Hopelessness among adults with congenital heart disease: Cause for despair or hope?

Eslami, Bahareh; Kovacs, Adrienne H.; Moons, Philip; Abbasi, Kyomars; Jackson, Jamie L.

doi:10.1016/j.ijcard.2016.12.090

Cited by 22 publications

(19 citation statements)

References 41 publications

(44 reference statements)

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“…Hopelessness implies negative expectations about the future, pessimism, lack of enthusiasm and loss of meaning, and predicts suicidal ideation better than depression . Few studies have investigated the psychological impact of disabling medical conditions and the correlates of depression and hopelessness, and those that have mainly involved patients suffering from oncological and cardiac diseases . While hopelessness correlated with perceived disability in PD, no such correlation was detected between hopelessness and suicide association.…”

Section: Discussionmentioning

confidence: 99%

“…43 Few studies have investigated the psychological impact of disabling medical conditions and the correlates of depression and hopelessness, and those that have mainly involved patients suffering from oncological and cardiac diseases. [44][45][46][47] While hopelessness correlated with perceived disability in PD, no such correlation was detected between hopelessness and suicide association. This is an unexpected result that confirms that suicidal ideation in PD is more closely linked to the perception of disability than to other psychopathological variables.…”

Section: Discussionmentioning

confidence: 99%

“…However, to reduce the potential of multicollinearity between independent variables, negative temperaments, hopelessness and suicidal ideation were first included in a PCA to derive factor scores. A single component that explained 46 hyperthymia and the components that measured negative temperaments, hopelessness and suicidal ideation potential were independently associated with perceived disability. Hyperthymia was a protective factor for perceived disability (β = −0.14; P = 0.04), while negative temperaments, hopelessness and suicidal ideation potential were risk factors for perceived disability (β = 0.42; P < 0.001).…”

Section: Factors Associated With Pdmentioning

confidence: 94%

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Suicidal ideation, perceived disability, hopelessness and affective temperaments in patients affected by Parkinson's disease

et al. 2018

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Summary Background Previous studies investigating the risk of suicide in patients with Parkinson's disease (PD) have reported conflicting results. This study evaluated suicide risk in PD and investigated the relationship between suicide risk and perceived disability, hopelessness and affective temperaments in PD. Methods One‐hundred and twenty PD patients were consecutively enrolled. The diagnosis of PD was based on clinical criteria. All patients underwent a psychiatric evaluation that included the administration of the Columbia‐Suicide Severity Rating Scale, the Italian Perceived Disability Scale, the Beck Hopelessness Inventory and the TEMPS‐A questionnaire. The results were compared with those of a control group of 91 patients affected by another chronic disease, ie, open angle glaucoma. Results Parkinson's disease patients had higher suicidal ideation, higher perceived disability and lower hyperthymia than the control group. In PD, higher perceived disability was associated with higher current and lifetime suicidal ideation, lower hyperthymia, older age and higher scores on negative temperaments. Suicidal ideation, negative temperaments and hopelessness were risk factors for perceived disability, while hyperthymia was a protective factor for perceived disability. Discussion Patients with PD have an increased risk of suicidal ideation. Increased suicidal ideation in PD is associated with the increased perceived disability. A psychiatric assessment that includes the investigation of suicide risk and perceived disability is recommended in patients with PD.

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Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

Section: Factors Associated With Pdmentioning

confidence: 94%

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Suicidal ideation, perceived disability, hopelessness and affective temperaments in patients affected by Parkinson's disease

et al. 2018

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“…3 the negative effect of unemployment on mental health (including depression, anxiety and well-being) is well documented. 14,15 our results suggest that the role of employment in the prevention of depression is increasing with the severity of chD. the unemployed individuals had increased Zung depression score and this increase was the highest in unrepaired chD patients, smaller but significant in repaired chD patients, and lowest and non-significant in the control group.…”

Section: Discussionmentioning

confidence: 48%

Quality of life and depression in adults with repaired complex cyanotic congenital heart disease in the Czech Republic

