How Do Cancer Patients Navigate the Public Information Environment? Understanding Patterns and Motivations for Movement Among Information Sources

Nagler, Rebekah H.; Romantan, Anca; Kelly, Bridget; Stevens, Robin; Gray, Stacy W.; Hull, Susan; Ramírez, A. Susana; Hornik, Robert

doi:10.1007/s13187-010-0054-5

Cited by 38 publications

(39 citation statements)

References 50 publications

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“…It should be noted that these measures are original with this research, based on extensive qualitative interviews and pretesting with cancer patients (see Nagler et al, 2010). They were developed based on similar information-seeking measures previously validated with a non-cancer patient sample (Kelly, Niederdeppe, & Hornik, 2009; Niederdeppe et al, 2007).…”

Section: Methodsmentioning

confidence: 99%

Looking Beyond the Internet: Examining Socioeconomic Inequalities in Cancer Information Seeking Among Cancer Patients

Lee

Ramírez

Lewis

et al. 2012

Health Communication

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The gap in cancer information seeking between high-socioeconomic status (SES) cancer patients and low-SES cancer patients deserves serious attention considering the importance of information and knowledge in cancer control. We thus explored the association of SES, as measured by education, with cancer patients’ overall cancer information seeking, and with seeking from each source (i.e., the Internet, mass media, medical sources, and non-medical interpersonal sources) and across two topic categories (i.e., treatment, quality of life). We then asked whether the effect of education on treatment information seeking is reduced among those who are particularly motivated to control treatment choices. We conducted a survey with breast, prostate, and colon cancer patients diagnosed in 2005 (N = 2,013), who were randomly drawn from the Pennsylvania Cancer Registry in the fall of 2006. We found that education was more strongly associated with Internet use than with the use of other sources regardless of topics. Also, when information was sought from mass media, education had a greater association with treatment information seeking than with quality-of-life information seeking. Preference for active participation in treatment decision making, however, did not moderate the effect of education on treatment information seeking. The implications of these findings for public health research and cancer patient education were discussed.

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Section: Methodsmentioning

confidence: 99%

Looking Beyond the Internet: Examining Socioeconomic Inequalities in Cancer Information Seeking Among Cancer Patients

Lee

Ramírez

Lewis

et al. 2012

Health Communication

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“…E. Mills & Davidson, 2002; Nagler, Gray et al, 2010; Nagler, Romantan et al, 2010; Nair, Hickok, Roscoe, & Morrow, 2000). These studies described important patterns of information engagement among cancer patients.…”

Section: Informational Needs Of Cancer Survivorsmentioning

confidence: 99%

“…For instance, cancer survivors wanted to learn about both the biological mechanisms of the disease and how the illness would impact their lives (Kutner, Steiner, Corbett, Jahnigen, & Barton, 1999; Nagler, Romantan et al, 2010; Rutten et al, 2005; Squiers, Rutten, Treiman, Bright, & Hesse, 2005). Butow and colleagues (1997) noted that patients were concerned with information related to treatment options before visiting a doctor but after the visit, they were interested in topics related to care and managing fears.…”

Section: Informational Needs Of Cancer Survivorsmentioning

confidence: 99%

“…Additionally, researchers have concluded that most patients did not rely on only one source to retrieve information but rather employed multiple outlets (Mills & Davidson, 2002; Nagler, Gray et al, 2010; Nagler, Romantan et al, 2010; Nair et al, 2000; Ramsey et al, 2009). Even though the majority of patients reported their health professional as the preferred source of cancer information, information sources outside of the medical encounter including family, friends, other cancer patients, and media sources (e.g., newspaper, radio, TV, and the internet) were utilized as needed (Caiata-Zufferey, Abraham, Sommerhalder, & Schulz, 2010; Hesse et al, 2008; Mayer et al, 2007; Nair et al, 2000; Ramsey et al, 2009; Rutten et al, 2005).…”

