HIV Disclosure to Family Members and Medication Adherence: Role of Social Support and Self-efficacy

Mi, Tianyue; Li, Xiaoming; Zhou, Guangyu; Qiao, Shan; Shen, Zhiyong; Zhou, Yuejiao

doi:10.1007/s10461-019-02456-1

Cited by 60 publications

(50 citation statements)

References 69 publications

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“…The family members' engagement and enrichment of their perception, awareness and self-efficiency in providing the expected support to their family member HDP was another auspicious experience in this research and had been addressed based on the findings of earlier research for embracing health-related advantages. [47][48][49] The health-care providers (HCPs) in the study venue (nursing staff and physicians) were also sensitized and advised to be mindful about the HDPs' need for emotional support and encouragement in having a better therapeutic adherence profile, congruent with the pinpointed recommendations in the scientific literature to accomplish therapeutic goals and clinical targets. 50,51 This is while lack of abovementioned physical, psychological and social support, for instance, family members' support, 52 in the planned health care for the HDPs were suggested to be associated with difficulty with fluid restrictions and coming to dialysis therefore, failing to achieve proposed clinical outcomes.…”

Section: Discussionmentioning

confidence: 99%

<p>Effectiveness of a Multifaceted Educational Intervention to Enhance Therapeutic Regimen Adherence and Quality of Life Amongst Iranian Hemodialysis Patients: A Randomized Controlled Trial (MEITRA Study)</p>

Zhianfar¹,

Nadrian²,

Jafarabadi³

et al. 2020

JMDH

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Purpose: A multimodal intervention designed and executed to improve therapeutic regimen adherence and quality of life in a sample of Iranian hemodialysis patients. Its feasibility and impact was assessed post intervention. Patients and Methods: This randomized controlled trial (RCT) study was conducted at two hemodialysis wards of the Shahrvand hospital located in Sari, the capital city of the Mazandaran province, north of Iran. The study sample included patients with end-stage renal disease (ESRD) receiving outpatient hemodialysis treatment. Considering 10% attrition, 70 registered patients were randomly categorized into intervention and control groups. The proposed intervention included playing of relevant educational video tracks, conducting eight cognitive behavioral therapy (CBT) group sessions, and telephone-based peer support. Data were collected applying a set of questionnaires including sociodemographic, Beck Depression Inventory (BDI-SF), Multidimensional Scale of Perceived Social Support (MSPSS), Patient Satisfaction with Nursing Care Quality Questionnaire (PSNCQQ), End-Stage Renal Disease Adherence Questionnaire (ESRD-AQ) and the World Health Organization Quality of Life (WHOQOL-SF) scale. Sociodemographic and clinical data were collected at baseline in both groups and the postintervention assessment was performed in the intervention and nonintervention groups after one month and three months. Results: A significant change in the self-reported depression symptoms (P=0.001), mean social support score (P=0.001), nursing care satisfaction score (P=0.001), quality of life score (P=0.001) and interdialytic weight gain (IDWG) (P=0.001) was observed among the participants in the intervention group compared to the baseline measures. The highest rise in the ESRD-AQ scores within the intervention group was observed after one month of intervention (mean difference=131.88) compared to the baseline values. Same pattern of statistically significant changes in mean scores of the intervention group's attendants in all subscales of the ESRD-AQ were also ascertained. Conclusion: This interventional study revealed that inaugurating of a feasible low-cost intervention without need to add major logistic or financial inputs into existing health-care systems, especially in resource limited contexts, is achievable. Findings of this study could provide insights into scientific basis of evidence-informed interventions applicable in the realm of health-care delivery.

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Section: Discussionmentioning

confidence: 99%

<p>Effectiveness of a Multifaceted Educational Intervention to Enhance Therapeutic Regimen Adherence and Quality of Life Amongst Iranian Hemodialysis Patients: A Randomized Controlled Trial (MEITRA Study)</p>

Zhianfar¹,

Nadrian²,

Jafarabadi³

et al. 2020

JMDH

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“…Finally, YLMSM in our study described that lack of HIV status disclosure to surrounding individuals when ART took place resulted in modification of ART pill-taking routine that sometimes led to ART adherence interruptions. While lack of HIV status disclosure to family and/or friends has been associated with poor ART adherence in numerous studies, these studies have focused on overall disclosure to social network members (Anderson et al, 2018;Mi et al, 2020;Stirratt et al, 2006) similar to our conceptualization which was based on Cook et al's framework (2010) and the Social-Ecological Model (Bronfenbrenner, 1989). Instead, our participants' description of disclosure was more practicalexpressing inadvertent disclosure to surrounding individuals when it was time to take their ARTs as a factor affecting their ability or willingness to take their ART medication.…”

