Hear our voices: A Photovoice project with children who are orphaned and living with HIV in a Ugandan group home

Fournier, Bonnie; Bridge, Andrea; Kennedy, Andrea; Alibhai, Arif; Konde-Lule, Joseph

doi:10.1016/j.childyouth.2014.03.038

Cited by 52 publications

(63 citation statements)

References 24 publications

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“…However, its effect is reliant on social conditions such as family environment, presence or absence of peer support and the attitudes of HCWs working with youth. Inclusion of supportive social conditions at different levels of the SEM, such as community support groups, family counselling and HIV /sexual and reproductive health education, has the potential to bolster self-efficacy and motivate ALHIV through the stages of care [80][81][82][83]. In the absence of supportive conditions, ALHIV self-efficacy may fail to develop or result in rebellion against their care management [84] as they gain further independence with age, yet maintain a sense of social isolation and frustration surrounding treatment adaptation.…”

Section: Discussionmentioning

confidence: 99%

Scaling a waterfall: a meta‐ethnography of adolescent progression through the stages of HIV care in sub‐Saharan Africa

Williams

Renju

Ghilardi

et al. 2017

Journal of the International AIDS Society

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Introduction: Observational studies have shown considerable attrition among adolescents living with HIV across the “cascade” of HIV care in sub-Saharan Africa, leading to higher mortality rates compared to HIV-infected adults or children. We synthesized evidence from qualitative studies on factors that promote or undermine engagement with HIV services among adolescents living with HIV in sub-Saharan Africa. Methods: We systematically searched five databases for studies published between 2005 and 2016 that met pre-defined inclusion criteria. We used a meta-ethnographic approach to identify first, second and third order constructs from eligible studies, and applied a socio-ecological framework to situate our results across different levels of influence, and in relation to each stage of the HIV cascade. Results and discussion: We identified 3089 citations, of which 24 articles were eligible for inclusion. Of these, 17 were from Southern Africa while 11 were from Eastern Africa. 6 explored issues related to HIV testing, 11 explored treatment adherence, and 7 covered multiple stages of the cascade. Twelve third-order constructs emerged to explain adolescents’ engagement in HIV care. Stigma was the most salient factor impeding adolescents’ interactions with HIV care over the past decade. Self-efficacy to adapt to life with HIV and support from family or social networks were critical enablers supporting uptake and retention in HIV care and treatment programmes. Provision of adolescent-friendly services and health systems issues, such as the availability of efficient, confidential and comfortable services, were also reported to drive sustained care engagement. Individual-level factors, including past illness experiences, identifying mechanisms to manage pill-taking in social situations, financial (in)stability and the presence/absence of future aspirations also shaped adolescents HIV care engagement. Conclusions: Adolescents’ initial and ongoing use of HIV care was frequently undermined by individual-level issues; although family, community and health systems factors played important roles. Interventions should prioritise addressing psychosocial issues among adolescents to promote individual-level engagement with HIV care, and ultimately reduce mortality. Further research should explore issues relating to care linkage and ART initiation in different settings, particularly as “test and treat” policies are scaled up.

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Section: Discussionmentioning

confidence: 99%

Scaling a waterfall: a meta‐ethnography of adolescent progression through the stages of HIV care in sub‐Saharan Africa

Williams

Renju

Ghilardi

et al. 2017

Journal of the International AIDS Society

View full text Add to dashboard Cite

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“…In their study, Pritzker and colleagues () shared how youth reported increased self‐efficacy and empowerment as well as community attachment and awareness through their involvement with the project. Fournier, Bridge, Kennedy, Alibhai, and Konde‐Lule () conducted a Photovoice project with orphaned children with HIV living in a Uganda group home and reported risk and protective factors delineated by position within and outside of the home. Each of these projects provides preliminary evidence for the role of Photovoice to offer an engaging and useful approach for connecting with the resiliency and wisdom held by marginalized populations, such as young people experiencing homelessness.…”

Section: Homeless Youth: Profiles Of Risk or Resilience?mentioning

confidence: 99%

On the fringes: How youth experiencing homelessness conceptualize social and economic inequality–A Photovoice study

Barman‐Adhikari

DeChants

Brydon

et al. 2019

Journal Community Psychology

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This study used Photovoice methods with young adults experiencing homelessness to collaboratively identify issues that are of greatest importance in an open‐ended, exploratory, and inductive manner. Participants selected two concepts to focus their inquiry: freedom and prosperity. Within these concepts, participants discussed nature as a source of inspiration, a desire to better themselves and to change their situations, and passion for contributing to social change by exposing economic inequality and raising awareness about homelessness. These findings demonstrate that young people are keenly aware of the structural and macro‐level factors that have contributed to their risks of social exclusion and marginalization.

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“…The fi ndings from the current study demonstrated that the children face many hardships, especially related to stigma and discrimination at school and in their community (Fournier et al 2014a ). When they go to the health clinic for treatment, they discuss with each other which friend has died since the last visit.…”

Section: Introductionmentioning

confidence: 73%

“…The issue of stigma had surfaced earlier in the project, but not understood deeply by the research team (Fournier et al 2014a ), namely when the team suggested going to the school to conduct the focus group sessions, the children said that they did not want to draw more attention to themselves and feared harassment and teasing. It was only later during the dissemination phase of the study that the gravity of this stigma registered with the team, particularly when Bridge and Fournier returned to Uganda and learned that the community had labeled the group home as a home for HIV-positive children and the children living there felt the stigma each day they left the home to walk to school (Fournier et al 2014a ).…”

Section: Infl Uencing Policy: Limitationsmentioning

confidence: 99%

Children and Young People Living with HIV/AIDS

Liamputtong¹

2016

Cross-Cultural Research in Health, Illness and Well-Being

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This new series examines determinants of health from a cross-cultural perspective. The focus of this perspective is on factors which could infl uence and determine the health and well-being of people. These factors include biological and genetic factors; health behaviors; socio-cultural and socio-economic factors and environment factors. This series fi lls a gap by including books which are research-based and contain diverse issues relevant to determinants of health including emerging health issues, such as HIV/AIDS and other infectious and non-infectious diseases/illnesses from a cross-cultural perspective. Volumes in the series will be a valuable resource for researchers and students in sociology, quality of life studies, anthropology, medicine, public health, social work and medicine.More information about this series at

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Hear our voices: A Photovoice project with children who are orphaned and living with HIV in a Ugandan group home

Cited by 52 publications

References 24 publications

Scaling a waterfall: a meta‐ethnography of adolescent progression through the stages of HIV care in sub‐Saharan Africa

Scaling a waterfall: a meta‐ethnography of adolescent progression through the stages of HIV care in sub‐Saharan Africa

On the fringes: How youth experiencing homelessness conceptualize social and economic inequality–A Photovoice study

Children and Young People Living with HIV/AIDS

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