Hospital‐based home care for children with cancer: Feasibility and psychosocial impact on children and their families

Hansson, Helena; Kjærgaard, Hanne Wacher; Johansen, Christoffer; Hallström, Inger; Christensen, Jane; Madsen, Mette; Schmiegelow, Kjeld

doi:10.1002/pbc.24474

Cited by 43 publications

(65 citation statements)

References 32 publications

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“…23 Nevertheless, the QoL had statistically meaningful differences in the variants, age of the child diagnosis, 9,11 guardian age 9 , child and adolescent without treatment. ≤12 months and >12 months, [4][5][6]21, cancer diagnosis and epilepsy, 3 for nutrition condition, 18 death in less than six months and over six months after interview.…”

Section: Discussionmentioning

confidence: 95%

“…The study was applied in the age group below 2 years old 23 and the other one is a study that excluded in its sample 2 patients over 18 years old, even having used the questionnaires for the age group of maximum limit for 18 years old. 3 The least number of total sample was 26 people and this number is equivalent to 13 pairs, that is 13 questions were answered by children and adolescents, and 13 were answered by parents.…”

Section: Discussionmentioning

confidence: 99%

“…The score by dimensions is displayed in 7 articles, [3][4][5]7,9,11,20 the least average value was found in dimensions treatment anxiety 60.1 in the assessment of QoL of 95 children and adolescents in the age group from 2 to 16 years old, diagnosed with acute lynfoyd leukemia 7 and the largest one 90,9 in validity study of PedsQL TM with 413 parents of children and adolescents in the Chinese version with 413 parents of children and adolescents in the age group from 1 to 18 years old. 5 As to the groups description, 11 articles 6,8,15,16,18,21,23 described the values by dimensions, however they just displayed values according to groups (Tables 2, 3); it was noted that 3 articles 6,16,23 described by group both for the reports of parents, children and adolescents. And the other ones were not described as they applied the questionnaires depending on the study for parents, children and adolescents.…”

Section: Discussionmentioning

confidence: 99%

“…The comparison group by type of report was used by 11 articles, [2][3][4][5][6][7]9,19,23,26 but they have used for gender/sex, 8,15,18 being or not receiving treatment, 5,6,11,21 the age group 9,15,21,22 and other groups, according to Table 4.…”

Section: Discussionmentioning

confidence: 99%

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Quality of life of children and adolescents with cancer: revision of studies literature that used the Pediatric Quality of Life InventoryTM

et al. 2015

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How to cite this article: Queiroz DMF, Amorim MHC, Zandonade E, Miotto MHMB. Quality of life of children and adolescents with cancer: revision of studies literature that used the pediatric quality of life inventoryTM. Invest Educ Enferm. 2015; 33(2): 343-354. Original articleQuality of life of children and adolescents with cancer: revision of studies literature that used the pediatric quality of life inventory TM Objective. To assess the quality of life of children and adolescents with cancer of studies that applied the Pediatric Quality of Life Inventory 3.0 Cancer Module. Methodology. The study was carried out on the basis of data Scopus Web of Science, BIREME, EBSCO host and Psychoinfo of articles in Spanish, English and Portuguese, and published from 1998 to 2013 that used the Pediatric Quality of life Inventory 3.0 Cancer Module. Results. 21 articles were selected, of which 47.6% were carried out in America, and 61.9% of editions comprehended from 2011 to 2013. The scores variation by dimensions and in general was probably related for the selection of comparison groups, as the diversity of inclusion criteria and variants may be observed for the analysis in each study. The existence of a standard dimension could not be verified either for children´s /adolescents reports or for parents. Conclusion. It is concluded that the scores averages by dimensions in general have not achieved values below 30 and the largest scores by dimension are above 80. It is suggested that the treatment anxiety dimension in children´s and adolescents´s reports may have obtained the largest scores within each study, that is lesser than the difficulty of the children and adolescents in face of the treatment and cancer. Nursing becomes a constant presence in the life of children and adolescents with cancer and it may provide a better quality of life for developing nursing activities and the team may demistify, clarify and help in all phases of the illness and treatment.Key words: quality of life; child; adolescent; questionnaire; review. • Invest Educ Enferm. 2015;33(2)Calidad de vida de los niños y adolescentes con cáncer: revisión de literatura de estudios que utilizaron el pediatric Quality of life inventory TM Objetivo. Evaluar la calidad de vida de los niños y adolescentes a quienes se aplicó la escala Pediatric Quality of Life Inventory 3.0 Cancer Module. Metodología. Se hizo búsqueda en las bases de datos Scopus, Web of Science, BIREME, EBSCO host y PsycoInfo de los artículos en español, inglés o portugués publicados entre 1998 a 2013 que utilizaron la escala. Resultados. Se seleccionaron 21 artículos, de los cuales el 47.6% se realizó en América y un 61.9% se publicó en el período 2011-2013. El rango de puntuaciones para las dimensiones, en general, fue probablemente relacionado con la selección de los grupos de comparación porque se pueden observar la diversidad de los criterios de inclusión y variables para el análisis en cada estudio. No se puede comprobar la existencia de un patrón de una dimensión presente en las puntuacio...

