Home mechanical ventilation difficulties in the last 3 months of life as reported by caregivers

Vitacca, Michele; Comini, Laura; Barbano, Luca

doi:10.1007/s12682-012-0128-8

Cited by 2 publications

(2 citation statements)

References 22 publications

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“…Patients experiencing a critical respiratory illness are prone to anxiety,15 19 22 23 26 27 but NARS can further exacerbate this 7 16 17 22 28–31. This may be driven by worsening breathlessness but is also contributed to by feelings of claustrophobia related to the interface15 17 18 20 22 23 and the noise of the machine 15 17 20 22 26.…”

Section: Methodsmentioning

confidence: 99%

Non-invasive advanced respiratory support in end-of-life care and symptom management: systematic review

Wenzel

Bleazard

Pepper

et al. 2022

BMJ Support Palliat Care

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ObjectivesTo narrate the canon of knowledge around symptom control at end of life for patients using, or having recently used, non-invasive advanced respiratory support (NARS) at end of life for respiratory failure.MethodsA systematic review forming a narrative synthesis from a wide range of sample papers from Medline, Embase, CINAHL, Emcare, Cochrane and OpenGrey databases. A secondary search of grey literature was also performed with hand searching reference lists and author citations. The review was undertaken using the ENTREQ checklist for quality.ResultsIn total, 22 studies were included in the synthesis and four themes were generated: NARS as a buoy (NARS can represent hope and relief from the symptoms of respiratory failure), NARS as an anchor (NARS brings significant treatment burden), Impact on Staff (uncertainty over the balance of benefit and burden as well as complex patient care drives distress among staff providing care) and the Process of Withdrawal (withdrawal of therapy felt to be futile exists as discrete event in patient care but is otherwise poorly defined).ConclusionNARS represents a complex interplay of hope, symptom control, unnaturally prolonged death and treatment burden. The literature captures the breadth of these issues, but further, detailed, research is required in almost every aspect of practice around end-of-life care and NARS—especially how to manage symptoms at the end of life.

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Section: Methodsmentioning

confidence: 99%

Non-invasive advanced respiratory support in end-of-life care and symptom management: systematic review

Wenzel

Bleazard

Pepper

et al. 2022

BMJ Support Palliat Care

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show abstract

“…Not being able to think straight, made them focus on breathing as a main issue." [13] Patients experiencing a critical respiratory illness are prone to anxiety [15,16,19,22,25] but NARS can further exacerbate this [7,17,19,22]. This may be driven by worsening breathlessness but is also contributed to by feelings of claustrophobia related to the interface [13,16,17,22] and the noise of the machine [15,16,17,22].…”

Section: Nars As a Buoymentioning

confidence: 99%

Symptom Management When Non-Invasive Advanced Respiratory Support is Used During End-of-Life Care: A Systematic Review

Wenzel

Bleazard

Pepper

et al. 2022

Preprint

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Objectives: to narrate the canon of knowledge around symptom control at end of life for patients using, or having recently used, non invasive advanced respiratory support (NARS) at end of life for respiratory failure. Methods: A systematic review forming a narrative synthesis from a wide range of sample papers from Medline, Embase, CINAHL, Emcare, Cochrane and OpenGrey databases. A secondary search of grey literature was also performed with hand searching reference lists and author citations. The review was undertaken using the ENTREQ checklist for quality. Results: In total 15 studies were included in the synthesis and four themes were generated: NARS as a buoy (NARS can represent hope and relief from the symptoms of respiratory failure), NARS as an anchor (NARS brings significant treatment burden), Impact on Staff (uncertainty over the balance of benefit and burden as well as complex patient care drives distress amongst staff providing care) and the Process of Withdrawal (withdrawal of therapy felt to be futile exists as discrete event in patient care but is otherwise poorly defined). Conclusion: NARS represents a complex interplay of hope, symptom control, unnaturally prolonged death and treatment burden. The literature captures the breadth of these issues but further, detailed, research is required in almost every aspect of practice around end-of-life care and NARS, especially how to manage symptoms at the end of life.

show abstract

Home mechanical ventilation difficulties in the last 3 months of life as reported by caregivers

Cited by 2 publications

References 22 publications

Non-invasive advanced respiratory support in end-of-life care and symptom management: systematic review

Non-invasive advanced respiratory support in end-of-life care and symptom management: systematic review

Symptom Management When Non-Invasive Advanced Respiratory Support is Used During End-of-Life Care: A Systematic Review

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