HIV-Related Self-Stigma and Health-Related Quality of Life of People Living With HIV in Finland

Nobre, Nuno; Pereira, Marco; Roine, Risto P.; Sutinen, Jussi; Sintonen, Harri

doi:10.1016/j.jana.2017.08.006

Cited by 53 publications

(52 citation statements)

References 51 publications

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“…A higher education level was positively associated with disclosure concern . This is consistent with a study among PLWHA in Finland [ 36 ], in which high education level and financial difficulties were associated with greater self-stigma. This result may be explained by that PLWHA with a higher education may be more likely to concern about the damage to social position brought by HIV infection, thus leading to more concern with HIV disclosure [ 37 ].…”

Section: Discussionsupporting

confidence: 92%

HIV-related stigma among people living with HIV/AIDS in rural Central China

Zhen

Morano

Khoshnood³

et al. 2018

BMC Health Serv Res

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BackgroundHIV-related stigma among people living with HIV/AIDS (PLWHA) has been associated with many negative consequences, including poor adherence to therapy and undue psychological stress. However, the relative influence of specific demographic and situational factors contributing to HIV-related stigma among rural PLWHA in central China remains unknown. The aim of this study was to explore the level of HIV-related stigma among rural PLWHA across specific demographic and situational factors in central China.MethodsA cross-sectional study was conducted among PLWHA receiving care through the Chinese Centers for Disease Control of Zhenping county in Henan Province, China. Participants completed a 55-item questionnaire which included demographic and disease-related factors, HIV-related stigma was measured utilizing the validated Berger HIV Stigma Scale which has good psychometric characteristics in Chinese PLWHA.ResultsA total of 239 PLWHA completed the survey. The mean total HIV-related stigma score was 105.92 (SD = 12.35, 95% CI: 104.34, 107.49). Multivariable linear regression analysis revealed a higher level of HIV-related stigma in younger PLWHA (β = − 0.57, 95% CI = − 0.78,-0.35, p<0.001) and those who self-reported opportunistic infections (β = 6.26, 95% CI = 1.26, 11.26, p < 0.05).ConclusionsThe findings in the current study suggest that rural PLWHA in central China suffer from the burden of HIV-related stigma at a moderate to high level. Younger PLWHA and PLWHA that have opportunistic infections tend to perceive a higher level of HIV stigma.

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Section: Discussionsupporting

confidence: 92%

HIV-related stigma among people living with HIV/AIDS in rural Central China

Zhen

Morano

Khoshnood³

et al. 2018

BMC Health Serv Res

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“…A possible explanation might be that PLWHA who were more educated had increased self-stigma, which cause fear of disclosure. [51] Also, 99.4% and 95.8% of the illiterate participants lived in rural areas and had an HIMPC <500 yuan in this study. In China, national policy, “Four Free and One Care,” documented that PLWHA living in rural areas or impoverished individuals without insurance residing in urban areas can receive free antiretroviral drugs treatment and financial assistance from the government.…”

Section: Discussionmentioning

confidence: 68%

Status and associated characteristics of HIV disclosure among people living with HIV/AIDS in Liangshan, China

et al. 2019

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Human immunodeficiency virus (HIV) disclosure is a prerequisite to get access to antiretroviral therapy (ART) and social support. Increased disclosure of HIV status has been shown to reduce mother-to-child transmission and high-risk sexual behaviors. Limited studies were conducted to get an insight into HIV disclosure among people living with HIV/acquired immune deficiency syndrome (AIDS) (PLWHA) in Liangshan. Our study aimed to investigate the status and associated characteristics of HIV disclosure among PLWHA in Liangshan. We conducted a cross-sectional study using a stratified, convenience sampling method from August to December in 2017. All of the participants were from Liangshan, a typical impoverished mountainous area which also has a long history of drug production and drug trade. Each participant completed a structured questionnaire including HIV disclosure status, demographic and HIV-related characteristics, social support, and perceived HIV-related stigma. We performed a binary regression analysis to detect associated characteristics of HIV disclosure among PLWHA in Liangshan. A final sample size of 318 participants was included in this study. The overall prevalence of HIV disclosure was 83.6% (266/318). In binary logistic regression analysis, PLWHA who had higher educational levels, and got infected by sexual transmission were less likely to disclose their HIV status (both P < .05). HIV nondisclosure was correlated with a higher level of perceived HIV-related stigma ( P < .01). The prevalence of HIV disclosure was relatively low in Liangshan. Healthcare workers are suggested to conduct more counseling and education to promote safe sexual behaviors and reduce perceived stigma among PLWHA, then enhance HIV serostatus disclosure.

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“…Alternatively, while Loutfy et al (2012) found lower stigma scores among patients who attended college, 53 we observed higher HCV‐SS scores among participants who attended some college or earned an associate degree. Several studies among people living with HIV have similarly found increased stigma among those with higher educational attainment 22,54,55 . It is possible that those with higher education may be more attuned to the health‐related and social consequences of their HCV status, and therefore experience greater internalized or perceived stigma.…”

Section: Discussionmentioning

confidence: 99%

Determinants of stigma among patients with hepatitis C virus infection

Saine

Szymczak

Moore

et al. 2020

Journal of Viral Hepatitis

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Stigma around hepatitis C virus (HCV) infection is an important and understudied barrier to HCV treatment and elimination. The determinants of HCV-related stigma, including the impacts of stage of HCV treatment (ie spontaneously cleared; diagnosed, untreated; previously treated, not cured; currently being treated; and treated, cured) and coinfection with human immunodeficiency virus (HIV), remain unknown. To address these gaps, we conducted a cross-sectional study among patients with a history of HCV infection (n = 270) at outpatient clinics in Philadelphia from July 2018 to May 2019. We evaluated stigma using the validated HCV Stigma Scale, adapted from the Berger HIV Stigma Scale. Associations among HCV-related stigma and hypothesized demographic, behavioural, and clinical risk factors were evaluated by multivariable linear regression. Most participants (95.5%) experienced HCV-related stigma. Mean stigma scores did not differ significantly between HCV-monoinfected and HIV/HCVcoinfected participants (P = .574). However, we observed significant interactions between HIV status and multiple determinants; therefore, we stratified analyses by HIV status. Among HIV/HCV-coinfected participants, previous HCV treatment without cure, female gender, Hispanic/Latinx ethnicity and some college education were significantly associated with higher HCV-stigma scores. An annual income of $10 000-$40 000 was associated with significantly lower stigma scores. No significant associations were observed among HCV-monoinfected participants. We found that most participants experienced stigma associated with HCV diagnosis. While stigma scores were similar between HCV-monoinfected and HIV/HCV-coinfected participants, the determinants associated with HCV stigma differed by HIV status.

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HIV-Related Self-Stigma and Health-Related Quality of Life of People Living With HIV in Finland

Cited by 53 publications

References 51 publications

HIV-related stigma among people living with HIV/AIDS in rural Central China

HIV-related stigma among people living with HIV/AIDS in rural Central China

Status and associated characteristics of HIV disclosure among people living with HIV/AIDS in Liangshan, China

Determinants of stigma among patients with hepatitis C virus infection

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