Hope amidst judgement: the meaning mothers accessing opioid treatment programmes ascribe to interactions with health services in the perinatal period

Harvey, Susan; Schmied, Virginia; Nicholls, Daniel; Dahlen, Hannah

doi:10.1080/13229400.2015.1110531

Cited by 32 publications

(54 citation statements)

References 57 publications

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“…Some of the parents living in highly vulnerable and disadvantaged positions, including domestic violence, were not recruited, nor were families who did not engage with services at all. The findings from other studies do, however, lead us to believe that the experiences of fear reported by the participants in the present study would be even more dominant among women exposed to domestic violence (Peckover, 2003) or having prior substance use (Harvey et al, 2015).…”

Section: Strengths and Limitationscontrasting

confidence: 77%

“…Many women have also been shown to fear or have an actual experience of being labeled, judged, or discriminated (Downe et al, 2009;Jakobsen & Overgaard, 2018;Landy et al, 2009;Origlia et al, 2017). Fear is also often reported by mothers with perinatal mental illness (Megnin-Viggars et al, 2015;Viveiros & Darling, 2019), by mothers with prior or current substance use (Harvey et al, 2015;Stengel, 2014;Stone, 2015), and by young mothers (McArthur & Winkworth, 2018). In the existing literature, fear is often identified as a barrier that health professionals must overcome to be able to offer the appropriate help and support to vulnerable groups.…”

Section: Introductionmentioning

confidence: 99%

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Living With Fear: Experiences of Danish Parents in Vulnerable Positions During Pregnancy and in the Postnatal Period

2021

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Targeted services are recommended to pregnant women/parents in vulnerable positions to support their well-being and improve health outcomes; however, being offered extra services is associated with feelings of fear and anxiety. Adopting an ethnographic approach, we explore what parents fear, how and why they experience fear, and how this shapes their childbearing experience and engagement with Danish maternity care services. We made field observations and conducted interviews with 39 parents in vulnerable positions, who shared multiple, ambiguous, and interrelated fears. Four main themes were constructed: fear of going back to a dark place, of having a negative impact on the baby, of being labeled, and of the consequences of service engagement and being open. We conclude that what parents fear, the intensity of these fears, and what potentially triggers it are contingent on their life story, their care pathways, and the maternity care system.

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Section: Strengths and Limitationscontrasting

confidence: 77%

Section: Introductionmentioning

confidence: 99%

Living With Fear: Experiences of Danish Parents in Vulnerable Positions During Pregnancy and in the Postnatal Period

2021

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“…These pervasive effects were hugely apparent in the small-town setting of this study. Stigma was a prominent finding and consistent with many other Canadian and international sources (Gustafson et al, 2008;Harvey et al 2015;Jackson et al 2010;Lang et al 2013;McCutcheon and Morrison 2014;.…”

Section: Discussionsupporting

confidence: 84%

That Look That Makes You Not Really Want to be There: How Neoliberalism and the War on Drugs Compromise Nursing Care of People Who Use Substances

Hardill

2019

CJCND

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Abstract Research conducted in 2016 explored the health care experiences of people who use illicit opioids in small Ontario urban and rural communities. Perspectives of participants who used opioids and of nurse participants were interpreted using Friere’s critical social theory framework to explore sociopolitical, economic and ideological influences. Findings describe pervasive experiences of stigma, discrimination and inappropriate care. Exploration of why such negative experiences with nursing care might be so pervasive led to a consideration of the context of health care systems and in particular of the influences of neoliberalism and the impact of the global War on Drugs. Mitigation strategies to support contextualized nursing practice are outlined. Nurses are called upon to actively resist the pressures of these political forces by advocating for policy change including decriminalization.

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“…Pregnant and postpartum women with SUDs report fear of criminalization or punishment if their substance use is reported to authorities by health care providers (Chan & Moriarty, 2010;Gilchrist et al, 2012;Hall & van Teijlingen, 2006;Harvey et al, 2015;Howard, 2015;Jessup et al, 2003;Leppo, 2012;Stone, 2015). Fear of loss of infant custody, arrest, prosecution, or incarceration can thus impair the formation of trust in the provider-patient relationship, serve as a barrier to the utilization of prenatal care and addiction treatment services, and discourage disclosure of substance use to health care providers (Kruk & Banga, 2011;Phillips et al, 2007;Roberts & Nuru-Jeter, 2010;Roberts & Pies, 2011;Stengel, 2014;Stone, 2015;Van Scoyoc et al, 2016).…”

Section: Substance Use and Health Care Experiences In Pregnancy And Pmentioning

confidence: 99%

Health Care Encounters of Pregnant and Postpartum Women with Substance Use Disorders

et al. 2019

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The purpose of this review is to describe how pregnant and postpartum women with substance use disorders (SUDs) experience health care encounters in prenatal care, labor and delivery, postpartum, and nursery/neonatal intensive care unit (NICU) settings. Findings from 23 qualitative studies on the topic were synthesized using a metasummary approach. The majority of the studies revealed that pregnant and postpartum women with SUDs tend to experience their health care encounters as conflictual, although some studies revealed that some women experience their health care encounters as supportive. The results of metasummary included a taxonomy of health care encounters. Five types of adverse encounters were identified: judgmental, disparaging, scrutinizing, disempowering, and deficient-care. Three types of beneficial encounters were identified: recovery-based, accepting, and effective-care. The findings suggest the importance of stigma awareness, therapeutic patient-provider communication, patient activation, and integrated care.

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Hope amidst judgement: the meaning mothers accessing opioid treatment programmes ascribe to interactions with health services in the perinatal period

Cited by 32 publications

References 57 publications

Living With Fear: Experiences of Danish Parents in Vulnerable Positions During Pregnancy and in the Postnatal Period

Living With Fear: Experiences of Danish Parents in Vulnerable Positions During Pregnancy and in the Postnatal Period

That Look That Makes You Not Really Want to be There: How Neoliberalism and the War on Drugs Compromise Nursing Care of People Who Use Substances

Health Care Encounters of Pregnant and Postpartum Women with Substance Use Disorders

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