“I Had to Do It All Alone”: Hispanic Perspectives on Navigating Breast Cancer Treatment

Abstract

Cancer patients are at a high risk for COVID infection and its corresponding impacts on treatment delay, social isolation, and psychological distress. Hispanic breast cancer patients may be more vulnerable due to a lack of resources and language barriers, widening disparities in cancer care. This qualitative study explored the challenges and obstacles to cancer care during the COVID pandemic among 27 Hispanic females from a United States–Mexico border region. Data were collected via individual in-depth interviews and analyzed using thematic analysis. The majority of the participants were interviewed in Spanish. More than half (55.6%, n = 15) were diagnosed with breast cancer within the prior year to the interview. One-third of the participants (33.3%, n = 9) reported that COVID somewhat to greatly impacted their cancer care. Study findings revealed potential barriers and challenges for cancer care at multiple levels (e.g., medical, psychosocial, financial level) during the COVID pandemic. Five major themes reported include: (1) delays in testing and access to care; (2) fear of COVID infection; (3) social isolation and reduced social support; (4) challenges in navigating treatments alone; and (5) financial hardships. Our findings highlight the importance for health care practitioners to understand various challenges encountered by underserved Hispanic breast cancer patients due to COVID. Screening for psychological distress and exploring approaches to expand social support to address these challenges are discussed.

Psychosocial support among adults living with metastatic breast cancer: Perspectives from providers across four New York‐Presbyterian hospitals

“…3 Prior studies that sought to understand barriers to psychosocial care focused primarily on provision of resources to patients with early-stage breast cancer. 4,5 As part of a larger study assessing the psychosocial needs for adults with mBC, we sought to capture the perspectives of providers regarding barriers and facilitators to psychosocial care for this patient population.…”