How to get the most from a consultation with a person who has a learning disability

Bradley, P. A.; Byrne, Katie; Ring, Howard

doi:10.1136/practneurol-2011-000140

Cited by 2 publications

(2 citation statements)

References 3 publications

(3 reference statements)

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“…The hospital passport is a useful tool and contributes to better communication and understanding of specific care and support needs (Heifetz & Lunsky, 2018;Phillips, 2019;. However, although the hospital passport was prominent in literature in preceding years (Ali et al, 2013;Blair, 2011;Bradley et al, 2012;Dinsmore & Higgins, 2011;Wolfstadt et al, 2010), it was only specifically identified by Phillips (2019) and alluded to by Tuffrey-Wijne, in the studies included in this review. There is therefore a need and an opportunity to undertake further research with adults with intellectual disabilities, their families, care and health professionals to more fully understand their impact in relation to the provision of safe and effective person-centred care and support and the improved health outcomes that they seek to achieve.…”

Section: Discussionmentioning

confidence: 93%

Experiences of adults with intellectual disabilities accessing acute hospital services: A systematic review of the international evidence

McCormick

Marsh

Taggart

et al. 2020

Health Soc Care Community

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Adults with intellectual disabilities experience significant physical and mental health needs when compared to their typically developing peers. Previous research evidences that many people with intellectual disabilities have negative encounters within acute hospitals. The aim of this systematic review was to identify the specific views and experiences of adults with intellectual disabilities when accessing acute hospital services arising from the available literature. The review commenced in June 2019 and was updated in May 2020. A systematic search of five electronic databases including CINAHL Plus, MEDLINE, Web of Science, SCOPUS and PsycINFO was undertaken. Studies published from 2014, peer-reviewed, written in English and referred to adults with intellectual disabilities aged 18 plus and acute hospital settings were included. The Preferred Reporting Items for Systematic Reviews and Meta-Analyses guidelines and the Critical Appraisal Skills Programme quality assurance checklist were used to review all selected papers. Five studies from a total of 421 were deemed suitable for inclusion in the review as the voices of adults with intellectual disabilities were present. Poor communication from healthcare staff towards adults with intellectual disabilities emerged in four studies while the use of the hospital passport and the intellectual disability liaison nurse to significantly improve the hospital experience for adults with intellectual disabilities was identified in two of the studies. Following a systematic and thematic analysis of the studies, three main overarching themes emerged: communication; information sharing; and compassion and respect. Despite the national and international focus on improving healthcare for people with intellectual disabilities, this review highlights lack of communication, inadequate information sharing and issues related to compassionate care and respect.The review identifies the possibility that an increased use of hospital passports and an extension of the intellectual disability liaison nursing roles may enhance the hospital experience for people with intellectual disabilities.

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Section: Discussionmentioning

confidence: 93%

Experiences of adults with intellectual disabilities accessing acute hospital services: A systematic review of the international evidence

McCormick

Marsh

Taggart

et al. 2020

Health Soc Care Community

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“…A notable study found the comorbidity rate of any psychiatric condition (including ADHD) in autistic children to be 70% (10). Around 30% of autistic individuals have intellectual disability (8); for advice on how to consult with people with intellectual disability, we direct readers to Bradley et al (12).…”

Section: Some Examples Of Restricted and Repetitive Behavioursmentioning

confidence: 99%

Neurological consultation with an autistic patient

et al. 2021

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Autism is a neurodevelopmental condition with a very heterogeneous presentation. Autistic people are more likely to have unmet healthcare needs, making it essential that healthcare professionals are ‘autism-aware’. In this article, we provide an overview of how autism presents and use case studies to illustrate how a neurological consultation in an outpatient clinic environment could prove challenging for a autistic person. We suggest how to improve communication with autistic patients in clinic and highlight the importance of a patient-centred and flexible approach.

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How to get the most from a consultation with a person who has a learning disability

Cited by 2 publications

References 3 publications

Experiences of adults with intellectual disabilities accessing acute hospital services: A systematic review of the international evidence

Experiences of adults with intellectual disabilities accessing acute hospital services: A systematic review of the international evidence

Neurological consultation with an autistic patient

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