I'm Here, Too: Being an Adolescent Sibling of a Pediatric Cancer Patient in Turkey

Kaatsız, Melike Ayça Ay; Öz, Fatma

doi:10.1016/j.pedn.2019.10.003

Cited by 10 publications

(59 citation statements)

References 36 publications

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“…All of the qualitative studies in this review included at least one theme in the results that reflected some change in social support (e.g., the availability of parents, changes in friendships, reduced instrumental support, or lack of information regarding the diagnosed child). Of these, 10 aimed to understand the experience of cancer 13,26,41,42,53–58 . Results of these studies demonstrate many common challenges for siblings, including changes in social support.…”

Section: Resultsmentioning

confidence: 99%

“…Siblings indicated receiving less instrumental support than before the cancer diagnosis (e.g., reduced support in getting to activities and doing schoolwork), as well having to step up and provide more instrumental support for the family (e.g., taking on more responsibilities such as babysitting or chores) 13,26,42,53,55,58 . Siblings experienced low levels of emotional support resulting in emotional strain related to fear, jealousy, and worry about parents and their sibling with cancer 13,26,41,54,56,58 . This was often compounded by receiving little informational support about their sibling's diagnosis and treatment and becoming particularly troublesome when confronted by questions from peers 26,53,57 .…”

Section: Resultsmentioning

confidence: 99%

“…Of these, 10 aimed to understand the experience of cancer. 13,26,41,42,[53][54][55][56][57][58] Results of these studies demonstrate many common challenges for siblings, including changes in social support.…”

Section: The Experiences and Perceived Needs Of Siblingsmentioning

confidence: 99%

“…13,26,42,53,55,58 Siblings experienced low levels of emotional support resulting in emotional strain related to fear, jealousy, and worry about parents and their sibling with cancer. 13,26,41,54,56,58 This was often compounded by receiving little informational support about their sibling's diagnosis and treatment and becoming particularly troublesome when confronted by questions from peers. 26,53,57 Siblings noted less companionship and time with friends.…”

Section: The Experiences and Perceived Needs Of Siblingsmentioning

confidence: 99%

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Social support and siblings of children with cancer: A scoping review

et al. 2021

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Objective Social support is essential in healthy adjustment to life stressors. This scoping review examines how social support has been conceptualized, operationalized, and studied among siblings of children with cancer. Gaps in the current literature are identified, and future research directions are proposed. Methods A rigorous systematic scoping review framework guided our process. Medline, Embase, CINAHL, PsycINFO, and Scopus were searched for literature regarding social support and siblings of children with cancer. After screening, 57 articles were identified (n = 26 quantitative, n = 21 qualitative, and n = 10 multi‐method) and their content extracted for summarization. Results The majority of studies (n = 43, 75.4%) were descriptive; 14 (24.6%) included interventions, and of those, four were experimental. Few studies used a clearly defined theoretical framework, or validated tools to measure social support. Studies explored perceived social support needs of siblings, the provision and availability of formal support through interventions and related outcomes, and informal family social supports. A variety of support types were found to be helpful to siblings in different ways. Conclusions Social support is a prevalent topic in the literature regarding siblings of children with cancer. It is unclear what types of support are most important due to how it has been conceptualized and measured. Despite some methodological limitations, greater levels of social support have been linked to better adaptation among siblings of children with cancer. Future work is warranted to identify the most beneficial types of support for siblings based on their age, developmental stage, and the cancer trajectory.

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Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

Section: The Experiences and Perceived Needs Of Siblingsmentioning

confidence: 99%

Section: The Experiences and Perceived Needs Of Siblingsmentioning

confidence: 99%

See 2 more Smart Citations

Social support and siblings of children with cancer: A scoping review

et al. 2021

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“…The mean quality score of the studies included was 66%. Half of the articles included were of high quality, 40–54 13 of moderate quality, 55–67 and two of low quality 68,69 . Quality was considered moderate or low when there were issues regarding sampling and or ethics.…”

Section: Resultsmentioning

confidence: 99%

Are there young carers in oncology? A systematic review

et al. 2021

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Objective This systematic review aims to investigate the support children provide in the case of a relative's cancer. Methods Searches were performed on four electronic databases (Embase, PsycINFO, PubMed and ScienceDirect) to identify studies that report on the support provided by children to a relative diagnosed with cancer. Two researchers independently evaluated the eligibility of the studies and cross‐checked them for accuracy. The Crowe Critical Appraisal Tool (CCAT) was used to assess the quality of the studies included. Results Out of the 10948 articles screened, 30 were included in this review. Results highlighted that cancer provokes changes in families, such as shifts in roles and increased responsibilities for the youth. Children often provided significant support to their sick relative and family members, including practical, emotional, and medical support such as household duties, medical assistance, companionship, and distraction. However, they were designated as young carers in only one study. The support provided was associated with negative effects such as stress and fatigue, and with positive effects such as increased empathy and independence. Children wished to support their family but also named several needs, such as time for themselves and the opportunity to enjoy their childhood. Conclusion The results of this systematic review highlight the importance of taking into account the support provided by young people facing the cancer of a relative and designating them as young carers. Much remains to be accomplished to officially recognize their role and to support them properly.

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Consensus on the items for early identification of unmet psychosocial needs of siblings of children with cancer and blood disease: A modified Delphi method

Kaneko,

Niinomi,

Nonoyama

et al. 2023

Nursing Open

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AimTo reach a consensus on question items for early identification of unmet psychosocial needs of school‐aged siblings of children with cancer and blood disease.DesignModified Delphi method.MethodsTwenty‐three studies were reviewed to extract question items, which were classified into seven categories. A total of 39 question items were selected for this study. The selected question items were carefully considered using the modified Delphi method. The participants were 28 medical staff from a childhood cancer hub hospital and 20 sibling support group staff members. The first round consisted of a questionnaire (n = 48); the second, a focus group interview (n = 8) and the third, another questionnaire (n = 8). The first and third rounds used a 5‐point Likert scale. This survey was conducted from July to October 2021.ResultsA total of 38, 26, and 24 question items were included in the first, second, and third rounds respectively. A total of 24 question items were extracted using the modified Delphi method to identify siblings' unmet psychosocial needs: relationship with family members, 3; daily life issues, 4; stress, 6; emotions, 3; information, 3; relationships with medical staff, 1 and social and medical resources, 4. Seven categories and 24 question items were confirmed as items for identifying the unmet psychosocial needs of school‐aged siblings of children with cancer and blood disease.

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I'm Here, Too: Being an Adolescent Sibling of a Pediatric Cancer Patient in Turkey

Cited by 10 publications

References 36 publications

Social support and siblings of children with cancer: A scoping review

Social support and siblings of children with cancer: A scoping review

Are there young carers in oncology? A systematic review

Consensus on the items for early identification of unmet psychosocial needs of siblings of children with cancer and blood disease: A modified Delphi method

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