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Section: Discussionmentioning

confidence: 95%

Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

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Quality of life of children and adolescents with cancer: revision of studies literature that used the Pediatric Quality of Life InventoryTM

et al. 2015

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“…Studies report that HBHC safely replaces hospital visits for children, for an equal or lower cost, and that it is greatly preferred by the parents (Tiberg et al, 2012, Hansson et al, 2013, Hansson et al, 2012. However, sleep deprivation and sleep disruption are common problems for parents caring for a child with a chronic condition (Matthews et al, 2014, Yuwen et al, 2016, Herbert et al, 2015, Bourke-Taylor et al, 2013, Mörelius and Hemmingsson, 2014, leading to poor physical and mental health (BourkeTaylor et al, 2013, Mörelius and Hemmingsson, 2014, Gravdal Kvarme et al, 2016, and they have a negative impact on the parents' caregiving responsibilities (Meltzer and Booster, 2016).…”

Section: Hospital-based Home Care For Childrenmentioning

confidence: 99%

What about the parents? : Sleep quality, mood, saliva cortisol response and sense of coherence in parents with a child admitted to pediatric care

Angelhoff¹

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Parents experience many stressful situations when their child is ill and needs medical care, irrespective of the child’s age, diagnosis or the severity of the illness. Poor sleep quality and negative mood decrease the parents’ ability to sustain attention and focus, to care for their ill child, and to cope with the challenges they face. The overall aim of this thesis was to evaluate sleep, mood, cortisol response, and sense of coherence (SOC) in parents caring for children in need of medical care, and to identify factors that may influence parents’ sleep. This thesis includes four original studies; two of these are quantitative, prospective, descriptive and comparative studies including parents (n=82) accommodated in six pediatric wards with their ill child, using questionnaires and sleep logs to measure sleep, mood and SOC, and saliva cortisol to measure cortisol response. A follow-up was performed four weeks later at home, after hospital discharge. The other two studies are qualitative, inductive and explorative interview studies, including parents (n=12) staying overnight with their preterm and/or ill infant in three neonatal intensive care units, and parents (n=15) with a child receiving hospital-based home care in two pediatric outpatient clinics. The interviews were analyzed with a phenomenographic method. Being together with one’s family seems beneficial for sleep and may decrease stress. The ability to stay with the child, in the hospital or at home, was highly appreciated by the parents. When caring for a child with illness, parents’ sleep quality was sufficient in the hospital; however, sleep quality improved further (p<0.05) at home after discharge. The parents reported frequent nocturnal awakenings in the hospital caused by the child, medical treatment and hospital staff. Concern and anxiety about the child’s health, and uncertainty about the future were stressors affecting the parents’ sleep and mood negatively. The parents had lower (p=0.01) morning awakening cortisol levels in the pediatric ward compared to at home, and parents accommodated for more than one night had lower (p<0.05) post-awakening cortisol levels compared to parents staying their first night. The findings of this thesis conclude that being together as a family is important for the parents’ sleep. The ability to be accommodated in the hospital and gather the family around the child may have given the parents time for relaxation and recovery, that in turn may lead to a less stressful hospital stay. When it is beneficial for the child, the whole family should be included in the pediatric care. Moreover, pediatric nurses must acknowledge parents’ sleep, in hospital and at home. Medical treatment and care at night should be scheduled and sleep promoted for the parents in order to maintain health and well-being in the family.

The electronic version of the thesis is a corrected version of the printed thesis.

This thesis has also been funded by Barnklinikens 60-årsfond, Filip SchelinsStiftelse, Riksföreningen för barnsjuk...

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Cost‐effectiveness of home‐based care of febrile neutropenia in children with cancer
Tew
¹
,
Lourenço
²
,
Gordon
³

et al. 2021
Pediatric Blood & Cancer
9
0
9
0
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Introduction:Home-based treatment of febrile neutropenia (FN) in children with cancer with oral or intravenous antibiotics is safe and effective. There are limited data on the economic impact of this model of care. We evaluated the cost-effectiveness of implementing an FN programme, incorporating home-based intravenous antibiotics for carefully selected patients, in a tertiary paediatric hospital. Methods: A decision analytic model was constructed to compare costs and outcomes of the home-based FN programme, with usual in-hospital treatment with intravenous antibiotics. The programme included a clinical decision rule to stratify patients by risk for severe infection and home-based eligibility criteria using disease, chemotherapy and patient-level factors. Health outcomes (quality of life) and probabilities of FN risk classification and home-based eligibility were based on prospectively collected data between 2017 and 2019.

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Hospital‐based home care for children with cancer: Feasibility and psychosocial impact on children and their families

Abstract: This study indicates that HBHC is a feasible alternative to hospital care for children with cancer, and is greatly preferred by parents. Specific aspects of children's HRQOL may be improved with HBHC and the psychosocial burden on the family does not increase.

Cited by 43 publications

References 32 publications

Quality of life of children and adolescents with cancer: revision of studies literature that used the Pediatric Quality of Life InventoryTM

Quality of life of children and adolescents with cancer: revision of studies literature that used the Pediatric Quality of Life InventoryTM

What about the parents? : Sleep quality, mood, saliva cortisol response and sense of coherence in parents with a child admitted to pediatric care

Cost‐effectiveness of home‐based care of febrile neutropenia in children with cancer

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