How the COVID-19 pandemic has prevented children with cancer from pursuing their schooling in hospital or at home

Adduci, Annarita; Ferrari, Andrea; Grampa, Paolo; Giovanetti, Monica; Massimino, Maura

doi:10.1007/s00381-020-05027-1

Cited by 5 publications

(9 citation statements)

References 6 publications

(11 reference statements)

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“…that distance learning cannot meet the needs of such particular students as children and adolescents with cancer, however. Attending school in person plays a crucial part in motivating these patients to invest in their studies and their future [13,14].…”

Section: Discussionmentioning

confidence: 99%

“…Uncertainty about their prognosis and the need to concentrate on the treatment of their disease can lead to any plans for the future of a child diagnosed with cancer being put on hold. Continuing their education, in the classroom or in hospital, can help to combat this harmful tendency[13]. Parents reported being from moderately to extremely concerned about their children's schooling in 52.5% of cases.…”

mentioning

confidence: 99%

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Managing Care during the COVID-19 Pandemic: The Point of View and Fears of Pediatric Cancer Patients’ Families

Nigro¹,

Sironi²,

Ferrari³

et al. 2022

Preprint

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(1)Background: When the COVID-19 pandemic arrived, changes had to be made to several management aspects at our Pediatric Oncology Center. We investigated how the families per-ceived these changes. (2) Methods: Two questionnaires were developed at the Pediatric Oncology Unit of the Istituto Nazionale dei Tumori in Milan, to explore how the pandemic has affected the experience of patients who had been or were being treated at our hospital, and their families. These were administered to three samples of individuals. (3) Results: Between July and October 2020, 120 questionnaires were administered to parents of patients. The impact of school closures and the impossibility of attending sports and social activities outside the hospital were regarded as im-portant. 77.5% of parents judged the social distancing to have affected their children. Regarding the changes introduced in the management of the ward and outpatient clinic, most parents’ opinions were positive. Differences in the opinions expressed by Groups 2 and 3 were statistically significant on the topic of relationships on the ward and staff workload. The aspect most negatively affected by the pandemic was the support that patients’ parents were able to give each other. Regardless of whether patients were treated before the pandemic or after the first lockdown, their parents of all indicated a strong degree of satisfaction with the care received, and with the organizational ar-rangements. (4) Conclusions: The results of our study point us in the right direction to further improve our daily work and better respond to the needs of our patients and their families.

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Section: Discussionmentioning

confidence: 99%

mentioning

confidence: 99%

Managing Care during the COVID-19 Pandemic: The Point of View and Fears of Pediatric Cancer Patients’ Families

Nigro¹,

Sironi²,

Ferrari³

et al. 2022

Preprint

Self Cite

View full text Add to dashboard Cite

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“…The negative consequences of school closures in the daily lives of students ( 5 – 13 ) and families ( 4 , 9 , 31 , 40 ) were particularly significant for those with so-called special educational needs ( 14 – 20 ).…”

Section: Discussionmentioning

confidence: 99%

“…Generally, evidence documented that the experience of DL is usually associated with negative consequences in children and adolescents in terms of psychological wellbeing ( 5 – 8 ), learning outcomes and academic consequences ( 9 – 13 ). The findings also highlighted that the presence of associated medical conditions ( 14 , 15 ), disabilities ( 16 , 17 ), or neurodevelopmental disorders ( 18 – 20 ) in children and adolescents has markedly amplified the detrimental effects of DL—probably because of these already existing pre-conditions.…”

Section: Introductionmentioning

confidence: 95%

Distance learning during COVID-19 lockdown: Impact on adolescents with specific learning disorders and their parents

Battisti

Lazzaro²,

Varuzza³

et al. 2022

Front. Psychiatry

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BackgroundThe transition of teaching from in-person to Distance Learning (DL) due to the COVID-19 pandemic led to negative effects on students' psychological wellbeing and academic achievement. The worst consequences have been experienced by students with so-called special educational needs, as well as by their parents. However, very little emphasis has been placed on the effects of DL in students with Specific Learning Disorders (SLD). The present work aimed to evaluate the effects of DL during the COVID-19 lockdown in Italian students with SLD and in their parents.MethodsAn online survey was administered to 92 students with SLD and their parents after the COVID-19 lockdown. The survey consisted of four sections: participants' demographic information; perceived stress related to general aspects (i.e., social and family determinants) as well as specific aspects related to DL; attitudes and feelings toward DL; and academic grades before and after DL.ResultsStudents with SLD perceived stress mainly from social isolation/distancing and DL (p always ≤ 0.0001), especially from online classes and oral exams (p always ≤ 0.0001). Students who did not benefit from appropriate accommodations (i.e., individualized teaching and learning methods) during DL perceived 3 times more DL-related stress than those who used them as in-person learning (OR = 3.00, CI 95%: 1.24–7.28, p = 0.015). Girls perceived more stress from online lessons (OR = 0.40, CI 95%: 0.16–0.96, p = 0.04) and use of devices (OR = 0.33, CI 95%: 0.14–0.80, p = 0.015) than boys. Negative feelings (less motivation, reduced ability to understand lessons, interact, and stay focused) and positive feelings (less anxiety and more self-confidence with its own rate of learning) toward DL emerged. Higher academic grades also was observed after DL (p ≤ 0.0001). Lastly, strong and positive correlations emerged between students' and parents' perceived stress during DL (p always < 0.001).ImplicationsThe present study prompts special considerations for students with special educational needs not only when providing conventional instruction, but especially when it is necessary to suddenly modify teaching approaches.

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“…Although rarely affected by the virus itself, due to the lockdown imposed in most of the countries, children presented with mood and behavior changes leading to longlasting psychological or psychiatric disorders [14,15]. Older children were specially impacted by the closure of schools and introduction of digital home schooling, although changes induced by the public health crisis, social isolation, and economic recession could affect all the family clusters [16,17]. The psychological consequences of lockdowns and social distancing in sick children were emphasized by Adduci et al [17] that stressed the importance of special approaches for some categories, as children and adolescents with cancer.…”

Section: Children and Covid-19mentioning

confidence: 99%

Presidential address—the Black Swan: ISPN and pediatric neurosurgery in times of COVID-19

Salomão

2021

Childs Nerv Syst

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How the COVID-19 pandemic has prevented children with cancer from pursuing their schooling in hospital or at home

Cited by 5 publications

References 6 publications

Managing Care during the COVID-19 Pandemic: The Point of View and Fears of Pediatric Cancer Patients’ Families

Managing Care during the COVID-19 Pandemic: The Point of View and Fears of Pediatric Cancer Patients’ Families

Distance learning during COVID-19 lockdown: Impact on adolescents with specific learning disorders and their parents

Presidential address—the Black Swan: ISPN and pediatric neurosurgery in times of COVID-19

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