Popelová¹,

Živná²,

Tomková³

et al. 2019

Cor Vasa

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Zajištění dobré kvality života je důležitý cíl léčby pacientů s komplexní cyanotickou vrozenou srdeční vadou (VSV). V literatuře však neexistuje shoda o kvalitě života těchto pacientů. cílem naší studie bylo zhodnocení kvality života a výskytu depresí u dospělých s původně komplexní cyanotickou VSV v dlouhodobém odstupu od operace. Metody: Vyšetřili jsme celkem 212 dospělých po operaci komplexní cyanotické VSV a 86 zdravých kontrol pomocí dotazníku hodnocení kvality života Sf-36 a Zungova dotazníku hodnocení deprese. Všichni pacienti byli dále dotázáni na subjektivní hodnocení vlivu VSV na jejich život, na fyzické aktivity, funkční třídu nYhA, vzdělání, zaměstnání, počet dětí a všichni podstoupili echokardiografické vyšetření. Výsledky byly srovnány se skupinou 32 neoperovaných pacientů s komplexní cyanotickou VSV, jejichž výsledky jsme publikovali v minulosti. Výsledky: Výskyt deprese se významně nelišil mezi skupinou operovaných s VSV a zdravými kontrolami. těžká deprese byla u 8,5 % pacientů s operovanou komplexní cyanotickou VSV a u 7 % zdravých kontrol (p = 0,816). Mezi neoperovanými pacienty s perzistující cyanózou byl výskyt těžké deprese významně vyšší (28,1 %) oproti operovaným (p = 0,003). Kvalita života hodnocená pomocí dotazníku Sf-36 se významně nelišila mezi pacienty s operovanými komplexními VSV a kontrolami, kromě horšího vnímání obecného zdraví, hodnocení fyzických funkcí a fyzického omezení činností. Závěr: Pacienti s operovanou komplexní cyanotickou VSV mají v dospělosti dobrou kvalitu života, srovnatelnou s kontrolní skupinou zdravých jedinců, zatímco neoperovaní pacienti s perzistující cyanózou u komplexní VSV mají významně vyšší počet depresí.

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“…8 Adults with CHD may also experience barriers to work participation related to age, sex, comorbidities, social support, and knowledge of the disease. 2,3,[8][9][10][11] Conversely, use of private health insurance, peers' awareness and understanding of CHD and its impact in the workplace, and employer accommodations for physical restrictions can facilitate increased employment for adults with CHD. 8,[10][11][12][13][14] Currently, our knowledge of employment among adults with CHD includes data from clinical registries, single-centre retrospective reviews, and cross-sectional surveys.…”

mentioning

confidence: 99%

Clinical and socio-economic predictors of work participation in adult CHD patients

et al. 2020

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Abstract Background: Adults with CHD have reduced work participation rates compared to adults without CHD. We aimed to quantify employment rate among adult CHD patients in a population-based registry and to describe factors and barriers associated with work participation. Methods: We retrospectively identified adults with employment information in the North Carolina Congenital Heart Defects Surveillance Network. Employment was defined as any paid work in a given year. Logistic regression was used to examine patients’ employment status during each year. Results: The registry included 1,208 adult CHD patients with a health care encounter between 2009 and 2013, of whom 1,078 had ≥1 year of data with known employment status. Overall, 401 patients (37%) were employed in their most recent registry year. On multivariable analysis, the odds of employment decreased with older age and were lower for Black as compared to White patients (odds ratio = 0.78; 95% confidence interval: 0.62, 0.98; p = 0.030), and single as compared to married patients (odds ratio = 0.50; 95% confidence interval: 0.39, 0.63; p < 0.001). Conclusion: In a registry where employment status was routinely captured, only 37% of adult CHD patients aged 18–64 years were employed, with older patients, Black patients, and single patients being less likely to be employed. Further work is needed to consider how enhancing cardiology follow-up for adults with CHD can integrate support for employment.

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Hopelessness among adults with congenital heart disease: Cause for despair or hope?

Abstract: Adult CHD teams are encouraged to continue to explore strategies to support patients to live as rich and full as lives as possible by pursuing relationships, employment and physical activity, as well as managing depression and hopelessness.

Cited by 22 publications

References 41 publications

Suicidal ideation, perceived disability, hopelessness and affective temperaments in patients affected by Parkinson's disease

Suicidal ideation, perceived disability, hopelessness and affective temperaments in patients affected by Parkinson's disease

Quality of life and depression in adults with repaired complex cyanotic congenital heart disease in the Czech Republic

Clinical and socio-economic predictors of work participation in adult CHD patients

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