Hospital admissions in children with cerebral palsy: a data linkage study

Section: Discussionmentioning

confidence: 95%

Educational outcomes for children with cerebral palsy: a linked data cohort study

Gillies

Bowen

Patterson

et al. 2017

“…Our findings of increased hospital admission in children and young adults with CP are not unexpected given the associated severity and presence of other comorbidities . Common reasons for admission include epilepsy, gastrointestinal problems, compromised respiratory function, and progressive musculoskeletal abnormalities often necessitating complex surgery .…”

Section: Discussionmentioning

confidence: 49%

“…Children with CP especially can have high rates of hospital admissions. Increased CP severity has been shown to be associated with emergency department presentation and longer hospital stays …”

mentioning

confidence: 99%

Hospital admissions in children with developmental disabilities from ethnic minority backgrounds

Abdullahi

Wong

Klerk

et al. 2019

Aim To compare hospital admission patterns after the first year of life in Australian children with developmental disabilities and children with no known disability, according to maternal country of birth and Indigenous status. Method This was a retrospective cohort study using linked data across health, disability, and hospital admission databases. The study investigated 656 174 children born in Western Australia between 1983 and 2008 with a total of 1 091 834 records of hospital admissions. Results Children with no known disability born to Indigenous mothers had the highest rate of hospital admissions compared to children of non‐Indigenous mothers. Children of foreign‐born mothers from low‐income countries had the highest rate of hospital admissions if disability was present. Children with cerebral palsy (CP) with or without associated intellectual disability had the highest rate of hospital admissions among children with developmental disability, especially if mothers were foreign‐born. Interpretation Children with CP and intellectual disability, particularly from minority backgrounds (Indigenous Australian and foreign‐born mothers), were at higher risk of being admitted to hospital after the first year of life. What this paper adds Hospital admissions in Australian children with and without disabilities differ according to maternal country of birth. Hospital admission rates in children without a developmental disability were greatest for Australian‐born Indigenous children. Disabled Australian‐born children of foreign‐born mothers from low‐income countries had the highest hospital admission rates. Hospital admission risk was greatest for Australian‐born children with cerebral palsy, especially if mothers were foreign‐born.

“…Meehan et al. recommended that CP registers collect information routinely on comorbidities, in particular neurological, respiratory, musculoskeletal, and digestive diseases, as these conditions accounted for most admissions . We believe that all children with CP could potentially benefit from having the CHCQ completed annually.…”

Section: Discussionmentioning

confidence: 99%

“…Because of coexisting health issues, children and adolescents with CP are seen by a number of different healthcare providers, indicating a need for care coordination and adequate information‐sharing among treating clinicians . Children with CP are at risk of more visits to the emergency department or multi‐day hospitalizations, in particular in those with greater severity and complexity (GMFCS level V) . Meehan et al.…”

Section: Discussionmentioning

confidence: 99%

Longitudinal trajectories and reference centiles for the impact of health conditions on daily activities of children with cerebral palsy

Bartlett

Gorter

Jeffries

et al. 2018

Aim First, to describe the impact of health conditions on daily activities over time in children with cerebral palsy (CP) and to create age‐specific reference centiles. Second, to determine the amount of change typical over a 1‐year period, across Gross Motor Function Classification System (GMFCS) levels. Method A prospective, cohort design, with five assessments over 2 years, involved 708 children with a confirmed diagnosis of CP participating in the On Track Study (396 males, 312 females; mean age 6y [SD 2y 7mo]; range 18mo–12y at first assessment; 32.1% in GMFCS level I, 22.7% in GMFCS level II, 11.2% in GMFCS level III, 18.2% in GMFCS level IV, 15.7% in GMFCS level V). The impact of health conditions on daily activities was assessed using the Child Health Conditions Questionnaire. Data were analyzed using mixed‐effects models and quantile regression. Results Linear longitudinal trajectories describe the relatively stable impact of health conditions over time for each functional level for children aged 2 years to 12 years, with the lowest scores (least impact) in GMFCS level I and the highest scores (highest impact) in GMFCS level V. Centiles were created for children in each GMFCS level. A system to interpret the magnitude of change over time in centiles was developed. Interpretation Longitudinal trajectories of co‐occurring health conditions assist with understanding children's prognoses. Centiles assist in understanding a child's experience relative to children in similar GMFCS levels. Guidelines are provided to determine if children are progressing ‘as expected’, ‘better than expected’ or ‘more poorly than expected’ in regard to the impact of health conditions on daily activities. What this paper adds For children with cerebral palsy, the mean impact of health conditions on daily activities is relatively stable. Significant intraindividual and interindividual variability for the impact of health conditions exists, which complicates prognosis. Centiles enable interpretation of the impact of health conditions relative to Gross Motor Function Classification System level.