Human agency in disaster risk reduction: theoretical foundations and empirical evidence from people with disabilities

Ton, Khanh That; Gaillard, JC; Adamson, Carole; Akgungor, Caglar; Ho, Ha Thanh

doi:10.1080/17477891.2021.1887798

Cited by 7 publications

(4 citation statements)

References 41 publications

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“…Aligned with that, study also found that people with disabilities (PwD) have also demonstrated their ability to take collective action during disasters, It is also argued that by taking collective action, individuals can collaborate with others in their community [26,27].…”

Section: Social Vulnerability Formed Collective Actionmentioning

confidence: 77%

Transwomen Leading Covid-19 Pandemic Response: Experiences of an Indonesian Waria Community

Manurung,

Pertiwi

2023

E3S Web Conf.

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There is a lack of research on how Covid-19 pandemic affects transwomen populations in Indonesia, which creates a gap in understanding their vulnerabilities and resilience. Kebaya Foundation is an Indonesian Waria community that took part in responding to the Covid-19 outbreak in Yogyakarta in 2020. The initiative from Kebaya Foundation is timely following global agenda of leaving no one behind in DRR and humanitarian crisis underpinned by leadership of those most at-risk. Yet, there is limited scholarly evince that document the role and practice of the transwomen community in disaster response. This research aims investigate role and practices of Kebaya foundation in responding to Covid-19. A single case study method was adopted involving document reviews and semi-structured interviews with Kebaya Foundation staffs. The inquiry and analysis were guided by Pierre Bourdieu Social Practice theory The data were analyzed using thematic analysis and then we generate four themes related to role and experiences of Kebaya Foundation leading the Covid-19 response. This research shows that the Covid-19 pandemic increased the vulnerability of gender minority communities, while also providing opportunities for them to participate in emergency response efforts.

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Section: Social Vulnerability Formed Collective Actionmentioning

confidence: 77%

Transwomen Leading Covid-19 Pandemic Response: Experiences of an Indonesian Waria Community

Manurung,

Pertiwi

2023

E3S Web Conf.

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“…18 Social structures describe aspects that influence human and/or personal agency, are ontologically distinct, and frame the experience of disability. 19 Examples of such structures include laws, politics, institutions (eg, clinics, hospitals, education), public infrastructure (eg, transportation), family, and marriage. 20 These findings expand on the knowledge in existing literature that women with MS may experience social challenges such as changes to roles at home and work.…”

Section: Discussionmentioning

confidence: 99%

Understanding the Health and Well-being of Women With Multiple Sclerosis

Collins

Babenko-Mould

Jackson

et al. 2023

Journal of Neuroscience Nursing

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BACKGROUND: Multiple sclerosis (MS) is an immune-mediated disease that affects the central nervous system, and is potentially disabling. Women experience MS more frequently than men at a 3:1 ratio. Current literature suggests that women may experience health, social determinants of health, and disability differentially, and there is a gap in the research examining how gender intersects with MS. METHODS: Interviews were conducted with 23 women with MS. van Manen's hermeneutic phenomenology was used to inform and analyze the data to understand the nature and meaning of health and well-being for participants. RESULTS: A key theme of “enhancing wholeness for women with MS” emerged from the data, which suggests that women with MS view themselves as healthy and “whole” despite living with MS. Supporting factors for physical, mental, and social well-being include the ability to enact human agency within social structures such as with employment or seeking care with MS clinics. The findings informed the development of a figure that depicts the supporting factors of health and well-being for women living with MS. CONCLUSION: The health and well-being of women with MS may be optimally supported by nurses and interdisciplinary healthcare teams through careful consideration as to how agency is enacted within social structures, for example, MS clinics, employment, and social support systems, as well as considerations for social determinants of health.

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“…The key finding of the study, that a person with a disability was no more likely than someone without a disability to experience difficulties in adapting -both practically and emotionallyduring extreme weather-related power outages, makes a significant contribution to the strengthening critique of the dominant understanding in much emergency preparedness policy, that people with disabilities are inherently more likely than others to be vulnerable in such circumstances (Cabinet Office, 2011;Ton et al 2021). The study evidenced that the majority of people with disabilities responded in ways that were highly adaptive, and which demonstrated self-awareness and awareness of the needs of those responsible for their care.…”

Section: 0: Discussionmentioning

confidence: 99%

‘It’s not about having a back-up plan; it’s always being in back-up mode’: Rethinking the relationship between disability and vulnerability to extreme weather

Connon

Hall

2021

Geoforum

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Human agency in disaster risk reduction: theoretical foundations and empirical evidence from people with disabilities

Cited by 7 publications

References 41 publications

Transwomen Leading Covid-19 Pandemic Response: Experiences of an Indonesian Waria Community

Transwomen Leading Covid-19 Pandemic Response: Experiences of an Indonesian Waria Community

Understanding the Health and Well-being of Women With Multiple Sclerosis

‘It’s not about having a back-up plan; it’s always being in back-up mode’: Rethinking the relationship between disability and vulnerability to extreme weather

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