How do patients with rheumatic disease experience their relationship with their doctors?

Haugli, Liv; Strand, Elin Bolle; Finset, Arnstein

doi:10.1016/s0738-3991(03)00023-5

Cited by 86 publications

(43 citation statements)

References 12 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…There has been much work into patient attitudes towards information provision, and how this relates to their preferences for involvement in decision making [17,18]. In a study into decision making among women with RA, at the important phase of ‘knowledge acquisition’, patients want ‘ample information about the medication presented in a straightforward way’ [11].…”

Section: Discussionmentioning

confidence: 99%

Patient experiences, attitudes and expectations towards receiving information about anti-TNF medication – “It could give me two heads and I’d still try it!”

Arkell¹,

Ryan²,

Brownfield³

et al. 2013

BMC Musculoskelet Disord

View full text Add to dashboard Cite

BackgroundAnti-tumour necrosis factor (anti-TNF) therapies are an important recent development in the treatment of autoimmune disease. Despite important side effects relating to immune suppression, there is lack of research into patient experiences, attitudes and expectations about the information they receive prior to starting anti-TNF therapy.MethodsIn May 2011 participants were purposively sampled to form two focus groups varying in age, anti-TNF agent and pre-therapy disease activity. A semi-structured topic guide was used to explore patients’ experiences regarding the information they received prior to commencing anti-TNF therapy. The focus groups were audio-taped and transcribed verbatim. Data were analysed using content analysis.ResultsFour key themes were identified.Firstly, weighing the risks and benefits of anti-TNF therapy. However, most participants attached limited importance to side effects, saying their strong desire for RA symptom control was overriding. Two reported deliberately concealing illness in order to continue their medication.Secondly, the desire for information. They suggested that counselling should occur at an early stage and not during a severe RA flare-up.Thirdly, the process of starting anti-TNF. Many identified that their biggest worry was whether they would be eligible for the new medication. They remembered little about the investigations they underwent, and none said they would have objected to being tested for blood borne viruses.Finally, the experience of being on anti-TNF. Most were positive, describing effects on quality of life as well as symptoms.ConclusionsThe use of qualitative methodology in this study has enabled an understanding of patients’ attitudes towards receiving information about anti-TNF therapy. The results may be useful to health professionals in terms of the timing and content of the information given to patients prior to commencing anti-TNF therapy.

show abstract

Section: Discussionmentioning

confidence: 99%

Patient experiences, attitudes and expectations towards receiving information about anti-TNF medication – “It could give me two heads and I’d still try it!”

Arkell¹,

Ryan²,

Brownfield³

et al. 2013

BMC Musculoskelet Disord

View full text Add to dashboard Cite

show abstract

“…Such discordance is likely to be common, especially in light of the “invisible” nature of pain, and it can have deleterious effects on patient satisfaction and adherence to treatment regimens. 89 …”

Section: Psychosocial Factors Influencing Pain-related Outcomesmentioning

confidence: 99%

The Role of Psychosocial Processes in the Development and Maintenance of Chronic Pain

Edwards

Dworkin

Sullivan

et al. 2016

The Journal of Pain

627

578

View full text Add to dashboard Cite

The recently-proposed ACTTION-APS Pain Taxonomy provides an evidence-based, multidimensional, chronic pain classification system. Psychosocial factors play a crucial role within several dimensions of the Taxonomy. In this paper, we discuss the evaluation of psychosocial factors that influence the diagnosis and trajectory of chronic pain disorders. We review studies in individuals with a variety of persistent pain conditions, and describe evidence that psychosocial variables play key roles in conferring risk for the development of pain, in shaping long-term pain-related adjustment, and in modulating pain treatment outcomes. We consider both “general” psychosocial variables such as negative affect, childhood trauma, and social support, as well as “pain-specific” psychosocial variables that include pain-related catastrophizing, self-efficacy for managing pain, and pain-related coping. Collectively, the complexity and profound variability in chronic pain highlights the need to better understand the multidimensional array of interacting forces that determine the trajectory of chronic pain conditions.

show abstract

“…This feeling is hardly unique. In a focus group study a few years ago patients with rheumatic diseases reported similar experiences and emphasized the importance of being seen as an individual rather than a disease entity [1]. Moreover, in an empirical test of the Four Habits communication skills training model Krupat et al found that skills in taking the patient perspective were among those performed most poorly in a sample of primary care physicians [2].…”

Section: Introductionmentioning

confidence: 99%

Emotions, narratives and empathy in clinical communication

Finset¹

2010

Int J Integr Care

Self Cite

View full text Add to dashboard Cite

How do patients with rheumatic disease experience their relationship with their doctors?

Cited by 86 publications

References 12 publications

Patient experiences, attitudes and expectations towards receiving information about anti-TNF medication – “It could give me two heads and I’d still try it!”

Patient experiences, attitudes and expectations towards receiving information about anti-TNF medication – “It could give me two heads and I’d still try it!”

The Role of Psychosocial Processes in the Development and Maintenance of Chronic Pain

Emotions, narratives and empathy in clinical communication

Contact Info

Product

Resources

About