How do we incorporate patient views into the design of healthcare services for older people: a discussion paper

Brocklehurst, Paul; McKenna, Gerald; Schimmel, Martín; Kossioni, Anastassia; Jerković-Ćosić, Katarina; Hayes, Martina; Mata, Cristiane da; Müller, Frauke

doi:10.1186/s12903-018-0513-7

Cited by 26 publications

(18 citation statements)

References 50 publications

(31 reference statements)

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“…Accordingly, coproduction shifts the design process away from the traditional “top-down” medical model to, instead, focus on an inductive paradigm of partnership working and shared leadership. For instance, Brocklehurst et al (2018) discuss methodological approaches , such as priority setting partnerships or the experience-based codesign. These methods facilitate partnerships between researchers, healthcare professionals and patients to produce more responsive and appropriate public services for older people.…”

Section: Resultsmentioning

confidence: 99%

Coproduction and cocreation in public care services: a systematic review

Lopes

Alves

2020

IJPSM

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PurposeTo analyze and discuss the research on the public healthcare services (PHCS) through the lenses of coproduction/creation by systematizing the antecedents, the process enablers and the outcomes of coproduction/creation in terms of organizational and individual/patients factors.Design/methodology/approachA systematic review was performed based on 46 papers found in ISI Web of Science and Scopus databases following the Prisma Protocol for the search.FindingsThe results show that antecedents of coproduction/creation are connected to organizational/institutional capabilities (e.g. codesign of services or trust development) or patient/individual factors (e.g. physical and mental capabilities). The process of coproduction/creation relates with enablers, such as interactive and dynamic relationships between public care service providers and users. Finally, outcomes have diverse nature, namely quality of life, compliance, behavioral intentions, among others.Research limitations/implicationsThis study addresses the overlooked topic of coproduction/creation of value within PHCS. It contributes to public healthcare services literature wherein concepts of coproduction and cocreation of value are still on debate. It contributes to the transformative service research (TSR) by underlining that healthcare factors, processes and approaches may have a positive or negative (value codestructing) influence on the well-being. It yields crucial implications for PHCS.Originality/valueIt is the first attempt to systematize scientific knowledge on this topic, therefore conferring some novelty potential.

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Section: Resultsmentioning

confidence: 99%

Coproduction and cocreation in public care services: a systematic review

Lopes

Alves

2020

IJPSM

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“…The patient's perspective is rarely incorporated into the design and execution of multidisciplinary care [22][23][24]. In order to explore ways to structurally involve patient perspectives in the organisation of their care, we were interested in how older people themselves experience their care networks; little is known about frail older patients' experiences with, and perception of, their multidisciplinary care networks [25,26].…”

Section: Introduction Contextmentioning

confidence: 99%

Professional Care Networks of Frail Older People: An Explorative Survey Study from the Patient Perspective

et al. 2020

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Key pointsPatient participation is high on the public agenda, but multidisciplinary teams who offer care to frail older people find it hard to incorporate patients views in their way of working. Our study focused on the care network of the older patient, and more specific on the role of the informal caregiver. In many networks, the informal caregiver was not or only moderately connected with professional actors. Elderly care networks can be rather vulnerable because the power (knowledge, contacts) lies entirely with the patient. Our study suggests that it would be relatively easy to develop materials to enable professionals to map the patient care network, which could then be used as the basis of conversations about the organisation of care, Background: Frail older people living in the community require multidisciplinary care. Despite the fact that patient participation is high on the public agenda, studies into multidisciplinary care mainly focus on the viewpoints of professionals. Little is known about frail older patients' experiences with care delivered by multidisciplinary teams and their perception of collaboration between professional and informal caregivers. Objective: To gain more insight into the experiences of frail older patients with integrated multidisciplinary care by mapping the care networks of this patient group and their perception of the interconnection between professional and informal caregivers. Methods: Survey study to facilitate a care network analysis. Due to the vulnerable health status of the respondents, questionnaires were completed during interviews. Analysis was performed using an iterative process, using both visual and metric techniques. Participants: 44 older persons, considered 'frail' by their general practitioner. Setting: Four general practices in The Netherlands. Results: The networks of the participants consisted of an average of 15 actors connected by 54 ties. General practitioners were the most common actors in the networks, and were well connected to medical specialists and in-home care providers. The participants did not always perceive a connection between their general practitioner and their informal caregiver. The network analyses resulted in the identification of three subtypes: simple star (n = 16), complex star (n = 16), and sub-group networks (n = 12). Conclusions: Our findings indicate that the elderly often do not experience the integration of multidisciplinary care as such. This is a real opportunity for MTs to improve their care and to make the patients' experiences better in line with what they are aiming: allowing patients to live at home as healthy and independently as possible for as long as possible. We showed that informal caregivers often form communication bridges between patients and professionals. Having a better knowledge of the patient perspective enables the gaps in professional care networks of frail older people to be filled and facilitates the anticipation of crisis situations.

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“…Dependent people may suffer from numerous health conditions, including those which affect their oral health by predisposing them to dental caries, periodontal disease and other pathologies that may lead to the loss of teeth . Rest home residents require a different approach to health care services from community‐dwelling elderly people …”

Section: Introductionmentioning

confidence: 99%

“…2 Rest home residents require a different approach to health care services from community-dwelling elderly people. 3 It is predicted that by 2020, there will be more than one million elderly people living in New Zealand, 1 most of whom will have retained some natural teeth because the trend is for fewer people to become edentulous. [4][5][6] This number of people poses challenges for providing oral health care and maintaining oral health in the ageing population.…”

Section: Introductionmentioning

confidence: 99%

Access and barriers to oral health care for dependent elderly people living in rest homes

et al. 2019

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Aim To report New Zealand rest home (rest home is the New Zealand term for residential aged care facilities where dependent, institutionalised, elderly people reside.) managers’ opinions on access and barriers to oral health care for rest home residents. Methods An exploratory study using qualitative descriptive methods. Eleven rest home managers in a region of New Zealand were interviewed about admission assessments for new residents, oral health care, availability of dental facilities, staff training in oral hygiene, residents’ nutritional needs and oral hygiene aids. Results Interviews with managers indicated that rest homes have no policies for the provision of oral health care and only arrange dental check‐ups or treatment when requested by residents or family. Barriers to accessing care include making appointments, availability of staff and transport particularly for bedridden patients. Staff receive basic oral hygiene training only and face resistance to oral hygiene from some residents. No homes had a dental chair at their premises. All rest homes stocked oral hygiene aids such as toothbrushes and toothpastes. Electric toothbrushes were not generally promoted with cost being a key factor. Conclusion While rest home managers were aware of the importance of good oral health, there are barriers to care. Finance is a challenge as dental care is not publicly funded and many residents rely on a limited income. Recommendations include policy changes to better fund oral health, specific oral health training for rest home staff, provision of mobile dental services to rest homes and the inclusion of gerodontology in the dental school curriculum.

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How do we incorporate patient views into the design of healthcare services for older people: a discussion paper

Cited by 26 publications

References 50 publications

Coproduction and cocreation in public care services: a systematic review

Coproduction and cocreation in public care services: a systematic review

Professional Care Networks of Frail Older People: An Explorative Survey Study from the Patient Perspective

Access and barriers to oral health care for dependent elderly people living in rest homes

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