2013
DOI: 10.1007/s40271-013-0030-3
|View full text |Cite
|
Sign up to set email alerts
|

How Illness Affects Family Members: A Qualitative Interview Survey

Abstract: Purpose Spillover effects of illness on family members can be substantial. The purpose of this study was to identify the domains of family members’ health and well-being that are affected when a relative has a chronic health condition. Methods Semi-structured telephone interviews were conducted in February, 2012 with 49 individuals whose relatives had any of five chronic health conditions (arthritis, cancer, Alzheimer’s disease/dementia, cerebral palsy, and depression), purposively sampled to include differe… Show more

Help me understand this report

Search citation statements

Order By: Relevance

Paper Sections

Select...
2
2
1

Citation Types

2
77
0
2

Year Published

2014
2014
2023
2023

Publication Types

Select...
6
2

Relationship

2
6

Authors

Journals

citations
Cited by 84 publications
(81 citation statements)
references
References 36 publications
2
77
0
2
Order By: Relevance
“…Our results quantify the effect of migraine on individuals across a range of domestic and romantic relationships, parenting, finance, educational attainment, and career domains, including perceived effects on spouses'/partners' careers and finances, illustrating the far‐reaching, detrimental effect of the disease. Research in other disease states had demonstrated that the impact of chronic illness can extend beyond the individual to family members . For example, chronic obstructive pulmonary disease, diabetes, and mental illness can all have a negative impact on family well‐being, including individuals other than the proband.…”
Section: Discussionmentioning
confidence: 99%
“…Our results quantify the effect of migraine on individuals across a range of domestic and romantic relationships, parenting, finance, educational attainment, and career domains, including perceived effects on spouses'/partners' careers and finances, illustrating the far‐reaching, detrimental effect of the disease. Research in other disease states had demonstrated that the impact of chronic illness can extend beyond the individual to family members . For example, chronic obstructive pulmonary disease, diabetes, and mental illness can all have a negative impact on family well‐being, including individuals other than the proband.…”
Section: Discussionmentioning
confidence: 99%
“…In a separate study that conducted qualitative interviews of a subsample of survey respondents, parents' psychological distress was seemingly rooted in their concern for their child's present and future well-being and health outcomes. Parents of ill children reported that their child's illness was more all consuming compared to those of an ill spouse or parent due to the dependent nature of the parent-child relationship [30]. The greater magnitude of spillover associated with a child's illness may also be explained in part by research demonstrating that people place a higher value on gains in child health compared to adult health [31, 32].…”
Section: Discussionmentioning
confidence: 99%
“…(33, 34) However, there is evidence that the illness of a family member has substantial effects on a caregiver’s quality of life beyond the physical impact of caregiving and that illness also affects family members who have less of a role in caregiving. (35) Such spillover effects can be related to both the physical effects of caregiving as well as the emotional effects of having an ill family member. (36) The magnitude of these quality of life effects for caregivers and other family members has not been well-documented and the literature shows that spillover varies by condition and relationship.…”
Section: The Family Contextmentioning
confidence: 99%