How to Understand the Experience of Persons Living with HIV: Implications for Clinical Practice and Research

Carrasco-Aldunate, Paola; Araya-Gutiérrez, Alejandra; Loayza-Godoy, Carla; Ferrer-Lagunas, Lilian; Trujillo-Guarda, Claudio; Fernández-Sarmiento, Ana; Lasso-Barreto, Martín; Pérez-Cortés, Carlos

doi:10.5294/aqui.2013.13.3.6

Cited by 4 publications

(3 citation statements)

References 20 publications

(21 reference statements)

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“…In some cases, they accept that the risky practices they have made in their life have resulted in the fact that they are carriers of the virus and they accept their mistake. One participant of the research by Carrasco et al [15] expresses it in this way: "...when I was informed that I suffered from HIV, I felt an extremely huge sorrow, an extremely huge helplessness, but, at the same time, I was very calm because I admitted and accepted the mistake that I had made when I did not take care of myself...". However, it should be noted that there are many ways in which a person could become infected (transmitted from a HIV+ mother during birth, blood transfusion), so it does not follow that each person infected did something wrong, made a mistake.…”

Section: Feelings About the Diagnosis Of Hiv/aidsmentioning

confidence: 99%

Experiences and Attitudes of People with HIV/AIDS: A Systematic Review of Qualitative Studies

Arias-Colmenero

Pérez-Morente

Ramos-Morcillo

et al. 2020

IJERPH

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The aim of this article was to explore the experiences and attitudes of people with HIV/AIDS. A systematic review of qualitative studies was carried out. Twenty-seven articles were included, with sample sizes ranging from 3 to 78. Articles from North America, South America, Central America, Europe, and Africa were included. Five topics emerged from the synthesis: feelings about the diagnosis of HIV/AIDS; stigma and HIV/AIDS; changes in sexual behavior after becoming infected; living with the virus; and pregnancy and motherhood in seropositive women. The moment of diagnosis is of vital importance for these people due to feelings such as disappointment, sadness, fear, despair, lack of awareness, and pain. Social support is highly valued among these people and is linked to an improvement in these peoples’ quality of life. Different kinds of stigma accompany people with HIV/AIDS throughout their life, like social stigma, self-stigma, and health professionals’ stigma. Seropositive women who decide to become mothers can feel frustration because they cannot breastfeed. Spirituality helps some people to deal with the fact of being a virus or disease carrier.

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Section: Feelings About the Diagnosis Of Hiv/aidsmentioning

confidence: 99%

Experiences and Attitudes of People with HIV/AIDS: A Systematic Review of Qualitative Studies

Arias-Colmenero

Pérez-Morente

Ramos-Morcillo

et al. 2020

IJERPH

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“…When these results are compared with those obtained by Johnson and Hurtado in 2017, in older adults diagnosed with cancer, they were similar since more than half of their population of older adults have a high level of uncertainty. 20 Given the above, PLHIV experience complex processes of personal transformation upon being diagnosed and living with a chronic disease, 21 knowing the level of uncertainty in people living with HIV, linked to the difficulty in coping with the symptoms of uncertainty in the face of evolution of the disease and the complexity of the treatment, allows care professionals to be a source of support in the interpretation of the facts arising from the disease. 22…”

Section: Discussionmentioning

confidence: 99%

Level of uncertainty in people living with HIV

Pahua¹,

Baltazar²,

Zavala³

et al. 2019

IPMRJ

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Introduction: Worldwide, human immunodeficiency virus (HIV) infection continues to be an emerging public health problem. With the positive screening of this chronic degenerative disease, the virus generates physical, psychological, social and spiritual changes in people, that lead to uncertainty in the face of an uncertain future. Identifying the uncertainty in the patients, allows the care professional to plan integral interventions to favour the reduction of this process and can integrate well-being in the experience with their chronic condition and thus, have quality of life. Objective: To determine the level of uncertainty in a group of people living with HIV. Method: Quantitative, descriptive and transversal study. Non-probabilistic sampling of 30 people living with HIV, from the CONVIHVE Civil Association of Morelia, Michoacán. An identification card and the scale “Uncertainty in front of the disease” (MUIS) of Merle Mishel were applied, with a reliability of (.904). The statistical package SPSS V was used to analyze the data. 22. Results: 83.3% of the total population are men and 16.7% are women, 32-39 years of age (36.6%) of whom 70% are men. Being single, 53.3% have a bachelor’s degree. 60% report being employed. 30% of the population refers to having more than 10 years of diagnosis and less than 5 years in treatment 53.3%. 76.7% are Catholic. From the total of participants, 23.3% showed a low level of uncertainty, followed by a level of regular uncertainty with 26.7%, and 50% showed a high level of uncertainty. Conclusion: The level of uncertainty in people living with HIV is high. It is necessary to carry out comprehensive interventions that favour the reduction of the level of uncertainty and thus improve the well-being and quality of life of people living with HIV.

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“…Despite interest in the sexuality of women living with HIV, few studies have explored the experience of women living with HIV from their perspective [30,31]. This allows us to appreciate the complex relationships that exist among the various elements and how they influence, in this case, women's ability to satisfy their sexual needs and ensure their well-being.…”

Section: Introductionmentioning

confidence: 99%

An Initial Look into the Sexuality and Well-Being of Women Living with HIV: Making the Invisible Visible

Fernández-Rouco

Haya

2021

Sex Disabil

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This article focuses on the stories of women living with HIV concerning sexuality and well-being. Their stories counter the dominant perception of women's sexuality and challenge the social norms shaping their lives. Ten women between the ages of 28 and 55 were interviewed. At the interview time, five of the women were unemployed and one retired, four had a partner, and five had children. The semi-structured interviews were conducted following a face-to-face format in which the sex-affective area was explored, examining its relevance, the women's satisfaction, the difficulties they encountered, and the impact on their well-being. The results reflect the diversity of their experiences and the subordinate position they were in and their difficulties in meeting their sexual needs and achieving optimal levels of well-being. The data also reveals the status accorded to being a woman and being HIV-positive as factors affecting her sexual experience, as well as the difficulties she faced in obtaining satisfaction or care. Finally, this paper emphasizes the need to explore the obstacles in relation to living with HIV, including gender and sexuality, all of which must be taken into account in policy implementation and social policymaking.

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How to Understand the Experience of Persons Living with HIV: Implications for Clinical Practice and Research

Cited by 4 publications

References 20 publications

Experiences and Attitudes of People with HIV/AIDS: A Systematic Review of Qualitative Studies

Experiences and Attitudes of People with HIV/AIDS: A Systematic Review of Qualitative Studies

Level of uncertainty in people living with HIV

An Initial Look into the Sexuality and Well-Being of Women Living with HIV: Making the Invisible Visible

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