How Should Social Media Be Used in Transplantation? A Survey of the American Society of Transplant Surgeons

Henderson, Macey L.; Adler, Joel T.; Rasmussen, Sarah E. Van Pilsum; Thomas, Alvin G.; Herron, Patrick D.; Waldram, Madeleine M.; Ruck, Jessica M.; Purnell, Tanjala S.; DiBrito, Sandra R.; Holscher, Courtenay M.; Haugen, Christine E.; Alimi, Yewande; Konel, Jonathan; Eno, Ann K.; Gordon, Elisa J.; Lentine, Krista L.; Schaffer, Randolph; Cameron, Andrew M.; Segev, Dorry L.

doi:10.1097/tp.0000000000002243

Cited by 30 publications

(25 citation statements)

References 29 publications

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“…A survey among members of the American Society of Transplant Surgeons indicated that among 299 physicians who completed the survey, 59% use social media to communicate with surgeons, 57% with transplant professionals, 21% with transplant recipients, 16% with living donors, and 15% with waitlisted candidates. Younger age and fewer years of experience in transplantation were significantly associated with a stronger belief that social media may be influential in living organ donation [22].…”

Section: Discussionmentioning

confidence: 97%

Is There Decreasing Public Interest in Renal Transplantation? A Google TrendsTM Analysis

Kronbichler

Effenberger

Smıth

et al. 2020

JCM

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Background and objectives: Renal transplantation is the preferred form of renal replacement therapy for the majority of patients with end stage renal disease (ESRD). The Internet is a key tool for people seeking healthcare-related information. This current work explored the interest in kidney transplantation based on Internet search queries using Google Trends TM . Design, setting, participants, and measurements: We performed a Google Trends TM search with the search term "kidney transplantation" between 2004 (year of inception) and 2018. We retrieved and analyzed data on the worldwide trend as well as data from the United Network for Organ Sharing (UNOS), the Organización Nacional de Trasplantes (ONT), the Eurotransplant area, and the National Health Service (NHS) Transplant Register. Google Trends TM indices were investigated and compared to the numbers of performed kidney transplants, which were extracted from the respective official websites of UNOS, ONT, Eurotransplant, and the NHS. Results: During an investigational period of 15 years, there was a significant decrease of the worldwide Google Trends TM index from 76.3 to 25.4, corresponding to an absolute reduction of −50.9% and a relative reduction by −66.7%. The trend was even more pronounced for the UNOS area (−75.2%), while in the same time period the number of transplanted kidneys in the UNOS area increased by 21.9%. Events of public interest had an impact on the search queries in the year of occurrence, as shown by an increase in the Google Trends TM index by 39.2% in the year 2005 in Austria when a person of public interest received his second live donor kidney transplant. Conclusions: This study indicates a decreased public interest in kidney transplantation. There is a clear need to raise public awareness, since transplantation represents the best form of renal replacement therapy for patients with ESRD. Information should be provided on social media, with a special focus on readability and equitable access, as well as on web pages.

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Section: Discussionmentioning

confidence: 97%

Is There Decreasing Public Interest in Renal Transplantation? A Google TrendsTM Analysis

Kronbichler

Effenberger

Smıth

et al. 2020

JCM

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“…In this age of social media, these apparent differences in the management and definitions of medical futility can be quickly amplified in the public forum. [27][28][29] From a systems viewpoint, to support ICOD in Singapore we need to reevaluate our training of clinical personnel, optimise current management structure and regulatory frameworks, and garner support from the various institutions and the ministry. 30 A suggested workflow to reduce missed opportunities for organ donation in the ED is presented in Figure 2.…”

Section: Discussionmentioning

confidence: 99%

Missed opportunities for organ donation in patients with intracranial haemorrhage at the emergency department: A single-centre study

Pek

et al. 2019

Proceedings of Singapore Healthcare

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Background: The demand for transplantable organs has increased in Singapore. However, organ donation has been consistently lower than international standards. Donation after brain death (DBD) most commonly follows intracranial haemorrhage (ICH). Objective: Our aim was to identify missed opportunities for organ donation among those who presented to the Emergency Department (ED) and died following ICH. Methods: A retrospective study was carried out for all cases of ICH presenting to the ED from 1 January 2013 to 31 December 2017. The patients' medical records were reviewed for identification of potential donors and actualisation of organ donation. Results: There were 615 cases of ICH, with a mortality rate of 6.0%. Among those who died, 28 (75.7%) died in the Intensive Care Unit (ICU) and nine (24.3%) patients had withdrawal of care in the ED. Thirty patients (81.1%) were potential donors but organ donation was actualised in only three (8.1%) patients. Thirteen organs, as well as heart valves and iliac vessels were retrieved from the organ donors for transplantation. Conclusion: There were missed opportunities for organ donation. EDs have an important role to play in the national organ donation programme by identifying potential donors for organ donation and considering admitting these patients to ICU to facilitate organ donation.

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“…Extensive psychological screening to assess motivation has been suggested for potential living donors coming forward from social media as one way to reduce risks for illegal activity and safeguard the integrity of the process. 12 Transplant hospitals and professionals hold a unique and powerful role to help patients effectively and ethically leverage social media to find a living donor, provide education, promote access, and address potential disparities at various stages on the path to a life-saving organ transplant. 10,12 Article Information…”

Section: Mitigating Challenges and Harnessing Opportunities With Socimentioning

confidence: 99%

“…12 Transplant hospitals and professionals hold a unique and powerful role to help patients effectively and ethically leverage social media to find a living donor, provide education, promote access, and address potential disparities at various stages on the path to a life-saving organ transplant. 10,12 Article Information…”

Section: Mitigating Challenges and Harnessing Opportunities With Socimentioning

confidence: 99%

Social Media and Kidney Transplant Donation in the United States: Clinical and Ethical Considerations When Seeking a Living Donor

Henderson¹,

Herbst²,

Love³

2020

American Journal of Kidney Diseases

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A Twitter post showing a man in a sports jersey holding a sign telling of his need for a kidney went "viral." After the sports team's official account retweeted the original post, hundreds of thousands of Twitter users engaged with the tweet and many replied to the tweet asking about being a directed living kidney donor for the man pictured. A waitlist patient's Facebook post about their need for a living donor is seen by 100 local friends. Ten people contact the transplantation center mentioned in the post to initiate donor screening and evaluation. Can both of these patients get the kidney they need by using social media? Complete author and article information provided before references.

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How Should Social Media Be Used in Transplantation? A Survey of the American Society of Transplant Surgeons

Abstract: Transplant center involvement and support for social media may influence clinician perceptions and practices. Increasing use of social media among transplant professionals may provide an opportunity to deliver high quality information to patients.

Cited by 30 publications

References 29 publications

Is There Decreasing Public Interest in Renal Transplantation? A Google TrendsTM Analysis

Is There Decreasing Public Interest in Renal Transplantation? A Google TrendsTM Analysis

Missed opportunities for organ donation in patients with intracranial haemorrhage at the emergency department: A single-centre study

Social Media and Kidney Transplant Donation in the United States: Clinical and Ethical Considerations When Seeking a Living Donor

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