Healthcare providers’ perspectives on perceived barriers and facilitators of compassion: Results from a grounded theory study

Singh, Pavneet; Raffin-Bouchal, Shelley; McClement, Susan; Hack, Thomas F.; Stajduhar, Kelli; Hagen, Neil A.; Sinnarajah, Aynharan; Chochinov, Harvey Max; Sinclair, Shane

doi:10.1111/jocn.14357

Cited by 45 publications

(54 citation statements)

References 45 publications

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“…Therefore, increasing the pragmatism of infection control policies for patients confirmed to be receiving appropriate treatment may improve QOL without increasing TB transmission. Meanwhile, providing training in patients' rights and sharing experiences can challenge discrimination from healthcare workers, while improving working conditions and associated stresses further cultivates compassionate care [ 29 – 31 ].…”

Section: Discussionmentioning

confidence: 99%

Quality of life, tuberculosis and treatment outcome; a case–control and nested cohort study

et al. 2020

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BackgroundGlobal tuberculosis policy increasingly emphasises broad tuberculosis impacts and highlights the lack of evidence concerning tuberculosis-related quality of life (QOL).MethodsParticipants were recruited in 32 Peruvian communities 13/7/2016–24/2/2018 and followed-up until 8/11/2019. Inclusion criteria were: age ≥15 years for “patients” (n=1545) starting treatment for tuberculosis disease in health centres; “contacts” (n=3180) who shared a patient's household for ≥6 h·week−1; and randomly-selected “controls” (n=277). The EUROHIS-QOL questionnaire quantified satisfaction with: QOL; health; energy; activities of daily living (ADL); self; relationships; money; and living place.FindingsNewly-diagnosed tuberculosis was most strongly associated with lower QOL scores (p<0.001). Patients initially had lower QOL than controls for all EUROHIS-QOL questions (p≤0.01), especially concerning health, ADL and self. Lower initial QOL in patients predicted adverse treatment outcomes and scores <13-points had 4.2-times (95%CI=2.3,7.6) increased risk of death versus those with higher QOL scores (both p<0.001). Patient QOL was re-assessed 6 months later and for patients with successful treatment, QOL became similar to participants who never had tuberculosis, whereas patients who did not complete treatment continued to have low QOL (p<0.001). Multidrug-resistant tuberculosis was associated with lower QOL before and during treatment (both p<0.001). Contacts had lower QOL if they lived with a patient who had low QOL score (p<0.0001) or were a caregiver for the patient (p<0.001).ConclusionsTuberculosis was associated with impaired psycho-socio-economic QOL which recovered with successful treatment. Low QOL scores predicted adverse treatment outcome. This brief EUROHIS-QOL 8-item questionnaire quantified the holistic needs of tuberculosis-affected people, potentially guiding patient-centred care.

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Section: Discussionmentioning

confidence: 99%

Quality of life, tuberculosis and treatment outcome; a case–control and nested cohort study

et al. 2020

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“…Compassionate care facilitation includes the personal and relational characteristics of the primary care nurse, the organizational framework and an individually tailored care system. Barriers to compassion include personal challenges, relational challenges, system challenges and maladaptive responses (Singh et al, 2018).…”

Section: Introductionmentioning

confidence: 99%

Nurses’ experiences of compassionate care in the palliative pathway

Tarberg

Landstad

Hole

et al. 2020

Journal of Clinical Nursing

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Aims and objectives: The aim was to explore how nurses experience compassionate care for patients with cancer and family caregivers in different phases of the palliative pathway. Background: Compassion is fundamental to palliative care and viewed as a cornerstone of high-quality care provision. Healthcare authorities emphasize that patients should have the opportunity to stay at home for as long as possible. There are, however, care deficiencies in the palliative pathway. Design: This study employed a qualitative design using focus groups and a hermeneutic approach. Methods: Four focus groups with three to seven female nurses in each group were conducted in Mid-Norway in 2018. Nurses' ages ranged from 28-60 years (mean age = 45 years), and they were recruited through purposive sampling (N = 21). Compassionate care was chosen as the theoretical framework. Reporting followed the COREQ guidelines. Results: Three themes expressing compassionate care related to different phases of the pathway were identified: (a) information and dialogue, (b) creating a space for dying and (c) family caregivers' acceptance of death. Conclusions: This study showed that it was crucial to create a space for dying, characterized by trust, collaboration, good relationships, empathy, attention, silence, caution, slowness, symptom relief and the absence of noise and conflict. Relevance to clinical practice: The quality of compassion possessed by individual practitioners, as well as the overall design of the healthcare system, must be considered when creating compassionate care for patients and their family caregivers. Nursing educators and health authorities should pay attention to the development of compassion in education and practice. Further research should highlight patients' and family caregivers' experiences of compassionate care and determine how healthcare systems can support compassionate care. This is an open access article under the terms of the Creative Commons Attribution License, which permits use, distribution and reproduction in any medium, provided the original work is properly cited.

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“…Patients expect the health care staff to treat them with compassion, but this does not always happen due to organizational factors in the workplace and to factors related to lack of competence in the knowledge, attitudes, and skills necessary for compassion by the health personnel. However, compassion can be cultivated and there are models to optimize it at a personal, relational, and system level [ 21 ], among which are initiatives in universities to teach the values of care by practicing compassion [ 15 ].…”

Section: Introductionmentioning

confidence: 99%

Compassionate Engagement and Action in the Education for Health Care Professions: A Cross-Sectional Study at an Ecuadorian University

Davalos-Batallas

Vargas-Martínez

Sierra

et al. 2020

IJERPH

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Objective: This study aimed at exploring the compassion attitudes and needs for awareness and training related to a compassionate approach for Medicine, Nursing, and Psychology students, as well as for the academic and administration personnel from the Universidad Técnica Particular de Loja (UTPL, Ecuador) Health Sciences area. Methods: A cross-sectional observational study, based on a self-administered questionnaire through a sample of 788 UPTL students. STROBE guidelines were followed and applied. Results: A positive correlation was found between life engagement and compassion for others, from others, and self-compassion. The Nursing students were those who reported having previous experiences of contact with people with an advanced disease or in an end-of-life situation and having received some type of training compared to Medicine and Psychology students and lecturers (faculty members). Differences were found on the “self-compassion” and “compassion for others” subscales, noting a higher level of compassion among Psychology students. Conclusions: To implement the philosophy of compassionate universities it is necessary to design trainings that include the students, the faculty members, and the administrative staff, centered on sensitization and training about assistance, care, and accompaniment at the end of life, as well as cultivating compassion in the workplace.

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Healthcare providers’ perspectives on perceived barriers and facilitators of compassion: Results from a grounded theory study

Abstract: This study provides a blueprint for optimising compassion on a personal, relational and system level.

Cited by 45 publications

References 45 publications

Quality of life, tuberculosis and treatment outcome; a case–control and nested cohort study

Quality of life, tuberculosis and treatment outcome; a case–control and nested cohort study

Nurses’ experiences of compassionate care in the palliative pathway

Compassionate Engagement and Action in the Education for Health Care Professions: A Cross-Sectional Study at an Ecuadorian University

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