Higher levels of unmet support needs in spouses are associated with poorer quality of life – a descriptive cross-sectional study in the context of palliative home care

Norinder, Maria; Årestedt, Kristofer; Lind, Susanne; Axelsson, Lena; Grande, Gunn; Ewing, Gail; Holm, Maja; Öhlén, Joakim; Benkel, Inger; Alvariza, Anette

doi:10.1186/s12904-021-00829-9

Cited by 20 publications

(29 citation statements)

References 52 publications

(56 reference statements)

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“…Previous studies revealed that family caregivers presented a poor quality of life due to low preparedness for patient care [ 37 ]. Likewise, spouses of palliative care partners reported poorer quality of life due to higher levels of unmet support needs [ 38 ].…”

Section: Discussionmentioning

confidence: 99%

Depression Associated with Caregiver Quality of Life in Post-COVID-19 Patients in Two Regions of Peru

et al. 2022

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Due to COVID-19, the workload experienced by caregivers has increased markedly which has led them to experience fatigue, anxiety and depression. This study aims to determine the relationship between quality of life and depression in caregivers of post-COVID-19 patients in two regions of Peru. In a cross-sectional analytical study, the sample was non-probabilistic and by snowball, and consisted of 730 caregivers, to whom the questionnaires “Modified Betty Ferell Quality of Life” and the “Beck Depression Inventory” were applied. It was determined that being a male caregiver (OR: 2.119; 95% CI: 1.332–3.369) was associated with a good quality of life. On the other hand, caregivers who had children (OR: 0.391; 95% CI: 0.227–0.675), were vaccinated against COVID-19 (OR: 0.432; 95% CI: 0.250–0.744), were immediate family members (OR: 0.298; 95% CI: 0.117–0.761) and had high depression (OR: 0.189; 95% CI: 0.073–0.490) were associated with poor quality of life. The results of this study allow us to conclude the association between depression and poor quality of life in caregivers of these patients so it is necessary to monitor the mental health of caregivers, and to develop adaptation strategies to pandemic conditions.

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Section: Discussionmentioning

confidence: 99%

Depression Associated with Caregiver Quality of Life in Post-COVID-19 Patients in Two Regions of Peru

et al. 2022

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“…Research has shown that family caregivers of advanced cancer patients have an array of unmet support needs, encompassing the domains of care service, physical, psychological, practical, social, information, and spiritual support 9,10 . A small body of studies on the relationship between unmet support needs and HRQOL in family caregivers of cancer patients have started to accumulate, with consistent results showing a significant negative association between the two 11,12 . Despite this, the mechanism through which unmet support needs is associated with HRQOL remains unknown.…”

Section: Introductionmentioning

confidence: 99%

“…9,10 A small body of studies on the relationship between unmet support needs and HRQOL in family caregivers of cancer patients have started to accumulate, with consistent results showing a significant negative association between the two. 11,12 Despite this, the mechanism through which unmet support needs is associated with HRQOL remains unknown. Identifying how unmet support needs influence HRQOL would help healthcare providers to develop and evaluate interventions that could improve the well-being of caregivers of palliative cancer patients.…”

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confidence: 99%

Mediating role of self‐efficacy between unmet needs and quality of life in palliative cancer caregivers

Cheng

Leung

et al. 2023

Psycho-Oncology

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Objective: Although unmet support needs are associated with health-related quality of life (HRQOL) in cancer caregivers, little is known about the mechanism underlying the relationship between two variables. The self-efficacy (SE) theory and literature suggest that caregiving SE is important in the perception of and reaction to caregiving demands, which in turn affects HRQOL. The aim of this study was to examine whether caregiving SE mediates the relationship between unmet support needs and HRQOL in family caregivers of palliative cancer patients. Methods:This secondary analysis used the data from 125 family caregivers of palliative cancer patients who were recruited from two public hospitals in Hong Kong.The caregivers completed a survey questionnaire that covered socio-demographic characteristics, unmet support needs, caregiving SE, and HRQOL. Parallel mediation analyses were conducted via SPSS PROCESS macro (Model 4) to test the hypothesized models. Results:The direct effect of unmet support needs on mental HRQOL was significant (effect = −0.49, 95% CI = −0.06 to −0.92). For the indirect effect, only caregiving SE in the domain of 'care for the care recipient' mediated the relationship between unmet support needs and mental HRQOL (effect = −0.32, 95% CI = −0.08 to −0.59). Conclusion:The findings suggest that caregiving SE may function as a mechanism through which unmet support needs influence mental HRQOL in family caregivers of palliative cancer patients. Healthcare providers should consider developing supportive care interventions to improve caregivers' HRQOL by incorporating effective strategies to enhance SE and reduce unmet needs for this population.

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“…17 Furthermore, in both cases, family caregivers face severe burdens when caring for patients toward the end of their lives. [18][19][20][21] Therefore, many family caregivers also have health care needs, such as practical and emotional support for themselves, as well as information needs. [21][22][23] These findings suggest that when caring for patients with both terminal cancer and dementia, the caregiver burden may be higher because of these two serious illnesses.…”

Section: Introductionmentioning

confidence: 99%

Nationwide Survey on Caregiver Burden When Supporting Terminal Cancer Patients with Dementia: Bereaved Family Members’ Perspective

et al. 2023

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Objective The prevalence of dementia and cancer has increased in recent years. The presence of dementia complicates the care of terminal cancer patients and affects their family caregivers. However, palliative care research seldom focuses on the family caregivers of patients with terminal cancer and dementia. This study aimed to evaluate the degree and factors of caregiver burden in cancer patients with dementia who died in hospice palliative care units. Methods: A nationwide cross-sectional survey was conducted among bereaved family members of patients with cancer who died in palliative care units. An anonymous self-report questionnaire was sent to bereaved family members, and they were asked if they were aware of the diagnosis of dementia. The short version of the Caregiver Consequence Inventory was used to measure caregiver burden. Results: The analysis included 670 bereaved family members. Of these, 83 (12.4%) were bereaved family members of terminal cancer patients with dementia. The caregiver burden was statistically significantly higher (3.61 ± 1.58 vs 3.22 ± 1.47; p < 0.036) among family caregivers of terminal cancer patients with dementia. Longer anti-cancer treatment duration (odd ratio, 4.63), poor mental and physical health of family caregivers (odds ratio, 2.05 and 2.20, respectively), pain (odd ratio, 1.72), and dyspnea (odds ratio, 1.67) were contributing factors for caregiver burden. Conclusions: Family caregivers of terminal cancer patients with dementia require care that considers the characteristics of the two serious diseases. Considering the goal of anti-cancer treatment and symptom relief may be a useful strategy for reducing caregiver burden.

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Higher levels of unmet support needs in spouses are associated with poorer quality of life – a descriptive cross-sectional study in the context of palliative home care

Cited by 20 publications

References 52 publications

Depression Associated with Caregiver Quality of Life in Post-COVID-19 Patients in Two Regions of Peru

Depression Associated with Caregiver Quality of Life in Post-COVID-19 Patients in Two Regions of Peru

Mediating role of self‐efficacy between unmet needs and quality of life in palliative cancer caregivers

Nationwide Survey on Caregiver Burden When Supporting Terminal Cancer Patients with Dementia: Bereaved Family Members’ Perspective

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