Section: Discussionmentioning

confidence: 99%

A qualitative study of antiretroviral therapy adherence interruptions among young Latino men who have sex with men with HIV: Project D.A.I.L.Y.

et al. 2021

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Consistent antiretroviral therapy (ART) adherence is necessary for HIV viral suppression. However, adherence may fluctuate around daily routines and life events, warranting intervention support. We examined reasons for ART adherence interruptions, using in-depth, semi-structured qualitative interviews, among young (18-34-year-old) Latino men who have sex with men (YLMSM) with HIV. Interviews (n = 24) were guided by the Theory of Planned Behavior, the Information-Motivation-Behavioral Skills Theory, and the Socio-Ecological Model. Two coders independently coded transcripts using NVivo 12 software and synthesized codes into themes using Thematic Content Analysis. Results suggested 4 primary influences on ART adherence interruptions: (1) HIV diagnosis denial, (2) breaks in daily routine, (3) substance use, and (4) HIV status disclosure. Participant quotes highlighted routinization of pill-taking and planning ahead for breaks in routine as critically important. The narrative suggested modification of pill-taking routines during alcohol use, and that periods most vulnerable for long-term interruptions in ART adherence were following an HIV diagnosis and during periods of drug use. Support at the time of HIV diagnosis, including a plan for routinization of pill taking, and adaptive interventions incorporating real-time support during breaks in routines and substance use episodes may be one way to help YLMSM adhere to ARTs.

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“…A higher score indicates more medication social support. The Chinese-version of MSSS has been tested among patients with HIV and the Cronbach’s alpha was 0.92 62…”

Section: Methods and Analysismentioning

confidence: 99%

Examining and adapting the information–motivation–behavioural skills model of medication adherence among community-dwelling older patients with multimorbidity: protocol for a cross-sectional study

et al. 2020

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IntroductionMultimorbidity is highly prevalent among older patients and has been shown to be associated with poor health outcomes and lower quality of life. Adherence to medication treatments is essential in order to maximise the efficacy of treatments and improve health outcomes. However, nearly half of the older patients with multimorbidity fail to adhere to their medications, which can result in an increased risk of adverse health events, lower quality of life and higher healthcare cost. Only a few studies have explored the underlying mechanism and influencing factors of medication adherence among older patients with multimorbidity, which are inadequate to provide robust evidence for the development and evaluation of the medication adherence interventions. This study aims to examine and adapt the information–motivation–behavioural skills (IMB) model, a widely used social behaviour theory, to explain the medication adherence behaviour among community-dwelling older patients with multimorbidity.Methods and analysisA cross-sectional study will be conducted in community settings in China. Around 309 older patients with multimorbidity will be recruited to complete questionnaires on adherence knowledge, adherence motivation, adherence self-efficacy, medication adherence, medication treatment satisfaction, depressive symptoms, treatment burden, disease burden and basic demographic information. Structural equation modelling will be used to analyse and validate the relationships among variables in the IMB model.Ethics and disseminationThis study has been approved by the Survey and Behavioral Research Ethics Committee of the Chinese University of Hong Kong (reference number SBRE-18-675). The study results will be published in peer-reviewed journals and presented in academic conferences and workshops.Trial registration numberChiCTR1900024804.

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HIV Disclosure to Family Members and Medication Adherence: Role of Social Support and Self-efficacy

Cited by 60 publications

References 69 publications

<p>Effectiveness of a Multifaceted Educational Intervention to Enhance Therapeutic Regimen Adherence and Quality of Life Amongst Iranian Hemodialysis Patients: A Randomized Controlled Trial (MEITRA Study)</p>

<p>Effectiveness of a Multifaceted Educational Intervention to Enhance Therapeutic Regimen Adherence and Quality of Life Amongst Iranian Hemodialysis Patients: A Randomized Controlled Trial (MEITRA Study)</p>

A qualitative study of antiretroviral therapy adherence interruptions among young Latino men who have sex with men with HIV: Project D.A.I.L.Y.

Examining and adapting the information–motivation–behavioural skills model of medication adherence among community-dwelling older patients with multimorbidity: protocol for a cross-sectional study

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