HIV Counseling, Testing and Referral Experiences of Persons Diagnosed with HIV Who Have Never Entered HIV Medical Care

Garland, Pamela Morse; Valverde, Eduardo; Fagan, Jennifer; Beer, Linda; Sanders, Catherine; Hillman, Daniel; Brady, Kathleen A.; Courogen, Maria; Bertolli, Jeanne

doi:10.1521/aeap.2011.23.3_supp.117

Cited by 22 publications

(28 citation statements)

References 17 publications

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“…A total of 24 studies were identified. Six studies were from low-income countries (Bezabhe et al, 2014, Busza et al, 2014a, Busza et al, 2014b, MacPherson, 2013, Nsigaye et al, 2009, Shroufi et al, 2013), ten studies were from middle-income countries (Agbonyitor, 2009, Ferguson et al, 2014, Jama and Tshotsho, 2013, Kroeger et al, 2011, Lazarus et al, 2012, Miller et al, 2010, Naik, 2013, Sarna et al, 2014, Smillie et al, 2014, Naik et al, 2013), and eight from high-income countries (Cameron et al, 2009, Garland et al, 2011, Johnson et al, 2003, Magidson et al, 2014, Montoya et al, 2014, Nunn et al, 2010, Prentice et al, 2011, Weiss et al, 2006). We identified seven cross-cutting themes (Table 2).…”

Section: Resultsmentioning

confidence: 99%

Enhancing Public Health HIV Interventions: A Qualitative Meta-Synthesis and Systematic Review of Studies to Improve Linkage to Care, Adherence, and Retention

et al. 2017

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Although HIV services are expanding, few have reached the scale necessary to support universal viral suppression of individuals living with HIV. The purpose of this systematic review was to summarize the qualitative evidence evaluating public health HIV interventions to enhance linkage to care, antiretroviral drug (ARV) adherence, and retention in care. We searched 19 databases without language restrictions. The review collated data from three separate qualitative evidence reviews addressing each of the three outcomes along the care continuum. 21,738 citations were identified and 24 studies were included in the evidence review. Among low and middle-income countries in Africa, men living with HIV had decreased engagement in interventions compared to women and this lack of engagement among men also influenced the willingness of their partners to engage in services. Four structural issues (poverty, unstable housing, food insecurity, lack of transportation) mediated the feasibility and acceptability of public health HIV interventions. Individuals living with HIV identified unmet mental health needs that interfered with their ability to access HIV services. Persistent social and cultural factors contribute to disparities in HIV outcomes across the continuum of care, shaping the context of service delivery among important subpopulations.

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Section: Resultsmentioning

confidence: 99%

Enhancing Public Health HIV Interventions: A Qualitative Meta-Synthesis and Systematic Review of Studies to Improve Linkage to Care, Adherence, and Retention

et al. 2017

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“…Extended post-test counselling, both immediately after notification of results or through multiple sessions thereafter, allowed for the accommodation of patients’ psychological reactions and enabled a thorough answering of questions or clarification of misconceptions. In one study of persons diagnosed with HIV but were never engaged in care, one respondent lamented that during diagnosis, providers “could’ve sat down and really talked to me about it,” pg 124 (Garland et al, 2011). Ongoing patient education from peers in support groups or by caseworkers was also a salient feature of this informational factor that contributed to HIV literacy for eventual care competence.…”

Section: Resultsmentioning

confidence: 99%

“…With the future enrollment and retention of individuals in care beginning at the testing site the moment they are diagnosed with HIV (Garland et al, 2011), providers must offer ample time and space for post-test counseling to thoroughly answer their questions. This runs counter to the trend of abbreviating or making post-test counseling advisable but not mandatory in medical care settings (Obermeyer & Osborn, 2007).…”

Section: Discussionmentioning

confidence: 99%

Enroling and retaining human immunodeficiency virus (HIV) patients in their care: A metasynthesis of qualitative studies

