How can clinical biobanks and patient information be adapted for research – Establishing a hospital based data warehouse solution

Reed, Wenche; Jor, Sissel; Bjugn, Roger

doi:10.5324/nje.v21i2.1493

Cited by 3 publications

(3 citation statements)

References 8 publications

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“…The recurrent theme that fragmentation between clinical and research structures impedes progress is also addressed by Reed et al in their article entitled How can clinical biobanks and patient information be adapted for research -establishing a hospital based data warehouse solution (19). They focus on two specific issues.…”

Section: Bridging Biobanksmentioning

confidence: 99%

Biobanking: from vision to reality

2012

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Section: Bridging Biobanksmentioning

confidence: 99%

Biobanking: from vision to reality

2012

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“…Consistent attempts to partition clinical management from research infrastructure impede the progress in health management and improved outcomes 116 leading to the recommendation that professional biobanks become "integrative service infrastructure" in hospitals. 6,9,19,117 Two of the primary activities undertaken by hospitals for the clinical care of patients are the collection of tissue biopsies, including their long-term storage or archiving and the linkage to personal clinical and demographic data.…”

Section: Fundamental 4: Hospitals Are Biobanksmentioning

confidence: 99%

Getting the message about biobanking: returning to the basics

Catchpoole¹

2017

BSAM

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Much has been written about biobanks and biobanking. Since biobanking rose to prominence in the 1990s and became a scientific discipline in its own right, the collection and distribution of human tissue samples or "biospecimens" has been the subject of much critique, debate, and assessment. However, what is the message these discussions provide the wider research community? Are they reflective of progression of a new discipline? Do they represent clarity in the field or confusion? At one point we are told that biobanks are vital infrastructure, yet in the next breath we are told that biobanks are complex, full of risk, inefficient, and unsustainable. Biobanks struggle to receive sustainable funding with many restructuring or closing down, producing dilemmas about what to do with the legacy resources. This review critiques five key messages being relayed by the biobanking community, identifying the five messages that are actually being received by the research community. It also presents a "back to basics" view for biobanking that will return our attention back to five fundamental principles that should guide the ongoing discussion. This includes that biobanking is about the active provision of tissue for research that is vital for improved health outcomes. This activity is founded in human interrelationships, is already performed routinely within hospitals, and is driven by the opportunity to learn from the information contained within the biospecimens. The examples provided will be drawn from New South Wales, Australia, where building a state-wide biobanking infrastructure has been implemented, and which highlight areas where back to basics approach will be beneficial. A back to basics view of biobanking will highlight that the current positions proposed to deal with these issues are mere "straw men" solutions and that the need for a fundamental shift in our thinking is the real issue that needs to be addressed.

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“…Moreover, medical data is dispersed throughout the medical systems, being stored in proprietary systems with incompatible architectures. Furthermore, the process of extracting the medical data from these various information systems is time-consuming and labor intensive [3]. Therefore, the integration process of medical data from various systems into CDWH is sensitive process in order to deliver quality patient care.…”

Section: Introductionmentioning

confidence: 99%