“I didn’t actually know there was such a thing as rehab”: survivor, family, and clinician perceptions of rehabilitation following treatment for head and neck cancer

McEwen, Sara; Rodríguez, Ana María; Martino, Rosemary; Poon, Ian; Dunphy, Colleen; Rios, Jorge; Ringash, Jolie

doi:10.1007/s00520-015-3021-1

Cited by 37 publications

(38 citation statements)

References 10 publications

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“…They could not see the value of OT/PT, even in light of GA‐defined deficits. These barriers reflect real‐world issues such as valid concerns of patients about cancer care cost, lack of awareness of the potential value of rehabilitation, and poor integration of rehabilitation services within cancer care . A better understanding of how to get past the first barrier to participation in rehabilitation, willingness to consider OT/PT, is an important consideration for future efforts to study and/or build an OT/PT program for older patients.…”

Section: Discussionmentioning

confidence: 99%

“…These barriers reflect real-world issues such as valid concerns of patients about cancer care cost, 39 lack of awareness of the potential value of rehabilitation, and poor integration of rehabilitation services within cancer care. 40,41 A better understanding of how to get past the first barrier to participation in rehabilitation, willingness to consider OT/PT, is an important consideration for future efforts to study and/or build an OT/PT program for older patients. And then, close to a third of patients were lost to follow-up, some for unavoidable reasons such as death or illness; others simply could not be contacted despite repeated labor-intensive efforts to reach them.…”

Section: Discussionmentioning

confidence: 99%

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Older Adults with Cancer: A Randomized Controlled Trial of Occupational and Physical Therapy

Pergolotti

Deal

Williams

et al. 2019

J American Geriatrics Society

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OBJECTIVES The impact of occupational therapy (OT) and physical therapy (PT) on functional outcomes in older adults with cancer is unknown. DESIGN Two‐arm single‐institution randomized controlled trial of outpatient OT/PT. SETTING Comprehensive cancer center with two off‐site OT/PT clinics. PARTICIPANTS We recruited adults 65 years and older with a recent diagnosis or recurrence of cancer within 5 years, with at least one functional limitation as identified by a geriatric assessment. Participants were randomized to OT/PT or usual care. INTERVENTION Rehabilitation consisted of individualized OT and PT that addressed functional activities and strength/endurance needs. MEASUREMENTS Primary outcome was functional status as measured by the Nottingham Extended Activities of Daily Living scale. Secondary outcomes were Patient‐Reported Outcomes Measurement Information System‐Global Mental Health (GMH) and Global Physical Health (GPH), ability to participate in Social Roles (SR), physical function, and activity expectations and self‐efficacy (Possibilities for Activity Scale [PActS]). RESULTS Among those recruited (N = 63), only 45 patients (71%) were evaluable due to loss of follow‐up and/or nonreceipt of intervention. The median age was 74 years; 53% were female, and 91% were white. Overall, 30% patients had hematologic malignancies, 30% breast cancer, and 16% colorectal cancers. A total of 65% were in active treatment; 49% had stage 3 or 4 disease. At follow‐up, both OT/PT (P = .02) and usual care (P = .03) groups experienced a decline in functional status. PActS scores between groups (P = .04) was significantly improved in the intervention group. GMH and SR met criteria for minimally important clinical difference favoring the intervention, but not statistical significance. Several barriers were noted in the implementation of the intervention program: recruitment, concerns about cost, distance, scheduling, and limited treatment provided. CONCLUSION OT/PT may positively influence activity expectations and self‐efficacy. Future research needs to address significant barriers to implementation to increase use of OT/PT services and access to quality care. J Am Geriatr Soc 67:953–960, 2019.

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Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

Older Adults with Cancer: A Randomized Controlled Trial of Occupational and Physical Therapy

Pergolotti

Deal

Williams

et al. 2019

J American Geriatrics Society

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“…Nearly one‐third of eligible patients who declined to participate in this study had self‐identified as not having rehabilitation needs. Because our past research suggests that survivors of head and neck cancer may not be aware of the range of post‐head and neck cancer treatment issues potentially amenable to rehabilitation, the intention of the RPC is to screen all survivors in order to provide an opportunity for education in this regard. Future recruitment scripts should make this clear to potential participants.…”

Section: Discussionmentioning

confidence: 99%

Evaluation of a rehabilitation planning consult for survivors of head and neck cancer

et al. 2018

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“…Many are not provided with information regarding the short and long-term side effects of treatment and are unaware of the benefits of rehabilitation services. 115 Patients want to be empowered decision-makers in their care. 116 Understanding impairment risk and symptoms associated with early impairment identification activates patients toward better self-management and self-advocacy for care, 117 improves patient satisfaction and quality of life, and reduces anxiety.…”

Section: Interdisciplinary Clinical Integration Of Rehabilitationmentioning

confidence: 99%

Toward a National Initiative in Cancer Rehabilitation: Recommendations From a Subject Matter Expert Group

Stout

Silver

Raj

et al. 2016

Archives of Physical Medicine and Rehabilitation

149

116

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The health care delivery system in the United States is challenged to meet the needs of a growing population of cancer survivors. A pressing need is to optimize overall function and reduce disability in these individuals. Functional impairments and disability affect most patients during and after disease treatment. Rehabilitation health care providers can diagnose and treat patients' physical, psychological, and cognitive impairments in an effort to maintain or restore function, reduce symptom burden, maximize independence and improve quality of life in this medically complex population. However, few care delivery models integrate comprehensive cancer rehabilitation services into the oncology care continuum. The Rehabilitation Medicine Department of the Clinical Center at the National Institutes of Health with support from the National Cancer Institute and the National Center for Medical Rehabilitation Research convened a subject matter expert group to review current literature and practice patterns, identify opportunities and gaps regarding cancer rehabilitation and its support of oncology care, and make recommendations for future efforts that promote quality cancer rehabilitation care. The recommendations suggest stronger efforts toward integrating cancer rehabilitation care models into oncology care from the point of diagnosis, incorporating evidence-based rehabilitation clinical assessment tools, and including rehabilitation professionals in shared decision-making in order to provide comprehensive cancer care and maximize the functional capabilities of cancer

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“I didn’t actually know there was such a thing as rehab”: survivor, family, and clinician perceptions of rehabilitation following treatment for head and neck cancer

Cited by 37 publications

References 10 publications

Older Adults with Cancer: A Randomized Controlled Trial of Occupational and Physical Therapy

Older Adults with Cancer: A Randomized Controlled Trial of Occupational and Physical Therapy

Evaluation of a rehabilitation planning consult for survivors of head and neck cancer

Toward a National Initiative in Cancer Rehabilitation: Recommendations From a Subject Matter Expert Group

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