Abstract:Background
Acknowledging the popularity of TikTok, how quickly medical information can spread, and how users seek support on social media, there is a clear lack of research on breast cancer conversations on TikTok. There is a paucity of information on how these videos can advocate for those impacted by breast cancer as a means to provide support and information as well as raise awareness.
Objective
The purpose of this cross-sectional content analysis wa… Show more
“…Third, wellness content tends to focus on positivity and empowerment. This type of messaging can have substantive benefits to individuals, from increased confidence and self-advocacy in medical situations (Attai et al, 2015;Basch et al, 2022;Treder et al, 2022) to social support and connectedness (Myrick et al, 2016;Pavelko & Myrick, 2020). It also presents an opportunity to examine how positive affect and messaging may be related to misperceptions and misinformation.…”
Despite the increasing popularity of wellness on social media, there islittle empirical study of its content or audiences. This study providesdescriptive information of prevalent themes in wellness content and thecomposition and views of its audiences. Using structural topic modeling toidentify central themes #wellness content on Instagram (N = 544,377posts), we find that while much content appears to promote desired healthbehaviors (e.g., quality sleep), other topics concern unsubstantiated claimsthat are often driven by commercial incentives. Nationally representativesurvey data of U.S. adults (N = 970) further reveals that women, moreliberal, and younger people are more likely to seek and see wellnesscontent. Those who actively seek wellness content are both more trustingof science institutions and have less accurate health beliefs compared withthose who are inadvertently exposed to wellness content. Though wellnesshas not received a great deal of scholarly attention, this description shedslight on the relevance of wellness to central questions in communicationdisciplines concerning expertise, (mis)information, and institutional trust. The popularity of wellness content in social media merits further empiricalexamination as such content may have important benefits and harms thatdisproportionately affect women and young people.
“…Third, wellness content tends to focus on positivity and empowerment. This type of messaging can have substantive benefits to individuals, from increased confidence and self-advocacy in medical situations (Attai et al, 2015;Basch et al, 2022;Treder et al, 2022) to social support and connectedness (Myrick et al, 2016;Pavelko & Myrick, 2020). It also presents an opportunity to examine how positive affect and messaging may be related to misperceptions and misinformation.…”
Despite the increasing popularity of wellness on social media, there islittle empirical study of its content or audiences. This study providesdescriptive information of prevalent themes in wellness content and thecomposition and views of its audiences. Using structural topic modeling toidentify central themes #wellness content on Instagram (N = 544,377posts), we find that while much content appears to promote desired healthbehaviors (e.g., quality sleep), other topics concern unsubstantiated claimsthat are often driven by commercial incentives. Nationally representativesurvey data of U.S. adults (N = 970) further reveals that women, moreliberal, and younger people are more likely to seek and see wellnesscontent. Those who actively seek wellness content are both more trustingof science institutions and have less accurate health beliefs compared withthose who are inadvertently exposed to wellness content. Though wellnesshas not received a great deal of scholarly attention, this description shedslight on the relevance of wellness to central questions in communicationdisciplines concerning expertise, (mis)information, and institutional trust. The popularity of wellness content in social media merits further empiricalexamination as such content may have important benefits and harms thatdisproportionately affect women and young people.
“…Otro asunto predominante tiene que ver con el tratamiento, con observaciones sobre las diferentes terapias, como la radiación o la mastectomía, pasando por los efectos secundarios de los mismos. En conjunto, estos hallazgos ponen de relieve el nivel de participación entre iguales y pueden aportar ideas para el diseño de campañas educativas sobre el cáncer de mama, algo parecido a lo que ocurre en otras redes sociales como TikTok (Basch et al, 2022).…”
Este artículo forma parte de una reciente línea de investigación surgida tras el diagnóstico y superación de un cáncer de mama por parte de una de las personas que firman este texto académico. En él se aborda, mediante la técnica del Análisis de Redes Sociales, la lista de reproducción de vídeos sobre cáncer de mama que almacena y ofrece YouTube cuando un usuario quiere visionar contenidos sobre la enfermedad, con la intención de identificar los videos más relevantes y las preocupaciones de las personas que publican y comentan sobre el tema. Los resultados recogen la relevancia que tienen los contenidos publicados por médicos y organizaciones relacionadas con la salud y la importancia que poseen las historias personales como fuente de esperanza y apoyo para aquellas que han sido afectadas por la enfermedad. En lo que se refiere a los comentarios de los videos, junto a los aspectos médicos y los testimonios personales, también destacan la importancia de la fe y la oración como ayuda para superar el cáncer de mama. Por último, los autores quieren solidarizarse con este trabajo con todas aquellas personas que luchan día a día contra la enfermedad.
ObjectiveTo assess the quality, reliability, and level of misinformation in TikTok videos about hysteroscopy.MethodsA cross‐sectional analysis of TikTok videos retrieved using “hysteroscopy” as search term was performed. Patient education materials assessment tool for audio‐visual content (PEMAT A/V), the modified DISCERN (mDISCERN), global quality scale (GQS), video information and quality index (VIQI) and misinformation assessment were used.ResultsOf three hundred videos captured, 156 were excluded and 144 were included. Most videos were partially accurate or uninformative (43.8% and 34.7%, respectively). Non‐healthcare providers produced more inaccurate or uninformative videos than healthcare workers (51.1% vs 4.0%; P < 0.001). Compared to content by professionals, content by patients showed increased distrust towards gynecologists (11.7% vs 0%; P = 0.012) and increased incidence of anxiety and concern towards hysteroscopy (25.5% vs 2%; P < 0.001). PEMAT A/V scores for understandability and actionability were low at 42.9% (interquartile range [IQR]: 11.1–70) and 0% (IQR: 0–0), respectively. Understandability (P < 0.001) and actionability (P = 0.001) were higher for professionals' created content relative to patients' videos. Similarly, median mDISCERN score was low (1 [IQR 0–2]), with significantly higher score for healthcare professionals compared to patients (P < 0.001). Overall video quality was also low, with median VIQI and GQS score of 7 (IQR 4–11) and 1 (IQR 1–3), respectively, and significantly higher scores for healthcare workers' captions compared to patients' for both (P < 0.001 and P = 0.001, respectively).ConclusionTikTok videos' quality on hysteroscopy seems unsatisfactory and misinformative, with low understandability and actionability scores. Videos recorded by healthcare workers show higher quality and less misinformation than those by patients. Raising the awareness regarding the low quality of medical information on social media is crucial to increase future reliability and trustworthiness.
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