BackgroundRaising public awareness of cancer symptoms, and consequently early cancer detection remains a challenge in the United Kingdom (UK) and worldwide. Research suggests that presenting health information with individual risk estimation could improve uptake of preventative behaviours. A decision aid enabling personalized symptom-based cancer risk estimation offered in a community setting could improve public's self-awareness of cancer symptoms. Such an aid could motivate individuals to present to their General Practitioners (GPs) with symptoms. In this paper we report research in relation to design and development of the REACT (Risk Estimation for Additional Cancer Testing) website, a tool to be used in a community setting allowing users to fill in an online questionnaire and obtain personalized cancer symptom-based risk estimation.
ObjectivesTo evaluate: (1) the acceptability of REACT among public and healthcare professionals; (2) the usability of the REACT website; (3) the presentation of personalised cancer risk on the website; and (4) potential approaches to adopt the REACT into community healthcare services in the UK.
MethodsFocus groups, involving a trial of the REACT website, with members of public (n = 15) and healthcare providers (pharmacists, NHS Health Check workers, a local Prevention and Early Intervention group including GPs) in the UK (n = 20) were utilised to evaluate the website 1 and perceived usefulness of such a tool. User experiences were collected by the think-aloud approach when participants using the website were asked to talk about their perceptions and feelings in relation to the website.
ResultsThe results demonstrate a need for such a tool, reflected by both members of public and healthcare professionals. Participants suggest the best way to offer access to such a tool is through a guided approach, with a healthcare practitioner (e.g., Pharmacist or NHS Health Check nurse) present during the process of risk evaluation. User feedback has been used to inform the development of the website. The most important aspects were: simplicity, ability to evaluate multiple cancers, content emphasizing an inviting community "feel", use (when possible) of layperson language in the symptom screening questionnaire, and a robust and positive approach to cancer communication relying on visual risk representation both with affected individuals and the entire population at risk. Multiple iterations of the content, layout, and alterations to symptom-based risk presentation of website were undertaken.
ConclusionsThis study illustrates the benefits of involving public and stakeholders in developing and implementing a simple cancer check tool within community. It also offers insights and design suggestions for user-friendly interfaces of similar healthcare web-based services, especially those involving personalized risk estimation.