“I’m aging faster”: social participation as experienced by individuals aging with a traumatic brain injury

Turcotte, Samuel; Simard, Pascale; Piquer, Olivier; Lamontagne, Marie-Ève

doi:10.1080/02699052.2022.2109735

Cited by 3 publications

(5 citation statements)

References 38 publications

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“…In this review, participants’ physical disabilities may result from a health condition present at birth (eg, spina bifida, cerebral palsy); a health condition (eg, multiple sclerosis); or a lesion (eg, brain injury, spinal cord injury) acquired in childhood or in young adulthood. The threshold of 55 years and over was chosen to align with age thresholds previously observed in studies 6 on older adults with an early-onset physical disability. This choice of age criterion also reflects that individuals with an early-onset physical disability are likely to experience premature aging 24…”

Section: Inclusion Criteriamentioning

confidence: 99%

“…As an example of this, older adults with a physical disability acquired earlier in life face additional medical problems, such as premature apparition of comorbidities or premature decline in health. 3,6 The intersection of aging and living with a physical disability also creates challenges for communities (eg, an increase in health costs, a need to adapt public policies). 2,4,7,8 Aging with an early-onset physical disability is also associated with reduced social participation.…”

Section: Introductionmentioning

confidence: 99%

“…Molton and Yorkston 5 found that the life trajectories of older adults with an early-onset physical disability differ from the life trajectories of people who acquired a disability at a later age. As an example of this, older adults with a physical disability acquired earlier in life face additional medical problems, such as premature apparition of comorbidities or premature decline in health 3,6 . The intersection of aging and living with a physical disability also creates challenges for communities (eg, an increase in health costs, a need to adapt public policies) 2,4,7,8 .…”

Section: Introductionmentioning

confidence: 99%

“…Knowledge about how social participation is experienced by this population remains sparse, 4,7 but primary studies on this topic have been published. For example, a recent qualitative study of the experience of social participation of older adults with the sequelae of traumatic brain injury suggests a list of facilitators (eg, feeling valued when doing an activity, having fun while doing the activity) and barriers (eg, doing activities with people with unequal levels of disability, negotiating winter conditions) to social participation 6 . Mars et al 21 studied social participation in older adults with chronic physical illness.…”

Section: Introductionmentioning

confidence: 99%

“…For example, a recent qualitative study of the experience of social participation of older adults with the sequelae of traumatic brain injury suggests a list of facilitators (eg, feeling valued when doing an activity, having fun while doing the activity) and barriers (eg, doing activities with people with unequal levels of disability, negotiating winter conditions) to social participation. 6 Mars et al 21 studied social participation in older adults with chronic physical illness. In their article, social participation was lived, described as a positive experience, and was structured around 4 domains (social contacts and social activities; work and informal support; cultural activities and public events; and politics and media).…”

Section: Introductionmentioning

confidence: 99%

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Social participation experiences of older adults with an early-onset physical disability: a systematic review protocol

Turcotte,

Simard,

Levasseur

et al. 2023

JBI Evidence Synthesis

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Objective: The objective of this review is to assess and synthesize the available qualitative evidence on the experiences of social participation of older adults with an early-onset physical disability. Introduction: Understanding the experiences of social participation among older adults with a physical disability acquired earlier in life can guide the development of interventions and policies. It will also help with fostering meaningful community participation and aid in improving the quality of their social participation. Inclusion Criteria: This review will consider primary studies that explore the experiences of social participation of older adults with an early-onset physical disability. The review will focus on qualitative data, including methods such as phenomenology, grounded theory, ethnography, action research, and feminist research. Studies in French or English will be considered for inclusion, and there will be no limitation on publication dates. Methods: A keyword search strategy will be carried out in MEDLINE (Ovid), PsycINFO (Ovid), CINAHL (EBSCO), Web of Science, and The Cochrane Library. ProQuest Dissertations and Theses (ProQuest) will be searched for unpublished articles. Two independent reviewers will perform the screening and inclusion process, assess the quality of the evidence, and complete data extraction. The JBI approach to critical appraisal, study selection, data extraction, and data synthesis (meta-aggregation) will be used. The ConQual approach will be used to establish confidence in the synthesized findings. Review Registration Number: PROSPERO CRD42022371027

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Section: Inclusion Criteriamentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

See 3 more Smart Citations

Social participation experiences of older adults with an early-onset physical disability: a systematic review protocol

Turcotte,

Simard,

Levasseur

et al. 2023

JBI Evidence Synthesis

Self Cite

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Implementation of a strengths-based approach in a traumatic brain injury community service; perspectives of community workers

Simard,

Turcotte,

Vallée

et al. 2024

Brain I.

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Background The strengths-based approach (SBA) was initially developed for people living with mental health issues but may represent a promising support option for community participation of people living with a traumatic brain injury (TBI). A community-based organisation working with people living with TBI is in the process of adapting this approach to implement it in their organisation. No studies explored an SBA implementation with this population. This study explores the implementation of key components of the SBA in a community-based organisation dedicated to people living with TBI. Methods A qualitative descriptive design using semi-structured interviews (n = 10) with community workers, before and during implementation, was used. Transcripts were analysed inductively and deductively. Deductive coding was informed by the SBA fidelity scale. Results Group supervision and mobilisation of personal strengths are key SBA components that were reported as being integrated within practice. These changes led to improved team communication and cohesiveness in and across services, more structured interventions, and greater engagement of clients. No changes were reported regarding the mobilisation of environmental strengths and the provision of individual supervision. Conclusion The implementation of the SBA had positive impacts on the community-based organisation. This suggests that it is valuable to implement an adaptation of the SBA for people living with TBI.

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“I’m Worried They Will Come Back to Haunt Me”: Examining How Retired National Football League Players Make Sense of Concussion Risks

McGlynn,

Cassilo

2023

Communication & Sport

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This qualitative study examines how former National Football League (NFL) players retrospectively make sense of concussion risks post-retirement. Semi-structured interviews were conducted with retired NFL players ( N = 10) who sustained at least one official concussion during their professional career. Guided by sensemaking theory and reflexive thematic analysis, themes were generated to characterize player attitudes toward concussion risks. Themes identified include concussions represent an invisible threat, concussions create more concern than other injuries, and head injuries change player outlooks on career longevity. Player strategies to mitigate concussion risks included avoid thinking about the risks by focusing on the moment or on the financial rewards, rely on teammates to look out for each other’s health, and recognize the fine line between valor and discretion. The findings inform risk communication efforts geared toward reducing head injuries in football, as players must balance competing goals of elite performance and sustaining their football career versus prioritizing their long-term health.

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“I’m aging faster”: social participation as experienced by individuals aging with a traumatic brain injury

Cited by 3 publications

References 38 publications

Social participation experiences of older adults with an early-onset physical disability: a systematic review protocol

Social participation experiences of older adults with an early-onset physical disability: a systematic review protocol

Implementation of a strengths-based approach in a traumatic brain injury community service; perspectives of community workers

“I’m Worried They Will Come Back to Haunt Me”: Examining How Retired National Football League Players Make Sense of Concussion Risks

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