Section: Informational Needs Of Cancer Survivorsmentioning

confidence: 99%

“…Lewis et al (2009), using survey data, found that 63% of cancer patients reported bringing information from nonmedical sources such as family, friends and media to discuss with their treating physician, and 45% reported that their treating physicians often sent them to other sources. Nagler, Romantan, and colleagues (2010), making use of in depth interview data, reported that following engagement with physicians, cancer patients were likely to initiate additional information seeking from several nonmedical sources, and that engagement with nonmedical sources often led to further discussions with physicians.…”

Section: Patients’ Engagement With Medical and Nonmedical Sourcesmentioning

confidence: 99%

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Navigating the Cancer Information Environment: The Reciprocal Relationship Between Patient–Clinician Information Engagement and Information Seeking from Nonmedical Sources

Moldovan-Johnson

Tan²,

Hornik³

2013

Health Communication

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Prior theory has argued and empirical studies have shown that cancer patients rely on information from their health care providers as well as lay sources to understand and make decisions about their disease. However, research on the dynamic and interdependent nature of cancer patients’ engagement with different information sources is lacking. This study tested the hypotheses that patient-clinician information engagement and information seeking from nonmedical sources influence one another longitudinally among a representative cohort of 1,293 cancer survivors in Pennsylvania. The study hypotheses were supported in a series of lagged multiple regression analyses. Baseline seeking information from nonmedical sources positively predicted subsequent patient-clinician information engagement at one-year follow-up. The reverse relationship was also statistically significant; baseline patient-clinician information engagement positively predicted information seeking from nonmedical sources at follow-up. These findings suggest that cancer survivors move between nonmedical to clinician sources in a dynamic way to learn about their disease.

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Nutrition Information Resources Used by People With Systemic Sclerosis and Perceived Advantages and Disadvantages: A Nominal Group Technique Study

Østbø

Jimenez

Harb

et al. 2021

ACR Open Rheumatology

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Objective Where people with systemic sclerosis (SSc) (or scleroderma) obtain diet and nutrition information to manage their disease is not known. Objectives were to identify 1) resources used by people with SSc for nutrition and diet information and 2) perceived advantages and disadvantages of resources. Methods We conducted nominal group technique (NGT) sessions in which people with SSc reported nutrition and diet information resources they have used and perceived advantages and disadvantages of accessing and using resources. Participants indicated whether they had tried each resource. They rated helpfulness and importance of possible advantages and disadvantages. Items elicited across sessions were merged to eliminate overlap. Results We conducted four NGT sessions (three English language, one French language; 15 total participants) and identified 33 unique information resources, 147 resource‐specific advantages, and 118 resource‐specific disadvantages. Resource categories included health care providers, alternative and complementary practitioners, websites and other media platforms, events, and print materials. The most common themes for advantages and disadvantages included quality and individualization of information and accessibility of resources in terms of cost, location, and comprehensibility. Information provided by medical professionals was regarded as most credible and can be obtained through books, articles, and websites if individual consultation is not easily accessible. Web‐based information was considered highly accessible, although of variable credibility. In‐person events may be an important source of health information for people with SSc. Conclusion People with SSc obtain nutrition and diet information from multiple resources. They seek credible and accessible resources that provide SSc‐specific and individualized information.

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How Do Cancer Patients Navigate the Public Information Environment? Understanding Patterns and Motivations for Movement Among Information Sources

Cited by 38 publications

References 50 publications

Looking Beyond the Internet: Examining Socioeconomic Inequalities in Cancer Information Seeking Among Cancer Patients

Looking Beyond the Internet: Examining Socioeconomic Inequalities in Cancer Information Seeking Among Cancer Patients

Navigating the Cancer Information Environment: The Reciprocal Relationship Between Patient–Clinician Information Engagement and Information Seeking from Nonmedical Sources

Nutrition Information Resources Used by People With Systemic Sclerosis and Perceived Advantages and Disadvantages: A Nominal Group Technique Study

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