental health difficulties or learning disabilities and their replacement by core and cluster accommodation in private tenancies, funded by a private finance initiative. Continuing support to service users is provided by housing support workers employed by the local authority, many of whom previously worked as residential care staff. Close working relationships between the housing association and the adult social care department were maintained to ensure the smooth handover of the new accommodation. The primary aim of the evaluation was to consider the extent to which changes in accommodation and support improved social inclusion in local communities.The original intention to evaluate the service transition involved meetings with interested parties including a local university and it was agreed that an external evaluation would be most effective in providing an independent perspective on the project. A successful bid for Who calls the tune?Page 2 funding from the Big Lottery was led by the housing association and a managemen...

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‘No one knows like we do’ — the narratives of mental health service users trained as researchers

Cited by 10 publications

References 11 publications

Service user's actual involvement in mental health research practices: A scoping review

Service user's actual involvement in mental health research practices: A scoping review

Sur la contribution des personnes utilisatrices de services de santé mentale en tant que partenaires d’enseignement en psychiatrie

Who calls the tune Participation and partnership in research

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