Healthy Lungs Study: A Randomised Controlled Trial of a Community Intervention Programme Versus Usual Care to Prevent Chronic Respiratory Symptoms in Children Following Severe Bronchiolitis or Pneumonia

Byrnes, Catherine A.; Trenholme, Adrian; Lawrence, Shirley; Aish, Harley; Higham, Julie-Ann; Hoare, Karen; Elborough, Aileen; McBride, Charissa; Comte, Lyndsay Le; McIntosh, Christine; Mow, Florina Chan; Jaksic, M.; Metcalfe, Russell; Coomarasamy, Christin; Leung, William; Vogel, Alison; Lennon, Dianna; Percival, Teuila; Mason, Henare; Stewart, Joanna

doi:10.2139/ssrn.3234910

Cited by 2 publications

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“…Approximately 53% of this population is Māori or Pacific and 58% of the birth cohort live in the most socioeconomic deprived quintile of Aotearoa/ New Zealand. 34,35 LRI, often bronchiolitis or pneumonia, is one of the most common causes of hospital admission for (Māori and Pacific) children in this region. 2,36 Issues contributing to high LRI rates include overcrowded and under-heated housing.…”

Section: Methodsmentioning

confidence: 99%

‘You have to do what is best’: The lived reality of having a child who is repeatedly hospitalized because of acute lower respiratory infection

McBride‐Henry

Miller

Trenholm

et al. 2021

Health Expectations

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Introduction: Hospitalization of children is traumatic for children and their families.Little is known about the impact of repeated acute admissions on families, or of these experiences in Indigenous populations and ethnic minorities. This study explores the societal and health experiences for families who have a child under two years of age, admitted to hospitals more than twice for lower respiratory infections.Methods: Underpinned by a reflective lifeworld research methodology, this article presents results from 14 in-depth interviews in Aotearoa/New Zealand.Results: Families learn to identify illness early and then navigate hospital systems.These families struggle to create safe spaces for their children at home or in society.Wider social and economic support are central to family resilience, without which they struggle. Conclusion:This study reinforces the importance of bringing meaningful, culturallyresponsive care to the fore of treatment, particularly when managing vulnerable minorities. Formal referral and support processes are key to this responsiveness to lessen the burdens of acute admissions for families.Patient or Public Contribution: Families chose to be involved in this study to highlight the importance of the topic and their experiences with accessing health care. The cultural advisors to the project provided feedback on the analysis and its applicability for the participant community.

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Section: Methodsmentioning

confidence: 99%

‘You have to do what is best’: The lived reality of having a child who is repeatedly hospitalized because of acute lower respiratory infection

McBride‐Henry

Miller

Trenholm

et al. 2021

Health Expectations

View full text Add to dashboard Cite

show abstract

“…The region has high levels of socio-economic deprivation; 58% of the birth cohort lives in the most socio-economically deprived quintile of New Zealand [22,23]. In this same population, researchers have identified that 25% of those admitted with LRI live with more than seven other people in the same house and 33% live with four or more children [24].…”

Section: The Research Sitementioning

confidence: 99%

Occupying ‘in-hospitable’ spaces: Parental/primary-caregiver perceptions of the impact of repeated hospitalisation in children under two years of age

et al. 2020

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The experience of having a child hospitalised is stressful and disrupts families in myriad ways; however, the experiences of parents/caregivers who encounter repeated admissions of a child with acute lower respiratory infections are under-researched. This project aims to explore these experiences, from a qualitative perspective, using the philosophical tenets of reflective lifeworld research. The research included 14 face-to-face interviews with parents, grandparents, or primary caregivers, of children who, whilst under two years of age, were admitted to hospital multiple times with a lower respiratory infection diagnosis. Many of the participants were from Māori or Samoan ethnic backgrounds. The findings of this single site study revealed that these parents/caregivers' experiences were characterised by feelings of powerlessness, offering descriptions of hospitals as harsh and difficult places to reside, they are 'in-hospitable'. The findings suggest that repeated hospitalisations created a cycle of stressful experiences that impacted both familial relationships and interactions with society. This study draws attention to this previously obscured population group, and calls health care practitioners and policy advisors to engage differently over issues involving families in similar positions.

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Healthy Lungs Study: A Randomised Controlled Trial of a Community Intervention Programme Versus Usual Care to Prevent Chronic Respiratory Symptoms in Children Following Severe Bronchiolitis or Pneumonia

Cited by 2 publications

References 0 publications

‘You have to do what is best’: The lived reality of having a child who is repeatedly hospitalized because of acute lower respiratory infection

‘You have to do what is best’: The lived reality of having a child who is repeatedly hospitalized because of acute lower respiratory infection

Occupying ‘in-hospitable’ spaces: Parental/primary-caregiver perceptions of the impact of repeated hospitalisation in children under two years of age

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