Hearing the Voice of the Resident in Long-Term Care Facilities—An Internationally Based Approach to Assessing Quality of Life

Morris, John N.; Declercq, Anja; Hirdes, John P.; Finne-Soveri, Harriet; Fries, Brant E.; James, Mary L.; Geffen, Leon; Kehyayan, Vahe; Saks, Kai; Szczerbińska, Katarzyna; Topinková, Eva

doi:10.1016/j.jamda.2017.08.010

Cited by 27 publications

(27 citation statements)

References 25 publications

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“…For this context, we defined empowerment as a process of enhancing residents' independence and feelings of autonomy, including participating in decision‐making about care processes. This can be measured explicitly via a standardized residents' questionnaire about autonomy and participative decision‐making (Morris et al., 2018), or implicitly with the availability of advance care planning. At (b) the organizational level, given consistent professional support from RNXs, low staff turnover, increases in care staff job satisfaction on all levels and empowerment would be expected.…”

Section: Resultsmentioning

confidence: 99%

Registered nurses in expanded roles improve care in nursing homes: Swiss perspective based on the modified Delphi method

Basinska

Wellens

Simon

et al. 2020

Journal of Advanced Nursing

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Section: Resultsmentioning

confidence: 99%

Registered nurses in expanded roles improve care in nursing homes: Swiss perspective based on the modified Delphi method

Basinska

Wellens

Simon

et al. 2020

Journal of Advanced Nursing

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“…Good social connection has been associated with good mental health outcomes in LTC residents (Bethell et al, 2021). Meaningful social engagements are essential as they are associated with quality of life in LTC facility residents (Kehyayan et al, 2015;Morris et al, 2018).…”

Section: Discussionmentioning

confidence: 99%

Profile of Residents with Mental Disorders in Canadian Long-Term Care Facilities: A Cross-Sectional Study

Kehyayan

Chen

Hirdes

2021

Journal of Long Term Care

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Residents in long-term care facilities in Canada with mental and cognitive disorders have complex care needs. To meet these needs an integrated model of care is recommended. Context: The high prevalence of mental disorders in residents of long-term care (LTC) facilities raises serious concerns for facility operators and staff. These residents have multiple vulnerabilities that facility staff should have the necessary knowledge and skills to properly meet their needs. Objectives: To describe the profile of residents with mental disorders (MD) and Alzheimer's Disease and Related Dementias (ADRD) in Canadian long-term care (LTC) facilities. Findings: Seventy-six percent of residents had MD (40%) and ADRD (36%). These residents compared to those without such disorders were more likely to be cognitively impaired, manifest aggressive behavior, receive psychotropic drugs, and physically restrained, and less likely to be socially engaged. Strengths and Limitations:The large representative sample was a key strength. The findings add to the knowledge about the profile of LTC residents. The cross-sectional design of the study limits the findings to the population studied. Implications: Residents with MD and ADRD compared to those without such disorders are highly vulnerable because of their double burden of mental and physical comorbidities. Their profile may be of interest to LTC facility operators, clinicians, and policy makers about their complex care needs. Our findings raise awareness of the need for trained LTC facility staff for knowledge and skills in psychogeriatric conditions to assess, plan, and implement appropriate interventions for these residents. Coordinated and integrated models of care with access to psychogeriatric specialists such as psychiatrists or advanced practice nurses will also be of benefit to them.

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“…For cognitively impaired residents, a nominated family member or carer will act as a proxy for the assessment. The instruments that will be used for assessing QoL are both the interRAI subjective quality of life (SQoL)42 and a standardised instrument for measuring health outcomes (Q-5D-5L, the 5-level version of the EQ-5D)43 for RACF residents without cognitive impairment (ie, PAS-Cog<12) or the Quality of Life in Alzheimer’s Disease (QoL-AD)44 for residents deemed to have cognitive impairment (ie, PAS-Cog score of 12 or more).…”

Section: Methods and Analysismentioning

confidence: 99%

CareTrack Aged: the appropriateness of care delivered to Australians living in residential aged care facilities: a study protocol

et al. 2019

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IntroductionThe aged population is increasing rapidly across the world and this is expected to continue. People living in residential aged care facilities (RACFs) represent amongst the sickest and frailest cohort of the aged population, with a high prevalence of chronic conditions and complex comorbidities. Given the vulnerability of RACF residents and the demands on the system, there is a need to determine the extent that care is delivered in line with best practice (‘appropriate care’) in RACFs. There is also a recognition that systems should provide care that optimises quality of life (QoL), which includes support for physical and psychological well-being, independence, social relationships, personal beliefs and a caring external environment. The aims ofCareTrack Agedare to develop sets of indicators for appropriate care and processes of care for commonly managed conditions, and then assess the appropriateness of care delivered and QoL of residents in RACFs in Australia.Methods and analysisWe will extract recommendations from clinical practice guidelines and, using expert review, convert these into sets of indicators for 15 common conditions and processes of care for people living in RACFs. We will recruit RACFs in three Australian states, and residents within these RACFs, using a stratified multistage sampling method. Experienced nurses, trained in theCareTrack Agedmethods (‘surveyors’), will review care records of recruited residents within a 1-month period in 2019 and 2020, and assess the care documented against the indicators of appropriate care. Surveyors will concurrently assess residents’ QoL using validated questionnaires.Ethics and disseminationThe study has been reviewed and approved by the Human Research Ethics Committee of Macquarie University (5201800386). The research findings will be published in international and national journals and disseminated through conferences and presentations to interested stakeholder groups, including consumers, national agencies, healthcare professionals, policymakers and researchers.

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Hearing the Voice of the Resident in Long-Term Care Facilities—An Internationally Based Approach to Assessing Quality of Life

Cited by 27 publications

References 25 publications

Registered nurses in expanded roles improve care in nursing homes: Swiss perspective based on the modified Delphi method

Registered nurses in expanded roles improve care in nursing homes: Swiss perspective based on the modified Delphi method

Profile of Residents with Mental Disorders in Canadian Long-Term Care Facilities: A Cross-Sectional Study

CareTrack Aged: the appropriateness of care delivered to Australians living in residential aged care facilities: a study protocol

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