How should we understand family-centred care?

Uniacke, Suzanne; Browne, Tamara Kayali; Shields, Linda

doi:10.1177/1367493517753083

Cited by 64 publications

(55 citation statements)

References 11 publications

Supporting

Mentioning

Contrasting

Unclassified

Order By: Relevance

“…Despite an abundance of literature related to other aspects of acute pain care in children, such as assessment (Dürango, Åkeson, Jonsson, Nilsson, & Åkeson, 2017;Royal College of Nursing, 2009) and interventions (Shrestha-Ranjit & Manias, 2010), less is known about how nurses work in partnership with parents to involve them in their child's acute pain care (Jaakola, Mervi, Kaariainen, & Palkki, 2013). This is compounded by the differences in how parents and nurses understand and perceive involvement and partnership working, which is highlighted in the wider literature and contributes to the variations in implementing parental involvement in practice (Uniackle et al, 2018;Vázquez Sellán et al, 2017). Parental involvement is a component of family-centred care and occurs at the nurse-led end of the familycentred care practice continuum (Smith, Coleman, & Bradshaw, 2010).…”

Section: Backg Rou N Dmentioning

confidence: 99%

“…Despite family-centred care being espoused as an ideal philosophy to support nurses and parents working together, it is challenging to embed into practice (Coyne, Murphy, Costello, O'Neill, & Donnellan, 2013;Smith et al, 2015). Furthermore, growing concern about lack of a shared understanding of family-centred care (Al-Motlaq, et al, 2018) and its usefulness to guide practice ensue (Uniackle et al, 2018).…”

Section: Backg Rou N Dmentioning

confidence: 99%

See 1 more Smart Citation

Tokenism or true partnership: Parental involvement in a child’s acute pain care

Smith

Kirshbaum

et al. 2019

Journal of Clinical Nursing

View full text Add to dashboard Cite

Aims and objectives To explore parental involvement in the child's acute pain care and establish ways in which parental preferences for involvement in their child's care can be identified, facilitated and enhanced by nurses. Background Despite growing evidence supporting effective acute pain management in children and the availability of national and international practice guidelines, children still experience acute pain. Involving parents in their child's pain care has been identified as being a central tenet of pain management in children. Design and methods A qualitative study using an ethnographical approach with nonparticipant observation and follow‐up semi‐structured interviews was undertaken. Nurses (n = 14), parents (n = 41), grandparents (n = 2), other relative (n = 1) and children (n = 30) participated. The framework approach underpinned data analysis. Consolidated criteria for reporting qualitative research (COREQ) enabled comprehensive reporting of the study. Results Three concepts emerged from the data: “parents as advocates for their child,” “nurses promoting involvement and partnership” and “nurses unintentionally preventing involvement and partnership.” Variations in the way parents were involved in their child's pain care were identified. Despite family‐centred care being the dominant model of involving families in their child's care, evidence of this being implemented was limited. Parents attempted to advocate effective pain care for their child, whether or not they were supported by nurses. Conclusions Parental involvement in their child's acute pain care can improve the child's pain experience, reduce parental anxiety and increase parents’ satisfaction in care. Nurses aspired to involve parents in pain care, but did not always enact this in practice. Relevance for practice Children deserve optimum pain care, which includes parental involvement. Parental involvement underpinned by the principles of family‐centred care was poorly implemented. Parents attempted to be involved and advocate for their child's pain care whether or not they were supported by nurses. An alternative approach for supporting parents to advocate in their child's acute pain care is offered, the “Partnership in Pain Care Model.”

show abstract

Section: Backg Rou N Dmentioning

confidence: 99%

Section: Backg Rou N Dmentioning

confidence: 99%

Tokenism or true partnership: Parental involvement in a child’s acute pain care

Smith

Kirshbaum

et al. 2019

Journal of Clinical Nursing

View full text Add to dashboard Cite

show abstract

“…Aileyi anlamak için çaba gösterilmesi ve onların bireysel gereksinimlerine duyarlı olunması önemlidir. 14 Amerikan Pediatri Akademisi, 2013 yılında, aile merkezli bakımı pediatri alanında 'altın standart' olarak kabul etmiştir. Bu bakım modeli, tüm poliklinik ortamlarında, kliniklerde ve acilde standart bakım modeli olarak önerilmektedir.…”

