How and how well have older people been engaged in healthcare intervention design, development or delivery using co‐methodologies: A scoping review with narrative summary

Abstract

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Development of a Digital Tool for People With a Long-Term Condition Using Stroke as a Case Example: Participatory Design Approach

“…The patient partner was not directly involved in the initial workshop built on previous research. Although interaction on equal terms is the goal, it may not be realistic or possible for the same individual to be involved in all stages, for example, because of cognitive impairment or fatigue [ 29 ]. Nevertheless, the patient partner was continuously involved in the co-design and research process.…”

“…A participatory [ 23 ] and pragmatic approach including mixed methods [ 28 ] was used to design a digital tool that meets users’ needs. In a participatory co-design approach, end users are viewed as experts on their experiences, and they can be engaged at different levels, with some becoming partners in the research team [ 23 , 29 ]. To ensure patient involvement, a patient with stroke who was engaged in a support association and had a background in information technology projects became a patient partner and coauthor.…”

Life-Course Marginalities of Positive Health and Aging: A Participatory Approach Integrating the Lived Experiences of Older Irish Travelers and Older Homeless Adults in Multistakeholder Research Processes

“…However, co-methods are less developed for aging populations, with some older people likely to encounter challenges to participation ( Cowdell et al, 2020 ; Schilling & Gerhardus, 2017 ). Reflecting, in relative terms, a wider paucity of research on older populations and participatory approaches ( Cowdell et al, 2020 ), questions remain as to how to best support the involvement of marginalized aging populations in multistakeholder participatory research and development processes, where the need for impactful provisions is most present ( Pratt, 2019 ). This is despite the recognition that policy and practice, and the research that supports it, must reflect older people’s lives to secure equitably PHA outcomes ( Rudnicka et al, 2020 ).…”

The Use of Co-production, Co-design and Co-creation to Mobilise Knowledge in the Management of Health Conditions: A Systematic Review

“…The fundamentals of 'co'approaches have been described in the literature, for example the UK's National Institute for Health Research (NIHR) principles for co-production (12). Despite this, there is little consensus about the type of approaches the three terms describe (11,13). Common uses of these terms are: 1) co-production of a research project where researchers, practitioners and the public work together throughout the course of the project (12); 2) co-creation of new knowledge by academics working alongside other stakeholders (8) and; 3) co-design when developing complex interventions (14).…”

“…Common uses of these terms are: 1) co-production of a research project where researchers, practitioners and the public work together throughout the course of the project (12); 2) co-creation of new knowledge by academics working alongside other stakeholders (8) and; 3) co-design when developing complex interventions (14). In practice, the three terms are often used interchangeably and adopted and described inadequately and ambiguously (11,15). Many 'co'approaches do not address the egalitarian and utilitarian values of what is considered 'genuine' co-production leading to a crowded landscape of 'cobiquity' terms and approaches (13).There is currently a lot of interest in knowledge mobilisation and 'co'approaches in health, with multiple publications about their use.…”