How do clients and (In)formal caregivers experience quality of home care? A qualitative approach

Haex, Roy; Thoma‐Lürken, Theresa; Beurskens, Anna; Zwakhalen, Sandra

doi:10.1111/jan.14234

Cited by 6 publications

(11 citation statements)

References 36 publications

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“…Findings also show that older person's relationship with the caregiver becomes very important for how he/she estimates the care, for example, by having someone to trust (Hughes & Burch, 2020;Lundgren et al, 2018Lundgren et al, , 2019 or being able to live their life as before (Haex et al, 2020). However, professional caregivers face paradoxes that are difficult to deal with, such as the care receiver's care needs versus the informal caregiver's ability to cope (Janssen et al, 2014).…”

Section: Discussionmentioning

confidence: 93%

“…If the older person who is being cared for does not have many confidants or having less functional possibilities to go outside and meet friends and family, one can assume that the professional caregiver becomes the confidant and the proxy for other significant persons. Findings also show that older person's relationship with the caregiver becomes very important for how he/she estimates the care, for example, by having someone to trust (Hughes & Burch, 2020; Lundgren et al, 2018, 2019) or being able to live their life as before (Haex et al., 2020). However, professional caregivers face paradoxes that are difficult to deal with, such as the care receiver's care needs versus the informal caregiver's ability to cope (Janssen et al., 2014).…”

Section: Discussionmentioning

confidence: 99%

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Relationships first: Formal and informal home care of older adults in Sweden

Jarling

Rydström

Fransson

et al. 2022

Health Social Care Comm

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To a great extent, older people in Sweden, often with extensive care needs, are cared for in their own home. Support is often needed from both family and professional caregivers. This study aimed to describe and analyse different aspects of health, functioning and social networks, and how they relate to formal and informal care in the home among older adults. Analyses were performed utilising data from the OCTO-2 study, with a sample of 317 people living in Jönköping County, aged 75, 80, 85 or 90 years, living in their own homes. Data were collected with in-person-testing. Based on receipt of care, the participants were divided into three groups: no care, informal care only, and formal care with or without informal care. Descriptive statistics and multinomial regression analysis were performed to explore the associations between received care and different aspects of health (such as multimorbidity, polypharmacy), social networks (such as loneliness, number of confidants) and functioning (such as managing daily life). The findings demonstrate that the majority of the participants received no care at home (61%). Multimorbidity and polypharmacy were more common among those receiving some kind of care in comparison to those who received no care; moreover, those receiving some kind of care also had difficulties managing daily life and less satisfaction with their social networks. The multinomial logistic regression analyses demonstrated that age, functioning in daily life, perceived general health and satisfaction with the number of confidants were related to receipt of care, but the associations among these factors differed depending on the type of care that was received. The results show the importance of a holistic perspective that includes the older person's experiences when planning home care. The results also highlight the importance of considering social perspectives and relationships in home care rather than focusing only on health factors.

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Section: Discussionmentioning

confidence: 93%

Section: Discussionmentioning

confidence: 99%

Relationships first: Formal and informal home care of older adults in Sweden

Jarling

Rydström

Fransson

et al. 2022

Health Social Care Comm

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“…These measures often focus on satisfaction as the main outcome, which has been shown to be an incomplete measure for experienced QoC as it generates gratitude bias and interpretation difficulties for formal caregivers [16,42,43]. In a previous study, attributes of experienced QoC were identified throughout the home care process [44]. These attributes include the presence of more 'close' personal care relationships (relating to trust, openness, and empathy) and the importance of care routines that are consistent with the client's former way of living.…”

Section: Discussionmentioning

confidence: 99%

The needs of key-stakeholders for evaluating client’s experienced quality of home care: a qualitative approach

Haex

Thoma‐Lürken

Zwakhalen

et al. 2020

J Patient Rep Outcomes

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Background To optimize home care, it is essential to determine how care recipients experience quality of care. Traditionally, quality of care is measured with normative quality indicators such as safety, efficiency, or prevalence rates such as falls. The growing interest for qualitative patient-reported experience measures in home care requires insight into the needs of care receivers, providers, and organizations as key-stakeholders. Each stakeholder has their own needs that are important to communicate and use to conduct thorough comparisons before implementing new experience measures. This study aims to understand the needs of clients, formal/informal caregivers, and managers/policy officers in measuring client’s experienced quality of care in home care. Methods Four focus group interviews and 25 semi-structured interviews with key-stakeholders were conducted and analyzed by means of content analysis. The value-proposition canvas was used as a thematic framework to explore the purpose of experience quality of care measures and related pains and gains. Results There were two main purposes for measuring experienced quality of care: first improving the primary care process of individual clients and second for learning and improving in home care team. Using experienced quality of care measures for external accountability and transparency on an organizational or national level were considered less relevant. Among others, participants described not having time and no clear procedure for conducting an evaluation as a pain of the current methods used to evaluate perceived quality of home care. As gains they put forward the ability to informally evaluate experiences during care delivery and to openly discuss complaints with a familiar caregiver. Conclusions This study advocates that home care organizations should be aware of the goal of quality of care measures. They should consider selecting experienced quality of care measures mainly for improving primary care processes of individual clients. The results also underline the relevance of adopting next to quantitative evaluations, more narrative evaluation methods which support communicating openly on care experiences, leading to concrete point-of-improvement. The findings of this study can serve as a guide for both the development or selection of adequate methods, from the perspectives of key-stakeholders, in assessing experienced quality in home care.

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“…Caregivers need adequate understanding and interpretation of symptoms to adjust how they handle them (Gilmore‐Bykovskyi et al., 2019). It is also important to know their individual self‐reported experience for the quality of long‐term care (Haex et al., 2020). Similarly, Ray et al.…”

Section: Discussionmentioning

confidence: 99%