Honoring the Life of a Pioneer in Patient-Centered Care

Frampton, Susan B.; Guastello, Sara

doi:10.2165/01312067-200801020-00001

Cited by 21 publications

(26 citation statements)

References 2 publications

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“…The delivery of high-quality care to PLWD demands a particularly high standard of care across multiple domains, including communication, multidisciplinary care and clinical decision-making 31. Key elements include: the PLWD and family carer at the centre,32 33 flexibility around processes, good communication between services, ensuring that all services are aware when someone has a diagnosis of dementia, taking into account the impact of the nature and presentation of dementia on pre-existing conditions, and incorporating this into guidelines and care planning.…”

Section: Discussionmentioning

confidence: 99%

Healthcare organisation and delivery for people with dementia and comorbidity: a qualitative study exploring the views of patients, carers and professionals

et al. 2017

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ObjectivesPeople living with dementia (PLWD) have a high prevalence of comorbidty. The aim of this study was to explore the impact of dementia on access to non-dementia services and identify ways of improving service delivery for this population.DesignQualitative study involving interviews and focus groups. Thematic content analysis was informed by theories of continuity of care and access to care.SettingPrimary and secondary care in the South and North East of England.ParticipantsPLWD who had 1 of the following comorbidities—diabetes, stroke, vision impairment, their family carers and healthcare professionals (HCPs) in the 3 conditions.ResultsWe recruited 28 community-dwelling PLWD, 33 family carers and 56 HCPs. Analysis resulted in 3 overarching themes: (1) family carers facilitate access to care and continuity of care, (2) the impact of the severity and presentation of dementia on management of comorbid conditions, (3) communication and collaboration across specialities and services is not dementia aware. We found examples of good practice, but these tended to be about the behaviour of individual practitioners rather than system-based approaches; current systems may unintentionally block access to care for PLWD.ConclusionsThis study suggests that, in order to improve access and continuity for PLWD and comorbidity, a significant change in the organisation of care is required which involves: coproduction of care where professionals, PLWD and family carers work in partnership; recognition of the way a patient's diagnosis of dementia affects the management of other long-term conditions; flexibility in services to ensure they are sensitive to the changing needs of PLWD and their family carers over time; and improved collaboration across specialities and organisations. Research is needed to develop interventions that support partnership working and tailoring of care for PLWD and comorbidity.

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Section: Discussionmentioning

confidence: 99%

Healthcare organisation and delivery for people with dementia and comorbidity: a qualitative study exploring the views of patients, carers and professionals

et al. 2017

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“…Planetree and Picker Institute’s Patient-Centered Care Improvement Guide 80 – offers strategies to engage patients in quality improvement activities.…”

Section: Tablementioning

confidence: 99%

A Narrative Review of Patient and Family Engagement

Cené

Johnson

Wells³

et al. 2016

Medical Care

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Background Patient and family engagement (PFE) is vital to the spirit of the medical home. This article reflects the efforts of an expert consensus panel, the Patient and Family Engagement Workgroup as part of the Society of General Internal Medicine’s 2013 Research Conference. Objective To review extant literature on PFE in pediatric and adult medicine and quality improvement, highlight emerging best practices and models, suggest questions for future research, and provide references to tools and resources to facilitate implementation of PFE strategies. Methods We conducted a narrative review of relevant articles published from 2000–2015. Additional information was retrieved from personal contact with experts and recommended sources from workgroup members. Results Despite the theoretical importance of PFE and policy recommendations that PFE occur at all levels across the health care system, evidence of effectiveness is limited, particularly for quality improvement. There is some evidence that PFE is effective, mostly related to engagement in the care of individual patients, but the evidence is mixed and few studies have assessed the effect of PFE on health outcomes. Measurement issues and the lack of a single comprehensive conceptual model pose challenges to progress in this field. Recommendations for future research and a list of practical tools and resources to facilitate PFE are provided. Conclusion Although PFE appeals to patients, families, providers, and policy-makers, research is needed to assess outcomes beyond satisfaction, address implementation barriers, and support engagement in practice redesign and quality improvement. Partnering with patients and families has great potential to support high quality health care and optimize outcomes.

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“…Surveys of “patient experience”—or measuring patients' experiences of health services—have been conducted since the 1980s and have largely replaced traditional “patient satisfaction” surveys . Patient experience surveys typically involve assessing what patients care about and emphasize patients' feelings and understanding of the whole care process.…”

Section: Introductionmentioning

confidence: 99%

“…Surveys of "patient experience"-or measuring patients' experiences of health services-have been conducted since the 1980s and have largely replaced traditional "patient satisfaction" surveys. 10 Patient experience surveys typically involve assessing what patients care about and emphasize patients' feelings and understanding of the whole care process. Naturally, these surveys rely on indices that enable patients to give as close an estimate of their actual experience, meaning that they generally avoid the "grading characteristic" of patient satisfaction survey, which tend to present patients with limited answer options that may not reflect their actual experience.…”

Section: Introductionmentioning

confidence: 99%

How the health institution combinative contracting mechanism influences community residents' patient experiences in Shanghai: A comparative study of data from two cross‐sectional surveys

Chen

Tang

et al. 2019

Health Planning & Management

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Summary Objective To understand the effect of the health institution combinative contracting mechanism (which make participating residents make a “combinative contracting” involving family doctor of community health center, one secondary hospital, and one tertiary hospital) on community residents' patient experiences in Shanghai, China. Methods We conducted two questionnaire surveys (2016 and 2018) on the patient experiences of 1200 permanent residents of 12 subdistricts of Shanghai, who were selected via stratified random sampling. Of these, 926 participants were included after propensity score matching. We compared five dimensions of patient experience—accessibility, environment and facilities, service attitude and emotional support, communication and patient engagement, and service integration—before and after implementation of the health institution combinative contracting mechanism in June 2016. Furthermore, logistic regression analysis was used to explore the factors related to residents' overall experience. Results The health institution combinative contracting mechanism influenced most dimensions of residents' patient experience, such as accessibility, service attitude and emotional support, communication and patient participation, and service integration. The mechanism in general helped contracted residents obtain a better patient experience than before its implementation. Referral had a significant effect on participants' overall experience. Conclusion Contracted family doctors play active roles in improving nearly every dimension of residents' service experience, as well as their overall experience of services. The health institution combinative contracting mechanism not only increases interaction and strengthens trust between doctors and patients but also makes it possible for residents to obtain integrated health services.

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Honoring the Life of a Pioneer in Patient-Centered Care

Cited by 21 publications

References 2 publications

Healthcare organisation and delivery for people with dementia and comorbidity: a qualitative study exploring the views of patients, carers and professionals

Healthcare organisation and delivery for people with dementia and comorbidity: a qualitative study exploring the views of patients, carers and professionals

A Narrative Review of Patient and Family Engagement

How the health institution combinative contracting mechanism influences community residents' patient experiences in Shanghai: A comparative study of data from two cross‐sectional surveys

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