How professionals can share power with families: Practical approaches to working with families of the mentally ill.

Spaniol, LeRoy; Zipple, Anthony M.; Fitzgerald, Stephanie

doi:10.1037/h0099630

Cited by 41 publications

(40 citation statements)

References 8 publications

(13 reference statements)

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“…Collins and Collins (1990) concluded that many parent self-help groups and consumer's groups such as National Alliance for the Mentally Ill (NAMI) have formed because of parents' perception of a lack of power over their children's treatment. Although no speci c research was found that addressed the impact of blaming on parent involvement during their child's hospitalization , related research and expert opinion suggest this as a possible factor (Baker, Heller, Blacher, & Pfeiffer, 1995;Biegel, Song, & Milligan, 1995;Spaniol, Zipple, & Fitzgerald, 1994;Tessler, Gamache, & Fisher, 1991). The belief that parents are responsible for their children's disturbances has in uenced the nursing care of children on child psychiatric units, the parents' involvement, and the staff's responses to parents for many years and may still be a factor in parents' decision to manage the hospitalizatio n by having minimal contact with the staff.…”

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confidence: 97%

What Parents of Mentally Ill Children Need and Want From Mental Health Professionals

Schärer

2002

Issues in Mental Health Nursing

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Child psychiatric hospitalization is a time of crisis for the parents of a child with a mental disorder. Prior to hospitalization, the child's problematic behavior has escalated. Parents have various types of contact with mental health professionals prior to, during, and after the hospitalization, which influence their ability to care for their child. This paper reports a qualitative descriptive study of what parents need and want from mental health professionals during this time frame. During the study, parents spontaneously talked about what they needed and wanted from mental health professionals, including nursing personnel. The perspectives of 38 parents of 29 hospitalized children were obtained through interviews. Parents identified needing informational, emotional, and instrumental support most often in the interviews. Specific examples from the data are included in this report.

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confidence: 97%

What Parents of Mentally Ill Children Need and Want From Mental Health Professionals

Schärer

2002

Issues in Mental Health Nursing

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“…although Gottlieb (1985) has argued in favour of assessing (Spaniol et al 1984, Lefley 1988, Bawden 1990, Baker & Douglas 1990, Burns et al 1991. This trend is acknowl-the role of social support in coping with stress.…”

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confidence: 99%

Perceived social support and community adaptation in schizophrenia

Clinton¹,

Lunney²,

Edwards³

et al. 1998

J Adv Nurs

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Prompted by the continuing transition to community care, mental health nurses are considering the role of social support in community adaptation. This article demonstrates the importance of distinguishing between kinds of social support and presents findings from the first round data of a longitudinal study of community adaptation in 156 people with schizophrenia conducted in Brisbane, Australia. All clients were interviewed using the relevant subscales of the Diagnostic Interview Schedule to confirm a primary diagnosis of schizophrenia. The study set out to investigate the relationship between community adaptation and social support. Community adaptation was measured with the Brief Psychiatric Rating Scale (BPRS), the Life Skills Profile (LSP) and measures of dissatisfaction with life and problems in daily living developed by the authors. Social support was measured with the Arizona Social Support Interview Schedule (ASSIS). The BPRS and ASSIS were incorporated into a client interview conducted by trained interviewers. The LSP was completed on each client by an informal carer (parent, relative or friend) or a professional carer (case manager or other health professional) nominated by the client. Hierarchical regression analysis was used to examine the relationship between community adaptation and four sets of social support variables. Given the order in which variables were entered in regression equations, a set of perceived social support variables was found to account for the largest unique variance of four measures of community adaptation in 96 people with schizophrenia for whom complete data are available from the first round of the three-wave longitudinal study. A set of the subjective experiences of the clients accounted for the largest unique variance in measures of symptomatology, life skills, dissatisfaction with life, and problems in daily living. Sets of community support, household support and functional variables accounted for less variance. Implications for mental health nursing practice are considered.

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“…C'est dans ce contexte que des chercheurs et chercheures ont mis en relief le fardeau que représentent, pour les parents, les difficultés d'interaction avec le système de soins et l'inadéquation des ressources communautaires par rapport à leurs besoins (Carpentier et al, 1992;Francell et al, 1988;Gubman et Tessler, 1987;Holden et Lewine, 1982;Lefley, 1987bLefley, , 1989McElroy, 1987aMcElroy, , 1987bSpaniol et al, 1984). Ceux et celles qui se sont intéressés à connaître ce que les familles attendaient du système de soins par rapport aux troubles de leur parent ont fait ressortir de façon cohérente qu'elles désiraient: 1) dès le début de l'apparition des troubles, de l'information en ce qui a trait aux symptômes, au traitement (principalement l'administration de la médi-cation et ses effets secondaires) et au pronostic; 2) des conseils pratiques sur la gestion des épisodes psychotiques et sur la vie quotidienne avec leur parent, lors de visites à domicile ou autrement; 3) une continuité dans le soin offert; et 4) le développement de ressources communautaires (Bernheim et Switalski, 1988;Gregory, 1989;Guberman et al, 1991;Hatfield, 1979aHatfield, , 1979bHatfield, , 1987aMacCarthy et al, 1989;StOnge et Lavoie, 1987;Tessler et al, 1991;Zirul et al, 1989).…”

Section: Les Soins Professionnels Et Les Personnes-soutiensunclassified

Les difficultées perçues par des mères de personnes atteintes de troubles psychotiques face au système de soins professionnels

St-Onge¹,

Lavoie²,

Cormier³

2007

smq

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Le présent article décrit les difficultés que des mères de personnes présentant des troubles psychotiques perçoivent à l'égard du système de soins. Les 99 participantes interviewées ont été recrutées par l'intermédiaire de groupes d'entraide et de centres hospitaliers. Leurs principales sources de dérangement, outre l'impression d'être laissées à elles-mêmes pour s'occuper de leur enfant, sont que leur enfant n'a pas accès à une ressource d'intégration au travail, que le suivi thérapeutique, autre que médicamenteux, est inadéquat, et qu'elles ne reçoivent pas de bilan de son état de santé. Les mères membres d'un groupe d'entraide sont significativement plus dérangées par les difficultés reliées au système de soins que celles qui ne font pas partie d'un tel groupe. À la lumière des commentaires des participantes et des experts et expertes, des suggestions en vue d'améliorer la collaboration entre l'équipe de soins et les familles, ainsi que les services existants, sont émises.This article describes the difficulties perceived by mothers of people suffering from psychotic problems when coping with the healthcare system. The 99 interviewees were recruited through mutual help groups and hospitals. In addition to feeling left to themselves to care for their child, their main grievances relate to the fact that their child does not have access to workforce integration resources, that therapeutic followup (non-drug related) is inadequate and that they do not receive updates on the state of health of their child. Mothers belonging to mutual help groups are significantly more upset about the difficulties they encounter when coping with the healthcare system, in comparison to mothers who do not belong to such groups. In light of comments by experts and the interviewees, the authors make suggestions designed to improve existing services, as well as collaboration between healthcare teams and the families concerned

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How professionals can share power with families: Practical approaches to working with families of the mentally ill.

Cited by 41 publications

References 8 publications

What Parents of Mentally Ill Children Need and Want From Mental Health Professionals

What Parents of Mentally Ill Children Need and Want From Mental Health Professionals

Perceived social support and community adaptation in schizophrenia

Les difficultées perçues par des mères de personnes atteintes de troubles psychotiques face au système de soins professionnels

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