“I can fight it!”: A qualitative study of resilience in people with inflammatory bowel disease

Abstract

Objectives This study aimed to understand the resilience experiences in patients with inflammatory bowel disease (IBD) and develop the resilience framework for them. Methods Semistructured interviews were conducted with 15 patients with IBD who were purposefully recruited from the gastroenterology department of two hospitals in Jiangsu, China to gain diversity in the demographic and clinical characteristics. The data were analyzed using a directed content analysis approach based on the Kumpfer's resilience framework. Results The resilience framework for patients with IBD was formed from the analysis. This framework was composed of four themes, as follows: (1) complicated factors in the environment, (2) change the environment into a protective one, (3) personality traits, and (4) resilience-related coping. Conclusions The resilience framework for patients with IBD can effectively characterize the resilience experience of patients during the disease and assist healthcare professionals to understand how patients recover from the disease. More quantitative studies are needed to further explore the influencing factors of resilience and improve resilience in patient with inflammatory Bowel Disease.

Testing Kumpfer’s Resilience Model Among Adults With Serious Mental Illness

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Coping Behaviors of African Americans With Inflammatory Bowel Disease: A Focused Ethnography

“…The constant burden of stress that this population reported suggests that nurses should encourage patients to participate in at least one type of stress relieving intervention such as yoga, online counselling, or an online support group. Because this population reported family and religion as two positive influences in their lives (Table 2), nurses and health care providers could help mobilize both of these entities to help improve the quality of life for this population (Luo et al, 2019). Nurses could help educate the patient’s family about the disease process and inform them that their help is necessary to improve the patient’s outcome with this disease.…”

Understanding Gut Feelings: Transformations in Coping With Inflammatory Bowel Disease Among Young Adults

“…Qualitative researchers also highlight a range of IBD-specific coping behaviors, such as dietary changes, adjusting and establishing daily routines, pharmaceutical regimes, controlling the situation and surroundings, educating oneself about IBD, and sleeping or resting during flare-ups (Fletcher et al, 2008;Larsson et al, 2016;Skrastins & Fletcher, 2016;Sykes et al, 2015). This research approach has further elucidated which coping techniques individuals with IBD consider helpful or harmful in reducing symptoms (Skrastins & Fletcher, 2016) and how social and environmental factors can influence participants' sense of effective coping (D. Luo et al, 2019;Palant & Himmel, 2019).…”