How engagement of a diverse set of stakeholders shaped the design, implementation, and dissemination of a multicenter pragmatic trial of stroke transitional care: The COMPASS study

Gesell, Sabina B.; Coleman, Sylvia; Mettam, Laurie H.; Johnson, Anna; Sissine, Mysha; Duncan, Pamela W.

doi:10.1017/cts.2020.552

Cited by 3 publications

(4 citation statements)

References 26 publications

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“…Gesell 2021 (Literature article) [51] Created a statewide stakeholder committee to contribute to design, conduct, and dissemination of findings of a multicenter pragmatic clinical trial. The committee added, shaped, and refined intervention components and all patient-and provider-facing materials.…”

Section: Data Source Patient Engagement Level: Cooperation Examples (...mentioning

confidence: 99%

“…For example, many of the activities categorized under "coordination"-a lower intensity engagement activity-and "collaboration"-a higher intensity engagement activity-involved assembling patient advisory groups. Upon closer review, there were processes and roles in those activities we considered collaboration that signaled a deeper, longer, and more patient-centered approach, such as being involved in all phases of implementation (e.g., Browne 2020, literature article), [48] serving in roles with more power or voice (e.g., Participant Interview 1), and patients seeing how their input was incorporated (e.g., Gesell 2021, literature article) [51].…”

Section: Data Source Patient Engagement Level: Community-based Partic...mentioning

confidence: 99%

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Challenges and promising solutions to engaging patients in healthcare implementation in the United States: an environmental scan

Woodward,

Castillo,

True

et al. 2024

BMC Health Serv Res

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Background One practice in healthcare implementation is patient engagement in quality improvement and systems redesign. Implementers in healthcare systems include clinical leadership, middle managers, quality improvement personnel, and others facilitating changes or adoption of new interventions. Patients provide input into different aspects of health research. However, there is little attention to involve patients in implementing interventions, especially in the United States (U.S.), and this might be essential to reduce inequities. Implementers need clear strategies to overcome challenges, and might be able to learn from countries outside the U.S. Methods We wanted to understand existing work about how patients are being included in implementation activities in real world U.S. healthcare settings. We conducted an environmental scan of three data sources: webinars, published articles, and interviews with implementers who engaged patients in implementation activities in U.S. healthcare settings. We extracted, categorized, and triangulated from data sources the key activities, recurring challenges, and promising solutions using a coding template. Results We found 27 examples of patient engagement in U.S. healthcare implementation across four webinars, 11 published articles, and seven interviews, mostly arranging patient engagement through groups and arranging processes for patients that changed how engaged they were able to be. Participants rarely specified if they were engaging a population experiencing healthcare inequities. Participants described eight recurring challenges; the two most frequently identified were: (1) recruiting patients representative of those served in the healthcare system; and (2) ensuring processes for equitable communication among all. We matched recurring challenges to promising solutions, such as logistic solutions on how to arrange meetings to enhance engagement or training in inclusivity and power-sharing. Conclusion We clarified how some U.S. implementers are engaging patients in healthcare implementation activities using less and more intensive engagement. It was unclear whether reducing inequities was a goal. Patient engagement in redesigning U.S. healthcare service delivery appears similar to or less intense than in countries with more robust infrastructure for this, such as Canada and the United Kingdom. Challenges were common across jurisdictions, including retaining patients in the design/delivery of implementation activities. Implementers in any region can learn from those in other places.

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Section: Data Source Patient Engagement Level: Cooperation Examples (...mentioning

confidence: 99%

Section: Data Source Patient Engagement Level: Community-based Partic...mentioning

confidence: 99%

Challenges and promising solutions to engaging patients in healthcare implementation in the United States: an environmental scan

Woodward,

Castillo,

True

et al. 2024

BMC Health Serv Res

View full text Add to dashboard Cite

show abstract

“…Community-academic partnerships facilitate different voices and perspectives at all phases of the research process, from design to dissemination. The co-creation of knowledge via the engagement of relevant stakeholders in an active and committed decision-making process about a health issue is expected to lead to more meaningful research outcomes for patients, care providers, and communities [ 8 , 11 , 12 ].…”

Section: Introductionmentioning

confidence: 99%

“…The active dissemination of research that prioritises interactions with non-academic stakeholders is a core principle of CBPR [ 20 ]. However, literature reporting specific outputs from community dissemination is still scarce [ 8 , 11 , 20 , 21 ]. The contributions of non-academic stakeholders are described less frequently in reports on dissemination and implementation research [ 8 ].…”

Section: Introductionmentioning

confidence: 99%

The We Can Quit2 Smoking Cessation Trial: Knowledge Exchange and Dissemination Following a Community-Based Participatory Research Approach

Castelló

Darker

Vance

et al. 2022

IJERPH

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Background: ‘We Can Quit2’ pilot randomised controlled trial determined the feasibility [of conducting a community-based trial of We Can Quit, a peer-delivered stop-smoking programme (group support, combination nicotine replacement therapy (NRT), and tailored individual support) for women living in socioeconomically disadvantaged areas in Ireland. Lessons from a knowledge exchange (KE) workshop that reengaged trial stakeholders are presented. Methods: The trial dissemination plan included invitation of community, regional and national stakeholders (n = 176) to a KE interactive workshop, who received an accessible brief beforehand. Trial findings were presented. Enhancements to community engagement, participants’ recruitment and retention, and policy priorities arising from the research were discussed. Field notes and responses to a post-event anonymous questionnaire were analysed using thematic content analysis. Results: Workshop attendees (41/176, 23%) recommended: dedicated additional time to engage community stakeholders; social prescribing pathways to enhance recruitment; more adaptation of trial-related information and assistance in completion of data forms for low literacy individuals; encouraging women to join healthy community programmes to facilitate retention and sustainability; removal of barriers to access NRT; and ongoing provision of cessation services tailored to disadvantaged groups. Conclusions: The findings are relevant to the implementation of other community-based health interventions for disadvantaged groups, to policy makers and to service providers.

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Designing and Conducting Q Methodology in Implementation Research: A Methodological Discussion

Younas,

Maddigan,

Moore

et al. 2024

Glob Implement Res Appl

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How engagement of a diverse set of stakeholders shaped the design, implementation, and dissemination of a multicenter pragmatic trial of stroke transitional care: The COMPASS study

Abstract: This version may be subject to change during the production process.

Cited by 3 publications

References 26 publications

Challenges and promising solutions to engaging patients in healthcare implementation in the United States: an environmental scan

Challenges and promising solutions to engaging patients in healthcare implementation in the United States: an environmental scan

The We Can Quit2 Smoking Cessation Trial: Knowledge Exchange and Dissemination Following a Community-Based Participatory Research Approach

Designing and Conducting Q Methodology in Implementation Research: A Methodological Discussion

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