How we approach sharing child–caregiver PRO disagreement
Amy S. Porter,
Pamela S. Hinds,
Lori Wiener
et al.
Abstract:Researchers use patient‐reported outcomes (PRO) to capture the patient experience, and in pediatrics, parent report of symptom and function often accompanies the child's assessment. Children with cancer and their family caregivers frequently evaluate symptom burden and functional status differently. Child–caregiver PRO disagreement often worries pediatric oncology clinicians, who do not know how to best approach sharing it with families. Openly discussing differences in symptom and functional status reporting … Show more
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