‘How did you cope with such concerns?’: insights from a monitored online infertility peer support forum

Grunberg, Paul H; Costa, Deborah Da; O’Connell, Siobhan Bernadette Laura; Lahuec, Alix; Zelkowitz, Phyllis

doi:10.1080/14647273.2021.1959952

Cited by 3 publications

(3 citation statements)

References 66 publications

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“…Thus, infertile individuals who are accused of being childless experience emotional sadness, frustration, poor mental health, and social dysfunction, which may harm their marital relationship (fear of intimacy), as well as their quality of life ( 27 , 28 ). The phrase “fear of intimacy,” sometimes known as “intimacy avoidance,” refers to a fear of having intimate emotional or physical contact with another person ( 29 ). According to some scholars, both intimacy avoidance and marital issues are associated with psychological illnesses ( 30 ).…”

Section: Fear Of Intimacy Qol and Neuropsychological Impairmentmentioning

confidence: 99%

How fear of intimacy affects infertile men’s neuropsychological functioning through mental toughness

Hassan,

Bhatti,

Habib

et al. 2023

Front. Psychiatry

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ObjectiveThere is a significant need in Pakistan to investigate the psychological effects of infertility on the mental health of infertile men. The current study examined how fear of intimacy affects neuropsychological impairment and evaluated its relationship to other variables including quality of life and mental toughness.MethodAn analytical cross-sectional study was carried out on infertile male patients in various healthcare settings in Punjab, Pakistan. The participants were recruited using a non-probability (purposive) sampling strategy. The sample size was 120 infertile. SPSS 26 was used to analyze the data.ResultsFear of intimacy was found significant impact on neuropsychological impairment (r = 0.40; ***p < 0.001), as well as fear of intimacy, significantly associated with emotional problems (r = 0.48; **p < 0.01), learning problems (r = 0.33; **p < 0.01), sensory and motor problem (r = 0.55; **p < 0.01), concentration problem (r = 0.21; **p < 0.01), mental & physical in coordination (r = 0.37; **p < 0.01) and depression (r = 0.22; **p < 0.01). Fear of intimacy has negative impact on QoL (r = −0.25; *p > 0.05). Similarly, neuropsychological impairment was found to be negatively associated with QoL (r = −0.52; **p > 0.01). The relationship between fear of intimacy and neuropsychological impairment was found to be significantly mediated by QoL. Furthermore, the findings revealed that mental toughness significantly moderated the relationship between fear of intimacy and neuropsychological impairment.ConclusionOverall, infertile men in Pakistan had relatively high levels of fear of intimacy, which largely caused neuropsychological impairment. This study can help neuropsychological researchers, mental health professionals, as well as policymakers in improving clinical mental health practices for infertile patients.

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Section: Fear Of Intimacy Qol and Neuropsychological Impairmentmentioning

confidence: 99%

How fear of intimacy affects infertile men’s neuropsychological functioning through mental toughness

Hassan,

Bhatti,

Habib

et al. 2023

Front. Psychiatry

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“…Even though many males participate in social media forums on IVF, it is mainly women who in the majority participate in social media related to IVF. Many studies have reviewed social media fertility support groups, and generally, females are very much in the majority [ 37 ]. Males were found in one study to be more “lurkers” than “posters” on these forums due to more insecurity as compared to women [ 38 ].…”

Section: Resultsmentioning

confidence: 99%

“…Overall, 64% based their clinic selection on their own research. The “Own research” category included social media forums as well as websites, and it has been found that social media forums around infertility are helpful in both helping process emotions around infertility and accessing information [ 37 ].…”

Section: Resultsmentioning

confidence: 99%

The Lack of Ireland’s Assisted Human Reproduction (AHR) Regulation Viewed under the Lens of the Patient’s Experience

Ronan

McDermott

Butler

et al. 2022

IJERPH

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Assisted Human Reproduction (AHR) treatment is unregulated in Ireland, although it is practised there. Within Europe, Ireland is one of the only European countries without any form of AHR-specific regulation. This study aims to investigate the experiences and viewpoints of Irish women undergoing AHR treatments and establish if the lack of legislation is affecting these experiences. A quantitative survey was carried out on women undergoing AHR treatment in Irish clinics. Patients highlighted a lack of information in terms of end-to-end care and poor information around treatments and success rates. Key issues highlighted included unanticipated high treatment costs and add-on treatment costs, lack of financial support from the government, no redress process in the event of dissatisfaction, and generally an overall feeling of a lack of support both from the AHR clinics and the Irish government. This study offers a real-time view of the Irish AHR system from the patient’s experience of AHR and under the lens of the lack of a legislative system. In early 2022, the Irish government announced that it would adopt its bill around AHR treatment and that subsidies for AHR treatment are to come into effect, which will alleviate some financial pressures on patients. Further studies of the legislation carried out post implementation will provide more information about the impact of having a legislated AHR process on the patients.

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Body image disturbances in adolescent and young adult cancer patients confronting infertility risk and fertility preservation decisions

Wytiaz,

Jackson Levin,

Tan

et al. 2023

Journal of Psychosocial Oncology

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‘How did you cope with such concerns?’: insights from a monitored online infertility peer support forum

Cited by 3 publications

References 66 publications

How fear of intimacy affects infertile men’s neuropsychological functioning through mental toughness

How fear of intimacy affects infertile men’s neuropsychological functioning through mental toughness

The Lack of Ireland’s Assisted Human Reproduction (AHR) Regulation Viewed under the Lens of the Patient’s Experience

Body image disturbances in adolescent and young adult cancer patients confronting infertility risk and fertility preservation decisions

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