“I have been refused to be treated by three dentists”: Barriers to patient care

Abstract

Background:Factor X deficiency (known as; Stuart-Prower factor deficiency or F10

Access to dental care for patients with inherited bleeding and hemoglobin disorders

“…However, there are a very few publications related to access to dental care for these patients. 1,3,9,19 Public policy makers and health service providers must prioritize oral health to improve general health and quality of life of people with these conditions. Therefore, the aim of this study was to identify the main barriers to access dental care for this group of patients.…”

People with congenital bleeding disorders perspectives on why dentists refused to treat them: An exploratory qualitative study using a card sorting technique

“…7 Additionally, in the same qualitative case report, the patient himself reported that he tried sometimes to avoid brushing his teeth to prevent sudden, uncontrolled gingival bleeding. 7 Fear from I G U R E 2 Participants' perceived barriers based on the accessibility model as defined by Penchansky and Thomas 19 uncontrolled gingival bleeding could increase people with CBDs anxiety level, hence it reduces their perceived confidence level toward their dentists' knowledge and skills, as shown in this study's results. Thereby, it seems that fear from uncontrolled gingival bleeding worsens the scenario and adds a further explanation about why people with CBDs might be refused to be treated by dentists, as this impacts negatively on patient-dentists relationship.…”

“…Similarly, adult participants reported their fear from uncontrolled gingival is also the reason behind why they could not brush their teeth sometimes . A qualitative case report showed that a male patient (31 years old) with CBD (factor X deficiency) refused to be treated by three dentists who were worried about oral bleeding 7 . Additionally, in the same qualitative case report, the patient himself reported that he tried sometimes to avoid brushing his teeth to prevent sudden, uncontrolled gingival bleeding 7 .…”

“…For example, dentists' perceived anxiety to treat people with CBDs lead to the development of inequalities in dental treatment for people with CBDs; hence this impacted their quality of life (QoL) negatively and increased their oral health needs. 7 Another difficulties that have been reported in accessing dental services for people with CBDs are bloodborne diseases that people with CBDs might have due to infected blood transfusion (i.e., HIV and hepatitis), 8 and poor knowledge of hemophilia treaters of the current guidelines regarding dental management of people with CBDs and their ability to risk assess dental procedures. 9 All these reported barriers concluded that people with CBDs are in need to be included in preventive services, early treatment of dental disease, and to have an equal dental care.…”

“…Several reasons reported about poor accessibility of people with CBDs to dental services, yet not known why people with CBDs have been refused to be treated by their dentists 7 . As the number of people with CBDs is expected to be higher than the reported numbers, 11 this exploratory qualitative study aimed to assess people with CBD perspectives on why dentists refused to treat them, why people with CBD could not brush their teeth sometimes , and lastly to assess people with CBD accessibility to dental services.…”