Section: Ai̇le Merkezli̇ Bakim Felsefesi̇ni̇n Geli̇şi̇mi̇unclassified

“…13 Amerika Birleşik Devletleri (ABD)'nde Aile Merkezli Bakım Kurumu tarafından bu bakım modelinin temel özellikleri 2007 yılında yeniden tanımlanmıştır. 5,14,15…”

Section: Ai̇le Merkezli̇ Bakim Felsefesi̇ni̇n Geli̇şi̇mi̇unclassified

See 1 more Smart Citation

Issues in Implementing Family Centred Care in Pediatrics and New Approaches

Çavuşoğlu¹

2018

Turkiye Klinikleri J Nurs Sci

View full text Add to dashboard Cite

Clinician Perceptions of Family-Centered Care in Pediatric and Congenital Heart Settings

Akram,

Webb,

Pidcock

et al. 2024

JAMA Netw Open

View full text Add to dashboard Cite

ImportanceFamily-centered care recognizes families as central to child health and well-being and prioritizes clinician collaboration with families to ensure optimal pediatric care and outcomes. Clinician interpersonal sensitivity and communication skills are key to this approach.ObjectiveTo examine perceptions of and factors associated with family-centered care among clinicians working in pediatric and congenital heart care.Design, Setting, and ParticipantsIn this cross-sectional study, participants from diverse clinical disciplines (pediatric cardiology, cardiothoracic surgery, nursing, anesthesia, neonatology, intensive care, psychology, and others), completed an online survey between June 2020 and February 2021. Participants included physicians, surgeons, nurses, and allied and mental health professionals at an Australian quaternary pediatric hospital network. Statistical analysis was performed from August 2022 to June 2023.Main Outcomes and MeasuresFamily-centered care across 4 domains (showing interpersonal sensitivity, treating people respectfully, providing general information, and communicating specific information) was measured using the validated Measure of Processes of Care for Service Providers. Clinician burnout (emotional exhaustion, depersonalization, and personal accomplishment), confidence responding to families’ psychosocial needs, and psychological, clinical role, and sociodemographic factors were also assessed. Informed by theory, hierarchical linear regression was used to identify factors associated with family-centered care.ResultsThere were 212 clinicians (177 women [84.3%]; 153 nurses [72.2%], 32 physicians [15.1%], 22 allied and mental health professionals [10.4%], 5 surgeons [2.3%]; 170 [80.2%] aged 20-49 years) who participated (55% response rate). Of the 4 family-centered care domains, scores for treating people respectfully were highest and associated with greater clinician confidence responding to families’ psychosocial needs (effect size [β], 0.59 [95% CI, 0.46 to 0.72]; P &lt; .001), lower depersonalization (β, 0.04 [95% CI, −0.07 to −0.01]; P = .02), and a greater sense of personal accomplishment at work (β, 0.02 [95% CI, 0.01 to 0.04]; P = 0.04). Greater interpersonal sensitivity was associated with greater confidence responding to families’ psychosocial needs (β, 0.80 [95% CI, 0.62 to 0.97]; P &lt; .001), a greater sense of personal accomplishment at work (β, 0.03 [95% CI, 0.01 to 0.05]; P = .04), and lower use of approach-based coping, such as problem-solving (β, 0.37 [95% CI, −0.71 to −0.02]; P = .04).Conclusions and RelevanceIn this cross-sectional study, burnout and confidence responding to families’ psychosocial needs were associated with clinicians’ perceptions of family-centered care. These findings suggest that targeted interventions to address these factors may benefit clinicians and also potentially strengthen the practice of family-centered care in pediatric and congenital heart settings.

show abstract

How should we understand family-centred care?

Cited by 64 publications

References 11 publications

Tokenism or true partnership: Parental involvement in a child’s acute pain care

Tokenism or true partnership: Parental involvement in a child’s acute pain care

Issues in Implementing Family Centred Care in Pediatrics and New Approaches

Clinician Perceptions of Family-Centered Care in Pediatric and Congenital Heart Settings

Contact Info

Product

Resources

About