HIV Stigma and Social Capital in Women Living With HIV

Cuca, Yvette; Asher, Alice; Okonsky, Jennifer; Kaihura, Alphoncina; Dawson–Rose, Carol; Webel, Allison R.

doi:10.1016/j.jana.2016.09.001

Cited by 26 publications

(27 citation statements)

References 36 publications

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“…Stigma can be understood as a social phenomenon resulting in the devaluation of human beings based on a variety of social characteristics including HIV status. Stigma has been described as rooted at the intersection of “culture, power and difference” (Cuca et al, 2017, p. 46).…”

Section: Discussionmentioning

confidence: 99%

“…While we were unable to discern specific examples of externally imposed stigma for WLWHIV, it is reasonable to argue that internalized stigma was being expressed through emotional and psychological responses. Internalized stigma can affect how WLWHIV value themselves and can lead to low self-esteem and, ultimately, to WLWHIV distancing themselves from those who might otherwise provide support (Cuca et al, 2017). For example, we highlight in the maternal self-worth theme how the labels of “good” and “bad” mothers are associated with breastfeeding and not breastfeeding respectively (Tariq et al, 2016, p. 333).…”

Section: Discussionmentioning

confidence: 99%

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Women Living With HIV in High Income Countries and the Deeper Meaning of Breastfeeding Avoidance: A Metasynthesis

Griswold

Pagano-Therrien

2020

J Hum Lact

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Background: Recommendations to avoid breastfeeding for women living with HIV in high income countries has resulted in a gap in the literature on how healthcare professionals can provide the highest standard of lactation counseling. Research aims: (1) Describe social and emotional experiences of infant feeding for women living with HIV in high income countries; (2) raise ethical considerations surrounding the clinical recommendation in high income countries to avoid breastfeeding. Methods: A systematic literature search was conducted between January 1, 2008 and June 20, 2019. A total of 900 papers were screened and six met the inclusion criteria: (a) the sample was drawn from a high-income country regardless of the nativity of participants; (b) some or all participants were women living with HIV. Metasynthesis, according to Noblit and Hare (1988), was used to synthesize the experiences of women living with HIV in high-income countries and their experiences in infant feeding decisions. Results: Participants in this sample suffered a substantial emotional burden associated with infant feeding experiences potentially leading to risk of internalized stigma, suggesting that infant feeding considerations may contribute to HIV stigma in unique ways. Four overarching themes were identified expressing the meaning of avoidance of breastfeeding: maternal self-worth, deculturalization, surveillance, and intersectionality. Conclusion: Women in high-income countries living with HIV deserve the highest standard of lactation care and counseling available. Healthcare professionals in high-income countries are ethically obligated to provide evidenced-based lactation care and counseling to women living with HIV.

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Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

Women Living With HIV in High Income Countries and the Deeper Meaning of Breastfeeding Avoidance: A Metasynthesis

Griswold

Pagano-Therrien

2020

J Hum Lact

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“…HIV self-management is particularly critical because it is central to the health of PLWH and is consisted of the daily tasks that individuals employ to manage HIV signs and symptoms. PLWH are always confronted with social context vulnerabilities that delay their HIV self-management behaviors such as accessing appropriate medical services, engaging in physical activity, and medication adherence (Cuca et al, 2017). Millard and colleagues (2015) found empirical support for the benefit of a self-management program for HIVrelated quality of life.…”

Section: Introductionmentioning

confidence: 99%

Feasibility and Acceptability of an HIV/AIDS Self-Management Education Program for HIV-Positive Men Who Have Sex With Men in Thailand

Khumsaen

Stephenson

2019

AIDS Education and Prevention

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This pilot study examined the feasibility and acceptability of the HIV/AIDS self-management education program-Thai (HASMEP-T) for HIV-positive Thai men who have sex with men (MSM). The intervention HASMEP-T is a group-based adaptation of the evidence-based intervention, HASMEP. Participants were 40 Thai MSM living with HIV aged 18 years or older, recruited from an HIV clinic housed in a hospital in Thailand. Results support the feasibility of recruitment, screening, eligibility, and retention methods. The majority of the participants reported that the intervention was acceptable, and it met their initial expectations. Furthermore, all recruited participants in the intervention group (n=20) completed the intervention HASMEP-T. Overall, intervention group participants demonstrated significant increases in all aspects of HIV selfmanagement (p<0.05), as well as improvement on quality of life psychological domain (p<0.05). Our findings provide preliminary support for the large-scale, randomized-controlled trial of the efficacy of HASMEP-T to promote self-management behaviors among HIV-positive Thai MSM.

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“…It is estimated that adults aged 50 years and older represent 50% of People Living with HIV (PLWH) in the US (Beaulaurier, Fortuna, Lind, & Emlet, 2014). Age is strongly associated with perceived HIV-related stigma, largely due to feelings of being an unvalued member of one’s community (Cuca et al, 2017). Even after experiencing oppression and hardship, middle-aged and older African American women living with HIV demonstrate the ability to endure and adapt by sustaining any support that’s available to them (Subramaniam, et al, 2016).…”

Section: Introductionmentioning

confidence: 99%

Risk and protective factors of posttraumatic stress disorder among African American women living with HIV

et al. 2018

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We sought to examine risk and protective factors for Posttraumatic Stress Disorder (PTSD) among African American women living with HIV. This is a cross-sectional analysis of baseline data from a randomized trial of an HIV stigma reduction intervention. We examined data from two-hundred and thirty-nine African American women living with HIV. We examined whether age, marital status, level of education, internalized HIV-related stigma, and social support as potential protective and risk factors for PTSD symptoms using logistic regression. We analyzed bi-variate associations between each variable and PTSD symptoms, and constructed a multivariate logistic regression model adjusting for all variables. We found 67% reported clinically significant PTSD symptoms at baseline. Our results suggest that age, education, and internalized stigma were found to be associated with PTSD symptoms (p < 0.001), with older age and more education as protective factors and stigma as a risk factor for PTSD. Therefore, understanding this relationship may help improve assessment and treatment through evidence- based and trauma-informed strategies.

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HIV Stigma and Social Capital in Women Living With HIV

Cited by 26 publications

References 36 publications

Women Living With HIV in High Income Countries and the Deeper Meaning of Breastfeeding Avoidance: A Metasynthesis

Women Living With HIV in High Income Countries and the Deeper Meaning of Breastfeeding Avoidance: A Metasynthesis

Feasibility and Acceptability of an HIV/AIDS Self-Management Education Program for HIV-Positive Men Who Have Sex With Men in Thailand

Risk and protective factors of posttraumatic stress disorder among African American women living with HIV

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