Flores

Leblanc

Barroso

2016

International Journal of Nursing Studies

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Objectives To report the findings of a metasynthesis review of qualitative studies on patient and provider experiences and perspectives on linkage and retention in HIV care. Design The review is an extraction, aggregation, interpretation and synthesis of qualitative findings based on the Sandelowski and Barroso method. Data sources A search of the literature was conducted in the databases Cumulative Index to Nursing and Allied Health, PubMed and PsycInfo for articles published from 2008–2013. Inclusion criteria were qualitative research articles published in English from across the world and in peer-reviewed journals. Literature reviews, conference abstracts and grey literature were excluded from this metasynthesis. Review Methods The review consisted of a) comprehensive search, b) study classification, c) abstraction of findings, d) synthesis. Of the 4640 citations screened, 69 articles were included for this metasynthesis. Results 69 unique articles from 44 countries were included. This metasynthesis takes into account the perspectives of at least 2263 HIV-positive participants (740 men, 1008 women, 78 transgender individuals and 437 unspecified sex) and 994 healthcare providers, family members and community members. The most salient barriers and facilitators to HIV linkage and retention in HIV care affirm ecological factors that are mostly beyond individual patients’ control. Triadic streams of influence concurrently affect care engagement that include a person’s psychological state upon diagnosis and their informational challenges (intrapersonal stream); one-on-one interactions with providers and their immediate community (social stream); and life demands, overall quality of care experiences and other structural barriers (cultural-attitudinal stream). Each stream’s influence on HIV care engagement varies at any given point to reflect an individual’s evolving and unique experiences with HIV infection throughout the illness trajectory. Conclusion There is sufficient evidence that detail how to best link and retain patients in HIV care. Themes identified indicate going beyond individual-level factors and towards shifting attention and resources to systems that patients navigate. Forceful structural-level actions are needed to correct these long-identified barriers and enhance care engagement facilitators.

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“…34,35 Preference for alternative medicines were observed in a number of these studies, but particularly in the German and US research, 29,36 and mistrust of medications and medical care providers was particularly stressed in research from the USA, as was the role of stigma and perceived cost of treatment. 31,[37][38][39] Other factors that influence the uptake of ART in Australia and comparable settings include an individual's capacity to make informed treatment decisions, such as health literacy and decision making ability. 40,41 Tolerance of psychological and physical distress and discomfort, 42 problems with illicit drug use, 43,44 and the views of medical providers may also influence decisions to use ART.…”

mentioning

confidence: 99%

‘Not Until I'm Absolutely Half-Dead and Have To:’ Accounting for Non-Use of Antiretroviral Therapy in Semi-Structured Interviews with People Living with HIV in Australia

Newman

Mao

Persson

et al. 2015

AIDS Patient Care and STDs

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Current debates regarding the use of antiretroviral therapy (ART) to promote both individual-and populationlevel health benefits underscore the importance of understanding why a subpopulation of people with diagnosed HIV and access to treatment choose not to use it. Semi-structured interviews were conducted between 2012 and 2014 with 27 people living with HIV in Australia who were not using ART at the time of interview. Analytic triangulation permitted an appreciation of not only the varied personal reasons for non-use of treatment, but also underlying views on HIV treatment, and the ideal conditions imagined necessary for treatment initiation. Policy goals to increase the number of people with HIV using ART must recognize the diverse explanations for nonuse of ART, which include concerns about the various impacts of committing to lifelong pharmaceutical treatment use. Our research identified distinctive subgroups among people who are not using antiretroviral therapy, with a range of individual and social needs that may affect treatment decisions. These findings challenge assumptions about treatment non-use in resource-rich settings, revealing persistent consumer fears about the potent and unknown effects of HIV medications that deserve greater recognition in policy debate on treatment uptake.

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HIV Counseling, Testing and Referral Experiences of Persons Diagnosed with HIV Who Have Never Entered HIV Medical Care

Cited by 22 publications

References 17 publications

Enhancing Public Health HIV Interventions: A Qualitative Meta-Synthesis and Systematic Review of Studies to Improve Linkage to Care, Adherence, and Retention

Enhancing Public Health HIV Interventions: A Qualitative Meta-Synthesis and Systematic Review of Studies to Improve Linkage to Care, Adherence, and Retention

Enroling and retaining human immunodeficiency virus (HIV) patients in their care: A metasynthesis of qualitative studies

‘Not Until I'm Absolutely Half-Dead and Have To:’ Accounting for Non-Use of Antiretroviral Therapy in Semi-Structured Interviews with People Living with HIV in Australia

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