How do family members experience drug death bereavement? A systematic review of the literature

Titlestad, Kristine Berg; Lindeman, Sari Kaarina; Lund, Hans; Dyregrov, Kari

doi:10.1080/07481187.2019.1649085

Cited by 41 publications

(70 citation statements)

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“…We argue that the checklist for reporting standards strengthens the transparency of this study and enhances the transferability of its findings to other contexts. The systematic review by Titlestad et al (2019) calls for more rigorous studies and, as recommended in this review, we have investigated and described distinctive characteristics such as the deceased's age, the time since death, whether the next of kin was aware of the drug use, and whether the deceased died after firsttime use or drug use over time.…”

Section: Methodological Issuesmentioning

confidence: 99%

“…How family members experience drug-death bereavement has hardly been investigated. A systematic review by Titlestad et al (2019) identified only seven qualitative studies from Norway, Denmark, Brazil, the US, England and Scotland (da Silva et al 2007;Grace 2012;Biong et al 2015;Nowak 2015;Biong and Thylstrup 2016;Templeton et al 2017;Feigelman et al 2020) and one quantitative study from the US (Feigelman et al 2011) which satisfied the inclusion criteria and were of good methodological quality. This systematic review suggested that family members who were aware of the drug use experienced years of uncertainty, despair, stigma, hopelessness and powerlessness before the loss.…”

Section: Introductionmentioning

confidence: 99%

“…Since there have scarcely been any empirical investigation into bereaved parents' grief following a DRD or about what help and support they need (Titlestad et al 2019), the aim of this sub-study is to explore how parents' experience drugdeath bereavement and what different kinds of help and support do they receive.…”

Section: Introductionmentioning

confidence: 99%

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Sounds of silence. The “special grief” of drug-death bereaved parents: a qualitative study

Titlestad

Mellingen

Stroebe

et al. 2020

Addiction Research & Theory

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Background: Drug-death bereavement is an understudied topic. We explore what bereaved parents experience after losing their child to drug use. The aim of the paper is to provide knowledge about what drug-death bereaved parents go through and study the kinds of help and support they receive. Method: Reflexive thematic analysis is used to analyze 14 semi-structured in-depth interviews with Norwegian parents. Results: We generated four main themes: (I) 'constant preparedness' describes the burdensome overload that the parents experienced before death; (II) 'stigmatization' represents public and self-induced stigma; (III) 'emotional overload' refers to the parents' complex and ambivalent emotions, such as anger, guilt and shock after the loss; and (IV) 'complex relations' describes the parents' relations with public services and their personal social networks. Discussion: We discuss how overload, before and after the loss experience, causes a special grief. How this overload, silence from helpers, self-stigma and complicated interactions with social networks contribute to the grief of these parents is also discussed. Potential implications for policy and practice are subsequently outlined.

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Section: Methodological Issuesmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

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Sounds of silence. The “special grief” of drug-death bereaved parents: a qualitative study

Titlestad

Mellingen

Stroebe

et al. 2020

Addiction Research & Theory

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“…Kari Dyregrov, professor, PhD, has long research experience in the bereavement field, both theoretical and empirical, and has developed a theoretical model for how to understand drug death (K. Dyregrov et al, 2019). She has interviewed parents and siblings bereaved after drug-related death.…”

Section: Declaration Of Conflicting Interestsmentioning

confidence: 99%

How Do Drug-Death-Bereaved Parents Adjust to Life Without the Deceased? A Qualitative Study

2020

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Knowledge about how bereaved persons grieve can enhance quality in providing the support and potential services that they need. We aimed to identify ways in which drug-death-bereaved Norwegian parents go on with their lives and what inhibits or promotes adaptation during their grieving. Reflexive thematic analysis was used to analyze 14 semistructured in-depth interviews. We generated three themes: (I) processing grief emotions, (II) proactive coping, and (III) giving and receiving support and assistance. Processing guilt rumination, reflections on blame and a burden of grief emotions characterized grieving early on. Using cognitive strategies and functional-support-giving were found to be the most frequently used strategies. Oscillation between processing stressors and reorientation to the world promoted adjustment to ongoing life. We discuss characteristics of parents who struggle to reorient and outline important implications for policy and practice.

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“…That heART space specifically addressed the experiences of youth is significant, since many had not found solace through mainstream mental health and bereavement services. Research about children and youths' grief from overdose is much needed (Winstanley and Stover, 2019), especially as they have an increased risk of developing psychological, physical, social and educational challenges later in life (Titlestad et al, 2019). In this way, heART space has much to offer the scholarship on curating grief and trauma by demonstrating how youth worked to build a shared sense of community in a time of crisis that centred practices of care.…”

Section: Ywud Disenfranchised Grief and Practices Of Carementioning

confidence: 99%

heART space: Curating community grief from overdose

Selfridge

Robinson

Mitchell

2021

Global Studies of Childhood

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This article details the transformation of an empty store into a gallery honouring youth and others who have passed away from overdoses, and the creation of extensive harm reduction and grief support programming that accompanied the display of artwork. The outpouring of community interest, participation, and emotion that surfaced around heART space clearly shows how art, exhibitions and creative programming can help foster communities of care during times of crisis. Drawing from research into practices of care from harm reduction work, grief studies and participatory arts and curatorial studies, the authors explore how heART space comforted youth and others with direct experiences with overdose and disenfranchised grief while creating dialogues with visitors about the stigma of drug use and homelessness. The authors argue curating heART space produced an opportunity for community healing while nuancing and humanizing the way we see people who use drugs. As such, this youth-driven community project created a safe space to share stories, collaborate, honour trauma and transform grief into action.

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How do family members experience drug death bereavement? A systematic review of the literature

Cited by 41 publications

References 50 publications

Sounds of silence. The “special grief” of drug-death bereaved parents: a qualitative study

Sounds of silence. The “special grief” of drug-death bereaved parents: a qualitative study

How Do Drug-Death-Bereaved Parents Adjust to Life Without the Deceased? A Qualitative Study

heART space: Curating community grief from overdose

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