How the COVID-19 pandemic experience has affected pediatric palliative care in Mumbai

Talawadekar, Pradnya; Khanna, Smriti; Dinand, Véronique; Fernandes, Prakash; Deodhar, Jayita; Muckaden, Mary Ann

doi:10.4103/ijpc.ijpc_189_20

Cited by 2 publications

(1 citation statement)

References 3 publications

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“…Pediatric Palliative Care (PPC) clinicians have mobilized expeditiously in response to the pandemic in an effort to find creative solutions to continue providing high-quality care for children and their families. ( 10 , 11 , 12 ) In the setting of a pandemic, interventions such as conversations about goals of care and advance care planning, ( 13 ) symptom management, and end-of-life care become more challenging. ( 14 ) PPC teams must find innovative tools, technologies, and communication modalities to support optimal care provision while ensuring appropriate physical distancing.…”

Section: Introductionmentioning

confidence: 99%

Global Experiences of Pediatric Palliative Care Teams During the First 6 Months of the SARS-CoV-2 Pandemic

McNeil

Kaye

Vedaraju

et al. 2021

Journal of Pain and Symptom Management

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Context The coronavirus pandemic (COVID-19) has profoundly impacted the provision of pediatric palliative care (PPC) interventions including goals of care discussions, symptom management, and end-of-life care. Objective Gaining understanding of the professional and personal experiences of PPC providers on a global scale during COVID-19 is essential to improve clinical practices in an ongoing pandemic. Methods The P alliative A ssessment of N eeded DE velopments & M odifications I n the Era of C oronavirus Survey-Global survey was designed and distributed to assess changes in PPC practices resulting from COVID-19. Quantitative and qualitative data were captured through the survey. Results One hundred and fifty-six providers were included in the final analysis with 59 countries and 6 continents represented (31% from lower- or lower middle-income countries). Nearly half of PPC providers (40%) reported programmatic economic insecurity or employment loss. Use of technology influenced communication processes for nearly all participants (91%), yet most PPC providers (72%) reported receiving no formal training in use of technological interfaces. Respondents described distress around challenges in provision of comfort at the end of life and witnessing patients’ pain, fear, and isolation. Conclusions PPC clinicians from around the world experienced challenges related to COVID-19. Technology was perceived as both helpful and a hinderance to high quality communication. The pandemic's financial impact translated into concerns about programmatic sustainability and job insecurity. Opportunities exist to apply these important experiential lessons learned to improve and sustain care for future patients, families, and interdisciplinary teams. Article Summary This original article describes the impact of the COVID-19 pandemic on pediatric palliative care clinicians from 59 countries including financial losses, use of virtual communication modalities, and the respondents’ distress in provision of comfort at the end of life.

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Section: Introductionmentioning

confidence: 99%

Global Experiences of Pediatric Palliative Care Teams During the First 6 Months of the SARS-CoV-2 Pandemic

McNeil

Kaye

Vedaraju

et al. 2021

Journal of Pain and Symptom Management

View full text Add to dashboard Cite

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Evaluation of The Opinions of The Pediatric Palliative Care Patients' Families Regarding The COVID-19 Pandemic: A Cross-Sectional Study

Harputluoğlu

Çubukçu

Durak

et al. 2022

Pediatric Practice and Research

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Aim: While many countries around the world have faced similar challenges in pediatric palliative care as COVID-19, there have also been challenges that vary from country to country. In this study, it was aimed to evaluate the difficulties and opinions of families receiving pediatric palliative care in our country during the pandemic process. Materials and Methods: The study is a cross-sectional survey applied to families followed in the pediatric palliative care service between 01.12.2018 and 01.12.2020. In the study, caring parents were asked to share their experiences and opinions in the last year. Results: Of the 175 families followed, 112 were included in the study. In the first year of the pandemic, it was determined that 42% of the families had no change in their lives, 16.1% had psychological problems, 35.7% had social (quarantine and restrictions) problems and 6.3% had economic problems. When the family order and endurance of those who stated that there were significant changes in their lives in the first year of the pandemic were examined, it was found that these individuals were bored with their families and had difficulty staying at home (2.482; p=0.013). Conclusion: The COVID-19 pandemic process in pediatric palliative care has been milder and has a better prognosis than expected. Psychosocial difficulties are the most prominent areas of distress.

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How the COVID-19 pandemic experience has affected pediatric palliative care in Mumbai

Cited by 2 publications

References 3 publications

Global Experiences of Pediatric Palliative Care Teams During the First 6 Months of the SARS-CoV-2 Pandemic

Global Experiences of Pediatric Palliative Care Teams During the First 6 Months of the SARS-CoV-2 Pandemic

Evaluation of The Opinions of The Pediatric Palliative Care Patients' Families Regarding The COVID-19 Pandemic: A Cross-Sectional Study

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