History, implementation, and current status of the national spinal cord injury database

Stover, Samuel L.; Vivo, Michael J. De; Go, Bette K.

doi:10.1016/s0003-9993(99)90246-0

Cited by 126 publications

(61 citation statements)

References 9 publications

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“…The inclusion and exclusion criteria, data collection process, quality control, and collaborating centers of the database have been previously described in detail. 11 For the present study, we limited the analyses to participants enrolled in the database between 1986 and 1995, aged 15 to 80 years at injury, and discharged alive from initial hospital care. A total of 5711 SCI patients were eligible for the present study.…”

Section: Methodsmentioning

confidence: 99%

Epidemiology of extraspinal fractures associated with acute spinal cord injury

et al. 2001

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Study design: A descriptive study of concurrent extraspinal fractures collected prospectively during initial hospital care. Objectives: To examine the frequency and related characteristics of concurrent extraspinal fractures among patients with a new onset of spinal cord injury (SCI). Setting: Model SCI care systems throughout the United States. Methods: A consecutive sample of 5711 subjects admitted to the National SCI Database between 1986 ± 1995 was recruited to estimate the incidence of extraspinal fractures associated with acute SCI, strati®ed by anatomic sites, demographics, and injury related characteristics. Results: Of 5711 subjects, 1585 (28%) patients had extraspinal fractures; 580 (37%) patients had more than one fracture site. The most common region of fractures was chest, followed by lower extremity, upper extremity, head, others, and pelvis. The overall incidence rate was higher for women than men, for whites than non-whites, for paraplegics than tetraplegics, and for those injured in motor vehicle crashes than others. Compared with patients having single fracture, those who had multiple fractures were likely to be white, paraplegic, and injured in motor vehicle crashes. There was no age di erence in the incidence of concurrent fractures, single or multiple. Conclusions: Extraspinal fractures are not uncommon at the same time as SCI. The fracture occurrence varies by gender, race, injury level, and etiology of injury. The knowledge of these associated factors will aid in early recognition of fractures, preventing complications, and facilitating rapid mobilization and rehabilitation outcomes among persons with SCI. Spinal Cord (2001) 39, 589 ± 594

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Section: Methodsmentioning

confidence: 99%

Epidemiology of extraspinal fractures associated with acute spinal cord injury

et al. 2001

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“…Additional eligibility criteria and their changes over time have been documented previously. 11,12 Evaluations were conducted 5 years post-injury on 9225 of these persons. Reasons for not conducting a fifth annual evaluation include death or complete recovery during the first 5 years, injuries during 2001-2006 that are not yet 5 years old, injuries during the last 5 years of funding of several model systems that dropped out of the program at various times during the past 3 decades, and losses to follow-up because of inability to locate or refusal to participate.…”

Section: Study Populationmentioning

confidence: 99%

“…Additional details of the data collection and quality control procedures have been reported previously. 11,12 Measures Demographic information contained in the NSCISC database and used in this study includes age, gender, race/ethnicity, educational level, and employment status at time of injury and annual evaluation. Injury severity is assessed by using the most current version of the International Standards for Neurological Classification at model system admission, discharge, and annual evaluation (if the annual evaluation was performed in person).…”

Section: Data Collectionmentioning

confidence: 99%

“…The present repository of this database is the National Spinal Cord Injury Statistical Center (NSCISC) located at the University of Alabama at Birmingham. 11,12 One way to evaluate the effectiveness of the model system program is to compare the experiences of persons treated in its early stages with those of similar persons treated more recently. Therefore, the purpose of this study was to conduct a comprehensive review of the NSCISC database to identify any long-term trends in treatment practices, costs, and outcomes that have occurred as the model system program has grown and evolved.…”

Section: Introductionmentioning

confidence: 99%

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Sir Ludwig Guttmann Lecture: Trends in spinal cord injury rehabilitation outcomes from model systems in the United States: 1973–2006

DeVivo

2007

Spinal Cord

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Study design: Consecutive case series with 5-year follow-up. Objective: To evaluate the spinal cord injury (SCI) model systems program in the United States by documenting improvements in treatment outcomes over time. Setting: SCI model systems throughout the United States. Methods: Initial data were collected on 24 332 patients injured between 1973 and 2006. Follow-up data were collected on 9225 of these patients 5 years post-injury. All data were grouped by calendar year. Descriptive statistics included means and percentages. Multiple linear or logistic regression was used to assess outcome trends after adjusting for demographics and injury severity. Results: Acute care and rehabilitation lengths of stay declined dramatically over time (Po0.01). Mean functional independence measure motor score at discharge and gain during rehabilitation decreased, whereas gain per day increased (Po0.01). The probability of neurologic improvement from admission to discharge increased. Odds of medical complications decreased during in-patient treatment, but increased post-discharge (Po0.05). Rehospitalizations declined over time (Po0.01). Community integration improved. First year mortality rates improved, but longer term mortality rates showed no improvement since 1982. Conclusions: Steady improvements have occurred for many treatment outcomes. Newer and more effective methods of prevention and treatment need to be developed to target those outcomes that have not improved and remain suboptimal.

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“…spinalcord.uab.edu/show.asp?durki ¼ 24480&site ¼ 1287 &return ¼ 19775. [6][7] Review and revision of the draft core data set syllabus was accomplished through an iterative e-mail process and a series of executive committee telephone conference calls and open meetings.…”

Section: Methodsmentioning

confidence: 99%

International Spinal Cord Injury Core Data Set

et al. 2006

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Study design: Survey of expert opinion, feedback, and development of final consensus. Objective: Present the background, purpose, development process, and results for the International Spinal Cord Injury (SCI) Core Data Set. Setting: International. Methods: A committee of experts was established to select and define data elements to be included in an International SCI Core Data Set. A draft core data set was developed and disseminated to appropriate organisations for comment. All suggested revisions were considered, and a final version of the core data set was disseminated again for approval and adoption. Results: The core data set consists of 24 variables, including basic demographic characteristics, dates of admission and discharge from initial acute and rehabilitation care, cause of injury, place of discharge, presence of vertebral fractures and associated injuries, occurrence of spinal surgery, and measures of neurological and ventilator status. Conclusion: Collection of the core data set should be a basic ingredient of all future studies of SCI to facilitate accurate description of patient populations and comparison of results across published studies from around the world.

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History, implementation, and current status of the national spinal cord injury database

Cited by 126 publications

References 9 publications

Epidemiology of extraspinal fractures associated with acute spinal cord injury

Epidemiology of extraspinal fractures associated with acute spinal cord injury

Sir Ludwig Guttmann Lecture: Trends in spinal cord injury rehabilitation outcomes from model systems in the United States: 1973–2006

International Spinal Cord Injury Core Data Set

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