“Here you feel like it's not taboo”: An evaluation of a pediatric hospital-based HIV support group

Muskat, Barbara; Salter, R. Brion; Shindler, Simone; Porter, Megan; Bitnun, Ari

doi:10.1080/15381501.2015.1124310

Cited by 7 publications

(41 citation statements)

References 31 publications

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“…To make interventions available to those who need them, service providers should ensure they have adequate funding for equipment (e.g., Nicholas et al, ), staff expertise in intervention design and delivery (Whittemore, Grey, Lindemann, Ambrosino, & Jaser, ), and space to stage an intervention ( et al, ). Health and social care staff play a key role in recognizing the mental health needs of CYP and supporting them and their families to access an intervention that is appropriate for their needs (e.g., Desai, Sutton, Staley, & Hannon, ;Fair, Connor, Albright, Wise, & Jones, ;Lewis et al, ).…”

Section: Resultsmentioning

confidence: 99%

“…Recognizing the social and family context of CYP was key to ensure they had the appropriate social support available to enable them to maintain engagement with an intervention over time. Parents highlighted the importance of flexibility in the delivery of interventions, such as considering the time of day (e.g., Brodeur, ) and setting (e.g., Muskat et al, ). Providing opportunities for CYP to maintain the peer relationships formed during an intervention via social media (e.g., Kirk & Milnes, ) or organized events (e.g., Desai et al, ; Lewis et al, ) may help maintain the beneficial effects of the social support received through an intervention (as discussed within the construct Social Support) beyond its scheduled endpoint.…”

Section: Resultsmentioning

confidence: 99%

“…Feeling like there are others who share experiences, who talk about topics that cannot be discussed elsewhere and where one feels that they are just like everyone, are important for all children and teens. Feeling "normal" is even more important when one lives with a condition that is often kept secret due to associated shame and stigma (Muskat, Salter, Shindler, Porter, & Bitnun, 2016).…”

Section: Line Of Argumentmentioning

confidence: 99%

“…setting (e.g., Muskat et al, 2016). Providing opportunities for CYP to maintain the peer relationships formed during an intervention via social media (e.g., Kirk & Milnes, 2016) or organized events (e.g., Desai et al, 2014;Lewis et al, 2016) may help maintain the beneficial effects of the social support received through an intervention (as discussed within the construct Social Support) beyond its scheduled endpoint.…”

Section: A Hopeful Alternativementioning

confidence: 99%

“…The presence of familiar people (e.g., Ayres et al; Dennison et al, 2010) and ensuring that there are rules encouraging appropriate behaviour (e.g., Brodeur, 2005;Desai et al, 2014) and protect the privacy and/or anonymity of CYPs (e.g., Nicholas et al, 2007;Stewart et al, 2013a) can support participants to feel secure within an intervention setting. This perception of safety can help CYP "escape" the stigma and worry associated with their LTC experienced during their daily lives (e.g., Muskat et al, 2016). This feeling of being unconstrained can be facilitated by activities that distract CYP from the pain FIGURE 2 Line of argument or boredom associated with long hospital stays (O'Callaghan, Dun, Baron, & Barry, 2013;Docherty et al, 2013) or help them overcome physical limitations associated with their LTC (Gillard & Watts, 2013).…”

Section: A Therapeutic Foundationmentioning

confidence: 99%

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Experiences of interventions aiming to improve the mental health and well‐being of children and young people with a long‐term physical condition: A systematic review and meta‐ethnography

