Heart failure patients' descriptions of participation in structured home care

Abstract

Background To strengthen the patient's position in health care, patient participation has been decreed in policy documents and legalizations. For patients suffering from heart failure, self-care is an important part of disease management and participation is crucial to succeed with this.

Community case management and unplanned hospital admissions in patients with heart failure: A systematic review and qualitative evidence synthesis

“…This theme was also apparent in the Nasstrom and the Close study where patients lived in sheltered/residential care respectively (Close et al., ; Näsström et al., ). This patient response does not seem to be location specific as this theme was also identified in the Lloyd Williams study where people attended a primary healthcare practice.…”

“…Information and education (Close et al., ; Lloyd‐Williams et al., ; Näsström et al., ; Peters‐Klimm et al., ; Young et al., ).…”

“…Self‐management and self‐care (Lloyd‐Williams et al., ; Näsström et al., ; Olbort et al., ; Peters‐Klimm et al., ; Young et al., ).…”

“…Case management was perceived by patients to enhance access to care overall. Heart failure was seen as a complex condition and the availability of information needed to be an ongoing process to achieve a good understanding for most patients (Näsström et al., ). Patients emphasized the impact of case management on quality of care was the timeliness of being able to access the heart failure specialist nurse, the reliability of this service and being able to develop a trustful relationship.…”

“…(Patient 18, Young et al., )

This provided an opportunity to manage the situation from a more holistic perspective, rather than the fragmented approach that was experienced with other forms of healthcare contact. (Näsström et al., ).

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