How does the intervention of cardiac surgery affect the self‐perception of children with congenital heart disease?

Wray, J; Sensky, Tom

doi:10.1046/j.1365-2214.1998.00058.x

Cited by 40 publications

(39 citation statements)

References 26 publications

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“…Physicians and nurses were recruited through the Cardiac Center at CHOP. Three nominal groups of each of children (age 8-12), adolescents (age [13][14][15][16][17][18], parents of children, and parents of adolescents, and two panels of providers (physicians and nurses) were convened. Age 13 was chosen as the cutoff between the child and adolescent groups based on pubertal norms in the male and female teenage population [34].…”

Section: Nominal Group Methodologymentioning

confidence: 99%

“…The pilot instruments were distributed to children (age 8-12) and adolescents (age [13][14][15][16][17][18] [36,37]. Missing, ambiguous, and erroneous data from pilot instrument completion was modified by procedures decided on prior to data collection.…”

Section: Feasibility Assessment and Item Reductionmentioning

confidence: 99%

“…This division of content resulted in four forms-two age-specific forms with parent-proxy reporting (Child Form (age 8-12), Parent of Child Form, Adolescent Form (age [13][14][15][16][17][18], and Parent of Adolescent Form). From 274 discrete items, a 30-item pilot child questionnaire was developed with a Flesch-Kincaid Reading Level at the 3rd grade.…”

Section: Item and Pilot Instrument Creationmentioning

confidence: 99%

“…Morbidity related to the specific cardiac abnormality and to the medical and surgical treatment received by the child has physical and psychological effects on the child and family. Several studies delineate the effects of congenital and acquired heart disease on neurodevelopmental outcome [3][4][5][6][7][8], physical functioning [9][10][11][12][13][14], and psychosocial functioning [15][16][17] in both children and adolescents. It is not known how these deficits combine to affect the quality of life (QOL) of a child or adolescent with heart disease.…”

Section: Introductionmentioning

confidence: 99%

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The development of the pediatric cardiac quality of life inventory: a quality of life measure for children and adolescents with heart disease

et al. 2008

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Section: Nominal Group Methodologymentioning

confidence: 99%

Section: Feasibility Assessment and Item Reductionmentioning

confidence: 99%

Section: Item and Pilot Instrument Creationmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

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The development of the pediatric cardiac quality of life inventory: a quality of life measure for children and adolescents with heart disease

et al. 2008

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“…Because of the harsher conditions in the past, it may well be that the current adult survivors of CHD represent a selection of only the most resilient individuals. In a study by Wray et al [57] children who perceived themselves as more "weak" or "miserable" before surgery were less likely to survive. Today's adults with CHD are these survivors.…”

Section: Preventive Strategies and Protective Factorsmentioning

confidence: 99%

Depression in adults with congenital heart disease-public health challenge in a rapidly expanding new patient population

Pauliks¹

2013

WJC

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There is a growing population of adults with congenital heart disease (CHD) due to improved survival beyond childhood. It has been suggested that adults with CHD may be at increased risk for mental health problems, particularly depression. The reported incidence of depression in CHD varies from 9% to 30%. This review examines the evidence for a higher depression rate in CHD vs general population. Possible explanations are offered from a variety of disease models, ranging from brain injury to the psychoanalytical approach. Risk factors for an abnormal emotional adjustment and depression include early exposure to stress from illness and medical interventions in infancy, separation from the parents during hospitalizations and brain organic syndromes. Later in life, patients often have to cope with physical limitations. Recent improvements in care may be protective. Current patients may benefit from an earlier age at first surgical intervention, fewer reoperations and inclusion to the mainstream schooling, among other factors. At this point, there is little systematic knowledge about evidence-based therapeutic interventions for depression in adults with CHD. Health care providers of patients with CHD should be aware of mental health challenges and may take a more proactive approach to identifying patients at risk for depression.

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Anorexia nervosa in a postoperative patient with Ebstein's anomaly

Sato,

Watanabe,

Okada

et al. 2023

PCN Reports

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BackgroundAlong with the improved prognosis of patients with congenital heart disease, the associated diverse complications are under scrutiny. Due to various medical restrictions on their upbringing, patients with congenital heart disease often have coexisting mental disorders. However, reports on patients with congenital heart disease and coexisting eating disorders are rare. Here, we report the case of a patient who developed anorexia nervosa (AN) following surgery for Ebstein's anomaly.Case PresentationA 21‐year‐old female with Ebstein's anomaly who underwent Fontan surgery was transferred to our institution with suspected AN after >2 years of intermittent stays at a medical hospital for decreased appetite. Initially, she did not desire to lose weight or fear obesity, and we suspected that she was suffering from appetite loss due to a physical condition associated with Fontan circulation. However, the eating disorder pathology gradually became more apparent.ConclusionOur experience suggests that patients with congenital heart disease are more likely to have a psychological background and physical problems that might contribute to eating disorders than the general population.

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How does the intervention of cardiac surgery affect the self‐perception of children with congenital heart disease?

Cited by 40 publications

References 26 publications

The development of the pediatric cardiac quality of life inventory: a quality of life measure for children and adolescents with heart disease

The development of the pediatric cardiac quality of life inventory: a quality of life measure for children and adolescents with heart disease

Depression in adults with congenital heart disease-public health challenge in a rapidly expanding new patient population

Anorexia nervosa in a postoperative patient with Ebstein's anomaly

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