Shaw

Moore

Nunns

et al. 2019

Child

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BackgroundChildren and young people with long‐term physical health conditions are at increased risk of experiencing mental health and well‐being difficulties. However, there is a lack of research that explores the experiences of and attitudes towards interventions aiming to improve their mental health and well‐being. This systematic review seeks to address this gap in the literature by exploring what children and young people with long‐term conditions, their caregivers, and health practitioners perceive to be important aspects of interventions aiming to improve their mental health and well‐being.MethodsAn information specialist searched five academic databases using predefined criteria for qualitative evaluations of interventions aiming to improve the mental health or well‐being of children with long‐term physical conditions. Reviewers also performed supplementary citation and grey literature searches. Two reviewers independently screened titles, abstracts, and full texts that met the inclusion criteria and conducted data extraction and quality assessment. Meta‐ethnography was used to synthesize the findings.ResultsScreening identified 60 relevant articles. We identified five overarching constructs through the synthesis: (a) Getting In and Staying In, (b) Therapeutic Foundation, (c) Social Support, (d) A Hopeful Alternative, and (e) Empowerment. The line of argument that links these constructs together indicates that when interventions can provide an environment that allows young people to share their experiences and build empathetic relationships, it can enable participants to access social support and increase feelings of hope and empowerment.ConclusionThese findings may provide a framework to inform the development of mental health interventions for this population and evaluate existing interventions that already include some of the components or processes identified by this research. Further research is needed to establish which of the constructs identified by the line of argument are most effective in improving the mental well‐being of young people living with long‐term conditions.

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Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

Section: Line Of Argumentmentioning

confidence: 99%

Section: A Hopeful Alternativementioning

confidence: 99%

Section: A Therapeutic Foundationmentioning

confidence: 99%

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Experiences of interventions aiming to improve the mental health and well‐being of children and young people with a long‐term physical condition: A systematic review and meta‐ethnography

Shaw

Moore

Nunns

et al. 2019

Child

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Qualitative evaluation of a support group for women with children with Zika congenital syndrome in Southern Colombia

Vásquez

Gea-Sánchez

Briones-Vozmediano

2021

Disability and Rehabilitation

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“Some believe those who say they can cure it” perceived barriers to antiretroviral therapy for children living with HIV/AIDS: Qualitative exploration of caregivers experiences in tamale metropolis

et al. 2022

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Background HIV/AIDS is now a chronic disease, as adherence to anti-retrovirals impacts positively on the quality as well as expectancy of life. However, there exist multifaceted barriers to treatments for which children are most disadvantaged. Since Ghana subscribed to the “treat all” policy less percentage (25.5%) of children (2–14 years) living with HIV/AIDS have been enrolled on the antiretroviral program compared to other categories of the population by 2019. At present no study has explored these barriers to children living with HIV/AIDS enrollment and adherence. This study aims to explore the perceived barriers of caregivers of children living with HIV/AIDS in the Tamale Metropolis. Methods We used descriptive phenomenology to explore the phenomena. Caregivers were purposively selected and interviewed till information became repetitive at the ninth (9th) caregiver. A semi-structured interview guide was used to collect data through face-to-face in-depth interviews which were audio recorded. The interviews lasted an average of 47 minutes. Audio interviews were transcribed verbatim (English) and translated back-to-back (Daghani) before analysis was done manually according to Collaizi’s seven-step approach. We used the Guba and Lincoln guidelines to ensure the rigour of the study and its findings. Results are presented in themes and supported with quotes. Results Six themes emerged from the analysis of the caregivers’ transcripts; (1) denial of HIV/AID diagnosis, (2) stock-outs and privacy at the clinic, (3) busy schedule and poor support, (4) ignorance and alternative herbal cure, (5) stigma and discrimination, (6) transportation and distance. Conclusion Perceived barriers are multi-dimensional and encountered by all PLWHA, especially children. These barriers could derail the gains of HIV/AIDS interventions among children. Adherence counselling among caregivers alongside campaigns among faith and herbal healers are of grave concern to reduce myths of cure.

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“Here you feel like it's not taboo”: An evaluation of a pediatric hospital-based HIV support group

Cited by 7 publications

References 31 publications

Experiences of interventions aiming to improve the mental health and well‐being of children and young people with a long‐term physical condition: A systematic review and meta‐ethnography

Experiences of interventions aiming to improve the mental health and well‐being of children and young people with a long‐term physical condition: A systematic review and meta‐ethnography

Qualitative evaluation of a support group for women with children with Zika congenital syndrome in Southern Colombia

“Some believe those who say they can cure it” perceived barriers to antiretroviral therapy for children living with HIV/AIDS: Qualitative exploration of caregivers experiences in tamale metropolis

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