Helping the family cope with childhood cancer

Johnson, F. Leonard; Rudolph, Laura A.; Hartmann, John R.

doi:10.1016/s0033-3182(79)70844-9

Cited by 22 publications

(33 citation statements)

References 6 publications

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“…al., 1963;Greenberg, Jewett, Gluck, Champion, Leikin, Altieri & Lipnick, 1984;Howell, 1966;Jones, 1976;Kearney, 1977;Koocher, 1980;Myers, 1983). The importance of communication between doctors and parents is demonstrated by Johnson, Rudolph and Hartmann (1979), who reported that 39% of all parents found 'unanswered medical questions' a major source of distress during the disease. Research has focused on the analysis of the complex verbal and non-verbal communication patterns between medical staff, parents and patients (Farnes, Nation, Schweers & Forman, 1980; Levenson, Pfefferbaum, Copeland & Silberberg, 1982;Pfefferbaum, 1982;.…”

Section: The Child and The Diagnosis Of Cancermentioning

confidence: 99%

“…The actual change in physical image is a constant reminder for the child with cancer that he or she is different from other children (Kagen-Goodheart, 1977;. The side-effects of treatment continually change the child's body image and a number of authors express their concern about the potential loss of self-esteem induced by changes in body image (Bach, 1975;Ebeling & Wallis, 1981;Johnson et al, 1979;Neidhart & Hertl, 1978;Van Eijs, 1977a). A lack of self-confidence resulting from physical appearance might lead to regressive behaviour, a withdrawal from peers and a fear about going to school, thus affecting emotional and social adjustments and academic performance (Kagen-Goodheart, 1977).…”

Section: Bod+ Changesmentioning

confidence: 99%

“…The illness deprives the child of control of daily routine, privacy, relationships with family and friends, and control of life itself . In addition, the greater dependency on others, the restrictions in mobility and activity, the invasion of treatment and the constant medical attention all effects the child's sense of control and competence (Brunnquell & Hall, 1982;Johnson et al, 1979). The implication of cancer for the child varies with the course of development.…”

Section: The Meaning Of Cancer To the Childmentioning

confidence: 99%

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Psychosocial Aspects of Childhood Cancer: A Review of the Literature

Dongen-Melman¹,

Sanders‐Woudstra²

1986

J Child Psychol & Psychiat

106

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The literature concerning the psychosocial aspects of childhood cancer is reviewed. The emphasis of the literature is on the impact of the disease on the child and family and depicts the life-situation when faced with chiidhood cancer and responses to the disease. The literature strongly indicates that families experience serious difficulties and are a population at risk of developing psychosocial problems. The approach of studying the child with cancer and family is discussed and suggestions are made for future research.

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Section: The Child and The Diagnosis Of Cancermentioning

confidence: 99%

Section: Bod+ Changesmentioning

confidence: 99%

Section: The Meaning Of Cancer To the Childmentioning

confidence: 99%

See 1 more Smart Citation

Psychosocial Aspects of Childhood Cancer: A Review of the Literature

Dongen-Melman¹,

Sanders‐Woudstra²

1986

J Child Psychol & Psychiat

106

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“…score of 2) M_1I 1r-:1 I ~_.L_1I&dquo;Wt!! ___11 Johnson et al 1979) and diabetes mellitus (Olatawura, 1972) and for sickle cell anaemia among American blacks (Collins, 1986;Whitten & Fischoff, 1974). The significant differences between the sickle cell anaemia and epilepsy could be explained predominantly by the different levels of severity of illness outcome.…”

Section: Discussionmentioning

confidence: 99%

Burden of Sickle Cell Anaemia On Families of Patients

Famuyiwa

Akinyanju

1998

Int J Soc Psychiatry

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This study examines the burden on the families of children with sickle cell anaemia in a naturalistic setting. Compared with a matched group of epileptics (N=76) families of sickle cell anaemia victims aged 12 years and below (N = 85) suffer greater burden on a standardised scale which encompasses several burden parameters. Family size and multiple incidence were the only clinico-demographic variables which exerted tangible total burden effects.Financial expenses incurred on medical care; effect on physical health of family members; sense of despair regarding expectation of crisis; sleeplessness and frustration in any member of the family; and abandonment of joint family activities were the commonest causes of burden. There was a significant correlation between total burden scores and frequency of crisis (r=0.79). It is suggested that clinicians should pay attention not only to deficiencies but also strengths and coping capacity of families which can be reinforced to formulate meaningful intervention programmes.

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“…This education appears to help decrease possible magical thinking, misinformed ideas and their anxiety of the unknown and future (Slavin, 1981;Johnson, Rudolf & Hartman, 1979). This education appears to help decrease possible magical thinking, misinformed ideas and their anxiety of the unknown and future (Slavin, 1981;Johnson, Rudolf & Hartman, 1979).…”

Section: Discussionmentioning

confidence: 99%